u/Adventurous-Swim8917

▲ 4 r/CIRS

Breathing problems???

Anyone else have a lot of breathing problems from Cirs? I’ve heard lots of long covid patients have it and my spike protein levels are at 1411 but from my understanding Cirs can cause the exact same symptoms as long covid because both are dysautonomia and inflammation… thoughts???

reddit.com
▲ 1 r/CIRS

GENIE

Ik Genie test can show if you have lymes disease but I was wondering can it give you a clue if you have babesia? Wondering cause I’m suspicious I have it even tho babesia tests come up negative

reddit.com
u/Adventurous-Swim8917 — 12 days ago
▲ 2 r/u_Adventurous-Swim8917+1 crossposts

GENIE test

Ik the Geneie test can show a indicator you have Lyme disease but what about babesia? Can it give your doctor an indirect clue you may have babesia if all other tests show negative but you suspect you may have it?

reddit.com
u/Adventurous-Swim8917 — 12 days ago
▲ 1 r/CIRS

MCAs and csm

What did y’all ultra sensitive people do in order to tolerate full dose csm and welchol? Like if you could not tolerate it at first what tips/tricks did you do and do you have for me to tolerate it well? Any advice would be greatly appreciated!

reddit.com
u/Adventurous-Swim8917 — 13 days ago
▲ 3 r/u_Adventurous-Swim8917+1 crossposts

Tolerating csm and welchol

How did y’all tolerate csm and Welchol for those who were super super sensitive because of MCAs? I can’t even do Welchol water and after I tried CSM and Welchol I had to stop because my MCAs flared like never before and I’m stuck four weeks later still in a flare that’s never ending

reddit.com
u/Adventurous-Swim8917 — 19 days ago
▲ 9 r/CIRS

Can Cirs cause crazy neurological symptoms you can’t explain to anyone?

Does anyone know if cirs can cause crazy neurological symptoms you can’t explain to anyone and it feels like death? I’ve had this question for a while cause I myself have bad neurological symptoms I can’t put into words to my cirs doc

reddit.com
u/Adventurous-Swim8917 — 20 days ago
▲ 6 r/CIRS

Frick cirs

Hey guys I’m at my lowest I’ve been ever rn…my young life has been taken from me I’m only 18! I’m too sensitive to start any csm or Welchol, my home has a good Ermi score and endotoxins are all taker care of and for the past 5 weeks after csm I’ve genuinely been dying of MCAs and I’m reacting to foods now when I did not as much before! What the hardest part is it’s getting harder and harder to breathe like I can’t inhale or exhale properly and it feels like I’m knocking on deaths door! I’m also experiencing a host of neurological symptoms that are debilitating such as weird sensation of head pressure when I breath in and it blocks me from being able to inhale so I have to lay down to breath and a thing were I can’t feel the sensation of airflow in nose and mouth and limbs feel empty and disconnected from my body but not derealization… Ik I should not go looking for validation from others but I genuinely feel to far gone and I’m only 18 I’ve had this for a year and a half…. Am I just too far gone? Had anyone experienced extreme breathing difficulties? The breathing problems are my main symptom that’s debilitating! Is there hope? I love and trust God but it’s hard at times yk! I genuinely feel abandoned rn by God and feel so alone that I’m so young and all my friends are normal!

reddit.com
u/Adventurous-Swim8917 — 26 days ago
▲ 2 r/CIRS

Cirs mcas binder sensitivities help!

What’s everyone doing in order to tolerate csm/welchol… every time I try it I flare up MCAs and can’t seem to tolerate it even at tiny dose! I’m on kpv and ketotofin and still doses not help! Am I doing something wrong? I’d think it could be my gut dysbiosis and am gonna trial low dose VIP peptide! Thoughts? How were you able to tolerate binders with mcas?

reddit.com
u/Adventurous-Swim8917 — 1 month ago
▲ 2 r/CIRS

Head pressure and no sensation of airflow in nose and mouth

Does Anyone get the feeling of when they sit up straight too long or stand too long it feels like the sensation of airflow just leaves and you can no longer sense airflow feeling going in and out of your mouth and nose and then is like every time you breath in there’s weird heavy pressure inside your head that physically blocked you from breathing and being able to inhale so you have to lay down to breath? Like every time you breath in the pressure inside your head blocks breathing from happening?

reddit.com
u/Adventurous-Swim8917 — 1 month ago