Hey everyone, I have CHD (tricuspid atresia) and have been out of work for a while unfortunately. I had a remote position but our funding was cut and we were all let go. I was wondering what positions you might recommend. I've been struggling with dehydration lately with this heat wave and I had been applying to in person positions, but I don't think I can be missing a week of work every couple of weeks.
Thanks
Last night my oxygen was in the 80s and my heart rate was a bit faster than usual. This morning I wake up and check it and for a few minutes it was back in the 80s, down to 85 at the lowest.
I felt like I had breathing problems the last few months so they did an EKG and that was fine. And X-ray and aside from coarsening at the bottom of my lungs from smoking, it was fine. They didn't seem worried at all about that, is that weird?
They did labs and my d dimer was elevated so they did a chest CT to make sure I didn't have a blood clot and that turned out fine too.
They didn't seem concerned about anything and sent me home.
I had a stress test last year and that was mostly fine, I didn't go as long as I did in the years before. They always do an echo and that was fine.
What the fuck?
If everything is fine, why do I feel this way, why is my oxygen lower than usual and about 6 minutes later it goes back into the 90s, which is my usual.
I don't get it.
They've got an MRI set up for December because I haven't had one in a few years, maybe that'll show something.
Am I crazy?
Does anyone else's oxygen drop (or even stay) in the 80s?
Am I crazy??
My husband incidentally found out he had a 2.7 cm Primum ASD a year and a half ago. He had OHS to repair with a patch, and we were assured that was completely and permanently handled. A few weeks ago they did an echo to get a baseline normal, sound a suspected leak on the patch. TEE confirmed the leak, 1.0 cm, but they haven’t told us where it’s located/how it will need to be repaired. MRI coming up in a couple weeks to get more info.
Thoughts on this? Specifically was this surgeon error or bad luck? Odds of avoiding another OHS to repair it? We are already mentally preparing for another surgery as it seems that’s where we are headed.
This has to be one of the bravest things I’ve ever gone thru. My stenosis has gotten so bad my heart was enlarging although I never had any symptoms.
Asked if it could wait till Christmas, but they said I didn’t have that much time. Which is crazy.
Anyways, went ahead and had the surgery yesterday and each passing hour. I feel a little better of course the drugs are kicking in pretty good.
I go on my second walk in a little while and brutal is the only way to describe that lol.
But it’s good for me getting me to cough up this phlegm and hopefully in three days I’ll be back home. They’re pulling me out of ICU today, although I’ll still stay in the same room, because the hospitals under construction.
I am in the process of red establishing care at OHSU. After a frustrating experience at Legacy and taking 6 months to finally scratch the surface of what is going on I have decided to change other specialists to OHSU. I realize it will prolong me waiting to see them even longer than I have been waiting but asked my ACHD cardiologists to refer me to GI, Gyno, PM&R , and tbd if I need other specialists involved but for now that what I also have going on. My question is will they typically send those referrals? I can’t get into any primary care and my current one stinks and plus I’d like to change to OHSU. I also have an HMO plan so don’t necessarily need primary to refer me either. If she does refer me could she get me in sooner?
Good news is for the heart side of things she ordered a bunch of tests and feel like I will get to the bottom of things on the cardiovascular front at OHSU.
I have severe cpstd where it’s impacted how I can show up in earning money and alot of aspects of my life. I have severe pulmonary stenosis; I was wondering if anyone’s done any ceremonial with plants like hape or cacao?