Negative Tilt Table Test - Not Sure What To Do Now
For the last 5 years I've had symptoms such as palpitations (diagnosed as ectopic beats by Cardiologist), dizziness, shortness of breath, & excessive sweating when standing up & moving around. These have become progressively worse.
My heart rate swings between 60 bpm at rest to 121 when just walking slowly upstairs, even whilst being on beta blockers. Trying to have a shower or do anything even mild activity levels, leaves me needing to cool down & the sweating is awful. Leaves my hair wringing wet & just runs off my face & chest.
Neurology refused point blank to see me. So was sent to Cardiology again, had 24 hour ecg, & echocardiogram which showed nothing. Got told I'm fairly young & have no risk factors for heart disease etc, so I asked about something such as POTS.
Had tilt table test about a month ago. Couldn't see my BP or BPM as monitors were behind me but I had symptoms such as dizziness, sweating, shortness of breath, & palpitations when raised for the 45 mins. So glad when it was over. Afterwards my mum who was in the room said that my heart rate was spiking just as I reported the symptoms.
Received letter of 2 lines today: test was normal & you are discharged from the Cardiology department. Not even a "it's not PoTS but something isn't right". Apparently the symptoms above are all normal for someone just standing?! Neurology won't see me, my beta blockers can't be increased as they drop my BP too low, so now I'm left with these symptoms & my GP will be telling me nothing is showing as wrong but something isn't right. What can I do?