For those of you who have done the Genie test, what freezer type did you use to freeze the tubes before transport? Did anyone use their standard at home freezer before sending them out? My phlebotomist doesn’t have a freezer so that is what I would be using.
I'm currently buying from Integrative peptides for 110$ per 60 pills. Are there any alternative sellers to buy it for cheaper?
If so, what did you do? I cannot sleep and it’s miserable.
Can anyone here break down for me how their symptoms were with CIRS? Like does it fluctuate? Do you feel regular for some weeks and then out of no where start getting hit with the symptoms? If it does fluctuate and come in waves how long do symptoms last usually for you? Is there a pattern for how long they last, how long you feel normal, and when symptoms come back?
I’m 17 and trying to get the basic blood test from MoldCo, but it looks like it’s only available to people 18 and older. Is there any way I can still get this test?
I cross contaminated my new space recently. Within a week, I'm reacting to my new phone. I saw this at my old place but it took me 2 years to find out. The USB c port and the speaker of my pixel phone are open and smelling like Mycotoxins. Any time the phone is in my hand or my body, my throat hurts or my skin burns. Slowly it's progressing to my chest and breathing.
How do I clean it?
I tried using a tooth brush. Did not help. I tried 60% isopropyl alcohol wipes slowly through the speaker area. Still reacting.
Gemini says using compressed air is not recommended. Since it will push the debris in.
Please help.
Hi everyone - i'm currently trying to get out of my home that has a high ERMI and find an apartment. I've been focusing on apartments that are 2-5 years old with a low ERMI. However, the supply is low. There are a number of brand new apartments in my price range, but I have read that due to VOC's I should stay away. Does anyone have any information if a brand new apartment can still be good and the VOC's managed? Thanks!
My parents spent a lot of money to remediate but still reacting and actually worse! maybe more cleaning could work anyway my dr just advised to move since I have means and he’s seen many struggle for years trying to cope in their environment
Anyway I have shoemaker safe housing guide but wonder what you found to be most helpful?
I’m using my nose the most since it’s always smelling musty and sour when I’m in unsafe housing
Has anyone used subq vip while actively treating marcons? Successful or not? Or any expierence in subq vip raising msh?
hi! i am quite certain that i am dealing with CIRS and have been for a VERY long time. i started seeing a functional medicine dr lately but the practice doesn’t seem super familiar with CIRS and typical treatments so im wondering if anyone has any recommendations for the Boston area. i would really love a Dr who is familiar with prescribing Cholestyrsmine, as i think it’s something my body may really need for multiple reasons (though of course i dont want someone to just blindly prescribe it to me either!).
is it common for people with cirs to feel bad in winter [in cold climates], worse in spring during thaw and rainy weather, better in May when things are drier and in the 70s, and worse again in August when its too hot and humid ? Has anyone seen an improvement in tolerating weather changes since treating mold/cirs?
Hey CIRS community,
I am hoping that some of you could weigh in on if you think my symptoms could be CIRS or not. I have been living in Squamish, BC (think extreeemely wet rainforest) for the last 4 years and a pattern has developed for me: November(when the rain starts): anxiety that amps into an extremely high range December: this turns into a deep depression and then all of my brain symptoms start up:
I saw a naturopath the second winter this was going on and she thought it was likely mold toxicity so we did some treatment for it and I moved and things resolved in the spring - May. I ended up moving into a home that had even worse mold, which I didn’t discover until the early spring but all symptoms were in fulllll swing, at this point I started trying SSRI’s (sertraline) to try to support me. I moved again and my symptoms started to improve in June with the support of naturopathic supplements and itraconazole. I also started escitalopram at the same time so it was hard to tell what was helping what but I still believed all of this was mold related as I have never experienced mental health challenges like this, especially at this duration in the past. At this point I decide to buy a place so that I can have control over my environment and ensure that I am living in a mold free environment. The rain came early fall of 2025 and I went into what felt like a manic episode - wasn’t able to sleep more than 1.5 hrs a night; I was in constant activation and no matter what I did, I could not calm my body down. We got possession of our place beginning of November and my body crashed and I was sleeping full nights again. I thought I was in the clear. Did another round of itraconazole and then after a trip to saltspring and Victoria at the end of January, my symptoms cycle started up again. This time it feels like my symptoms are worse, I feel like a mute and I can barely think a full thought.
I don’t have any of the physical symptoms associated to CIRS (except for a bit of congestion), just the neurological ones and I don’t qualify for the 8/13 symptom groupings.
