I’m about 150lbs and try to get around 35-40g of fiber per day. Some steamed veggies, peeled apples and pears, but I usually have 2 or 3 servings of psyllium husk with 8oz water per day. I’ll skip if I’ve had other fiber or feel bloated. Benefiber gave me the worst gas!
What’s your fiber intake? Do you use psyllium husk?
Currently mostly working from home most days and will have to go in full time.
The times I do have to go in now, I bring my own toilet paper and occasionally use my portal bidet if I get a chance which I often don't
My concern is that the more I go without using a bidet it gets itchy.
Does anyone have a good system at work?
Hey all, Ive been feeling pretty crappy for about a week now and im having a hard time being able to tell what the cause is. For a while, I thought it was pre menstrual symptoms, because my period is due and I tend to get pretty sick during my period, but my period still hasnt started so now im not sure.
As of right now, I have; urgency, bloating, inability to hold stool, really liquidy stool, grainy/dark stool, cramping, nausea, bubbly gut, and it always feels like my pouch is full.
Anyone might have any ideas as to what this might be before I reach out to my doctor? (I plan to reach out if this doesnt subside soon)
hello all,
I am a 19 yo female and was diagnosed with FAP last year. following my diagnosis I was referred to a surgeon who said he could do it in one-step, however I backed out last minute and did not go through with the surgery. for some context I was going into my freshman year of college and did not want to take any risks as i would be out of state. i wanted to get my surgery done this year but my previous surgeon said he would no longer be able to perform my surgery and referred me to another surgeon. Today, I had a consultation with the new surgeon who said I have to do it in 2 steps. I understand the risks associated with the one-step but does anyone know any surgeons in the Atlanta area who would be willing to do so? Thank you.
I swear it gives me the shits
I had my takedown on Monday and with the old stoma site being left open this hole in my stomach is proving extremely painful
Especially with any trapped gas building up and no way to relieve it
I’m cleaning it once daily and have been told to left it exposed to heal
Any tips 🫠
Hi everyone,
I’ve had ulcerative colitis for nearly a decade and now live with a J-pouch after surgery. Over the years, I’ve gone through a lot of ups and downs—medications, flares, surgery decisions, recovery, and everything that comes with life after UC.
I’m considering starting a podcast focused on IBD and J-pouch life, but I want to make sure it would actually be useful to the community before putting energy into it.
If you think something like this would be helpful, I’d really appreciate your input:
What topics would you actually want to hear about?
Would you prefer patient stories, medical expert interviews, or a mix?
Are there gaps in information you feel like no one really talks about?
Would post-surgery life (like J-pouch adjustment, diet, bathroom frequency, mental health, etc.) be useful to cover?
Or is there already enough content out there?
My goal wouldn’t be to give medical advice, but more to share real experiences, practical tips, and conversations that make the journey feel less isolating.
Appreciate any thoughts—good, bad, or honest feedback.
I had my takedown on Monday
I’m fortunate to only be going 7-8 times a day currently, with no leaks at night.
My current biggest issue is comfort/ cramps and the passing of gas. It seems I need to sit on the toilet for almost an hour to pass enough gas to feel comfortable. Any tips for this ??
I am 22f and had my colon removed in october 2025 due to UC. I originally planned to stick with the ileostomy because I've heard so many negative things about life with j-pouch and honestly didn't mind the thought of having a bag.
Turns out my body hates having an ostomy and I've had severe issues with adhesions / stenosis after surgery. I needed two emergency revisions after small bowel obstructions so far and am again struggling with symptoms of adhesions. Now the doctors told me that my options are A) learn to live with my chronic pain and dietary restrictions or B) go the j-pouch route. My quality of life is so low right now that I'm really starting to consider j-pouch, although I love my bag and the freedom it gave me in the few weeks where I felt fine.
The thing is, as I said, I'm terrified of j-pouch surgery. I'm worried about things being "too similar to UC". I'm worried about fertility issues. I'm worried about other adhesion-related complications. I'm worried about incontinence. I want to live an active life again, full of sports and hiking and outdoor adventures and I'm scared that j-pouch might prevent me from having this life. Also, it would have to be a super "spontaneous" surgery and things would have to function well rather quickly since I'm going to move to Sweden in august for my master's degree.
There are just so many negative j-pouch stories out there. Can some of you sincerely tell me that things might be okay?
Hi all - officially set the date for my surgery today for the 29th. I am 24F and just feeling a lot of emotions at the moment. Any encouraging stories from this wonderful community would be greatly appreciated.
I am having this procedure done due to my colon not functioning. I’ve already had a partial resection done in January.