I feel so alone
Hi all, I was diagnosed a few months ago. Initially I was super relieved after years of pain and improving symptoms (I’m not crazy! There is treatment! My symptoms are real!)
But now I feel everything is starting to sink in? This is for life. Always applying the creams, managing symptoms. I told a few people initially and while they responded really well it seems like everyone (including my partner) just forgets? It feels to me it’s also not something you bring up over a cup of coffee. Today I had a nasty flare-up at my new job and I realised that I did not feel okay at all to talk about it and just had to bear it until getting home. It feels like I’m back at square one.
How do you deal with this long term? I have a hard time accepting this. Thank you for reading my long and whiny post.