I met briefly with Mark Volmer and he was fairly confident that I did have CIRS and should get the Genie test. I feel hesitant to go down this path as it is so expensive and I fear being taken advantage of and being convinced of having something I don’t have. Has anyone else had just these symptoms or do you think I am on the wrong path here?
Thanks to everyone who weighs in! I have read so much about others’ CIRS experiences and I have so much compassion for what yall are navigating ❤️
For those who have gotten better, has your personality come back?
I’ve been detoxing for the past 9 months. While most of my symptoms have improved, I’ve still been struggling with emotional flatness, apathy, and anhedonia. I think it gets worse in social situations. I just want my spark back.
Since my CIRS diagnosis, my specialist has only prescribed Itraconozole, EDTA and Silver nasal spray.
I have a confirmed Marcons infection, and still having plenty of gut issues.
I have asked for BEG spray instead as my Marcons is bacterial, but she doesn’t think it will help me.
Additionally, she doesn’t think my persistent gut issues are due to low MSH caused by Marcons and is pretty dismissive of the Shoemaker protocol (claims that it’s out of date and a lot no longer applies)
Pretty disheartened as still unwell. Could BEG be my missing piece of the puzzle, and then VIP?
FWIW for those who remember my last post, I have done a CBCT and confirmed no dental cavitations.
Thanks!
TLDR: Could BEG spray instead of Itraconzole, EDTA, Silver spray help?
Did anyone use this with any success?
Also, what was your dose schedule?
I tried 25mcg as a test and it seemed to make me breath a little better. But i want to take it slow.
I see a lot of people use the nasal spray but dont see the injections talked about much.
Ive used KPV in a peptide mix and people have said it has raised their MSH.
With the KPV i feel like my sinuses are less throbby.
Hello 👋
Has anyone achieved to find a laboratory or doc to make the Blood panel test in Europe?
Thanks in advance!
At the worst, I was unable to hold my head up independently due to the upper trap pain. It was Excruciating, the only way to make it ease up was to lay down. One year or so since beginning treatment the pain eventually went away and stretches helped also. I began a llymph/detox, light and easy program this morning and the pain is back - not nearly as bad. (Another factor is I vacuumed on Thursday, possibly contributed.) My question is - does anybody else have this pain with detoxing? Is this part of the detox process or lymphatic drainage?
I have been living in an NYC apartment building for four years and about 2 years in, there started to be ceiling and water leaks in the bathroom every time it rained. Our landlord at the time would have people come, but they would only ever repatch it and it continued to happen over and over agin. It's gotten to the point where the wall got soaked and now there is a mushroom growing over our window.
For two years I didn't know why I felt bad (fatigue, brain fog, bodily weakness, now joint pain. And I didn't know why these symptoms came and disappeared and then came back again. I got everything checked. It wasn't until this year I thought about maybe mold exposure. I just got my mold blood test back and it says I have low or equivocal abnormal results to 7 out of the 12 molds I was tested for. I did more research last night and found out about CIRS.
The interesting thing is...I left NYC several times last year to visit family in FL. Whenever I visited for just a month, there would be a few days in that month that my symptoms came back (same as when I am in NYC my symptoms never affected me daily only about 1-2 weeks and then go away usually). However, I had to go take care of an ailing family member for 4 months in FL over the summer and didn't feel a symptom at all?
Does this point to this being CIRS? Or could this still be just mold allergy and the exposure to it? Also the issue in the bathroom is still a problem and we are hoping he new landlord gets it solved this week. Since I didn't feel anything in those four months, does this mean the CIRS could go away on its own once the bathroom issue is fixed? Or does it moreso mean that this likely isn't CIRS, its mold allergy instead? Just trying to get some idea because I haven't found a functional doc that accepts my insurance yet. So please don't just say "see a professional." I am on the hunt I just haven't found anyone yet.
Is there anyone I can talk to who is knowledgeale about and has experienced CIRS who lives in NYC? I have a few specific questions that I think only a person who knows about this stuff can answer.
Yesterday I ate a lot of pumpkin and I had the worst type of reaction to it. My body reacted the same way it reacts to mold. Extreme leg cramping, sweating, gastroparesis, brain fog etc. Are pumpkins that susceptible to mold? I thought it would be a safe alternative to potatoes. I never had such intense reactions to any other food before. This might just be a me issue but has anyone else experienced this?