I’m honestly more exhausted by how I’m treated than by the symptoms themselves.
I’ve been dealing with a flare for months now, and I’ve adapted to the double vision and droopiness as part of my life. I take my meds, I manage it, and I keep going.
What’s been hardest is how people respond to it. People I’ve never met point out my eye before even saying hello. My family often treats me like I’m fragile or incapable, and it’s starting to wear me down. Then when I do express frustration, they just tell me other people have it worse than me. I just don’t understand because I’m still the same person? I’m just dealing with a chronic condition. It also took multiple doctors before I was finally diagnosed, and the process was so exhausting and dismissive. I’ve had more appointments than not where I left feeling more confused than helped. I ended up on a payment plan for an appointment I left with a wrong diagnosis.
I just wish people could see me as more than my condition. I’m so much more than that. :(