hi everyone! i posted recently asking for advice/your experience having a valve replacement. has anyone
had a tricuspid valve replacement, what was that like? i posted in another subreddit and someone said that it’s done via catheter, but from the way my cardiologist is making it sound, it’s an open heart surgery.
any advice or experience is appreciated!
hi everyone! a few months ago I made a post asking if anyone had experience with getting a TEE. i had mine done on monday, it wasn’t bad at all! i was in and out. had anyone had a valve repair or replacement? how is it going for you, what’s the recovery like?
they did confirm their suspicion, and found that the valve isn’t closing all the way, and one of the leaflets is damaged, creating severe regurgitation. due to the leaflet (it’s curled in and retracted on itself from the surgery, it got tethered to the patch) he isn’t sure that a repair will work. so the next step is a valve replacement, he said most likely a biological valve. i’ve never had any sort of surgery as an adult so i’m a bit nervous. any advice you can give would be appreciated!
does anyone have any experience doing a TEE for valve regurgitation? i have right sided heart enlargement and they think it might be due to severe regurgitation, (and it’ll have to wait at least six months because they incidentally found a paratracheal and lung mass and he doesn’t want to do it while the mass is there) and want to do a TEE to confirm.
i’ve never done something like this, at least not as an adult. if anyone has any advice it would be appreciated!
also, if anyone has any subreddit recommendations for subreddits that might be able to help with understanding paratracheal or lung mass/biopsy procedures let me know!
thank you!
Hi everyone, I was born with congenital heart disease and during a follow up test, we found moderate to severe triscupid regurgitation. the note listed was “severe tricuspid regurgitation with an eccentric jet wrapping around the right atrium”. My cardiologist recommended a TEE to see just how severe it is. Does anyone have any experience doing these? If so, how was it? Is there any preparation involved?
Also, on this same MRI, a paratracheal mass was found.
On a follow up CT, we found a lung mass as well. Does
anyone know of anywhere I can post to ask for advice on anyone’s else’s expense with these? I can’t seem to find any.
Thank you for your help!
Hi everyone, if you can please take the time to read my gofund me it would be greatly appreciated. A few months ago I posted in hopes of raising the money for my sweet girl, miffy’s eye removal. But I am here again because I am now drowning in my own medical bills.
Thank you for taking the time to read, please consider sharing, or donating. Thank you
Hi everyone! I’ve posted on here before. I was born with three holes in my heart, an ASVSD, ASD, and VSD as well as an aberrant right subclavian artery. I had open heart surgery at a couple months old to repair the ASVSD, and ASD. The VSD was left alone due to the 50% chance it would close on its own. It did. Over the pass few years i’ve become increasingly exhausted, with ongoing palpitations, shortness of breath and lightheadedness. I really didn’t expect for them to find anything, it was more for peace of mind. Instead, they found an ASD, “severe tricuspid regurgitation with an eccentric jet wrapping around the right atrium”, triscupid prolapse, and a mass in my trachea, or in the mediastinum. I’m at a loss for words and how to feel. I’ve been waiting on the ct that was meant to take a closer look at the mass. i should be starting medication soon for the regurgitation. With the ARSA, it’s starting to sound like surgery to remove the mass (and it depends on what it is) isn’t an option. I have a very physical job, and I don’t want to stop living my life but it’s so frustrating to hear my doctor say “after 20 years of your heart working the way it wasn’t supposed to it starts to decompensate”. Has anyone been through something similar? Any advice?