Not sure if feeling happy or dismissed when told I don’t need surgery
For context I found out I have a 16m Chiari with brainstem impacts. No Syrinx. I went to see the top neurosurgeon in the county as I get pins and needles often, heart palpitations and restless legs. Headaches I’ve had since a child and they don’t really worry me.
Main Dr didn’t come in to the appointment until the triage doctor went through the history. Triage then summarised for main Dr. Main. Main Dr said no need for surgery as he could only guarantee it would fix the headaches which don’t really worry me and the other stuff he wasn’t convinced was related to Chiari. I was thrilled to not be needing surgery… but on reflection I’m not sure triage doctor replayed every symptom correctly… are pins and needles and restless legs related to Chiari, are they really worth surgery? Can they lead to more permanent stuff? Dr said no, so I’m not even sure why I’m questioning it. I hate the idea of brain surgery so was ecstatic when he said I didn’t need it, but I’m so scared of permanent damage…