Post takedown - fed up
I had my take down just over 3 weeks ago, since then I’ve been readmitted twice for an obstruction. They said the join of the ileostomy was swollen and not letting stuff through so was eating nothing for a week waiting for it to pass, then they tried me on pureed food which passed alright, then yesterday out of nowhere I went to the bathroom 30 times. It felt like it all cleared out
Then they started me on some soft food (soft mince with mash and gravy) and since then I’ve had barely any output and I’ve got bloated again with the clenching / tightness pain
I’m so fed up man, it’s like one extreme to the other. I don’t know what to trust in my body now and what’s to be expected. I was supposed to be discharged today until this happened, is this relatable?
Slow transit after takedown
I’m sorry for posting frequently here I’m just struggling at the moment and looking for advice
I’m almost two weeks post takedown and I only just started eating, I’m having real slow transit time though I mean I eat today and it comes tomorrow in little amounts. The opposite to what I hear other peoples experience is like here. Is this uncommon or is it something that will switch when the bowel starts working properly again?
Is there anything I can do to help this, I’m walking as much as I can and I’m eating small amounts frequently
Post takedown cramps
Had my takedown a couple of weeks ago, still in hospital since I had a slow ileus and an obstruction of some kind with lots of distention
That has mostly passed now and I have started to eat yesterday, all night had cramps though. They are letting me home today, I’m wondering if this is just part of the process? Like intermittent cramps and pains during the night or following eating
Narrowing of join post takedown
The doctors think the join where they put together the ileostomy again is either swollen or tight, which has led to my bowel become distended and unable to eat. I’m in an enormous amount of discomfort and they aren’t sure what to do except wait and see, this sucks
Has anyone had this before?
Bit of an update - takedown complications
I had my takedown 11 days ago and things were going well, aside from an ileus post op. I was discharged and started eating again, until nothing would pass and my abdomen started swelling out
I went to hospital and they did an x ray and a ct scan and found my bowel was distended and blocked around the area of where the stoma was rejoined together
Now I’m back on an ng tube, with a very swollen and painful stomach not knowing what’s going to happen next, to be honest I’m pretty scared. They haven’t told me much except that it could end up needing another operation, they say it’s either swelling from the join stopping things going through or a kink
I have now passed stuff from the pouch so it’s not completely blocked but it doesn’t seem to be helping
Has anyone had anything similar happen? If so what followed for you?
8 days post op output
(Graphic) I posted here recently about not being able to pass much following my takedown, I’m 2 days out of hospital and I’ve been increasing my intake to where yesterday I ate two small amounts of pasta with chicken, some cornflakes. Since then this is all I’ve been able to pass and now my stomach feels a bit swollen and is a aching, I have had a few moments feeling a bit sick too
I contacted my hospital and they said to stop eating today but I just don’t know what’s going on, I mean before I left hospital I was passing every half an hour or so, then things slowed down about but now it’s almost impossible to pass. I don’t even feel anything down there, I just sit for like 15 minutes something like this comes through
Is this typical? What should I do here, I mean I would go to the hospital but I’m still passing this and with gas and I haven’t actually been sick
Takedown last week, little output
I had my takedown just over a week ago, I came out of hospital yesterday. I’m eating very small amounts at the moment but I’m not passing much anyway, I guess it makes sense because I’m not eating much but it feels strange since I’m so used to emptying the ileostomy frequently
In the first while after the op my bowels were super erratic and I was going to the bathroom every 20 minutes passing like bile, I wasn’t eating though. Since then things have slowed down a lot
Is this to be expected until I start eating a lot more? Cos I’ve read here a lot about how people are going 20+ after surgery and that being how things are for weeks
As I said I am passing stuff it’s just very little, I mean I’ve been once today in the morning and it’s over half way into the day
Post takedown help
I had my takedown surgery on Thursday so 4 days ago, the first two days felt fine but had no output. Then I started feeling sick and was vomiting a lot for 2 days (ileus). They put an ng tube in and this helped
Then the output shifted from there to my back passage, now I’m going to pass green/brown bile from there maybe every 20-30 minutes, very frequent
My surgeon said this is to be expected, I have horrible stomach cramps too. Some very intense just before I need to pass
Still not eating or drinking except sips
How much of this sounds familiar and do you think this resolves soon? I’m just feeling a bit worried because this echoes how I was feeling right before I had my first surgery, many bathroom trips and feeling ill with stomach pain