u/Big-Dreams-Gangster

With more and more research coming out that CIRS is just as much bacterial colonization (skin/nares) issue as it is a mold & fungal issue, why is balancing the microbiome not seen as a crucial step for recovery?

The gut-skin axis and gut-nasal axis are proven phenomenon and I think it would do us all good to add in heavy microbiome replenishment support on top of other recommendations.

So much of the shoemaker protocol seems to just straight bomb the microbiome of gut, skin and nose.

If still in exposure is there any point using sprays?

I apologize for a despair post. Just really having a hard time and have almost no one in my life who can relate.

Lyme patient with all the other bullshit thrown in; mold sensitivity, moved so many times.

I’ve been dealing with this for coming up to 3 years. 2023 to beginning of 2026 were manageable but it’s become quite unmanageable in 2026.

I’ve moved 7 times in 3 years. My family have always treated me as the scapegoat and black sheep and my narcissist mother has literally said to me ‘I would rather you not come home and if you do you have to not interrupt my life’.

I’ve been living in the US on a visa for 10 years and I really don’t know how much longer I can keep holding onto my job but feeling like I’m about to die every day. I can’t find a mold free living environment to save my life. But if I lose my job I have to move back home and I don’t really have a safe landing pad.

Because i have no one to walk beside me on this journey in the last few months ive made some poor decisions based on emotions not on rationally improving and now am stuck in the aftermath of those decisions.

I just don’t know what to do anymore. I want to keep fighting to live but I just struggle to see a path forward.

My dr who is shoemaker trained but also borrows from other methodologies says I could try a short round of doxy to see if it makes a difference to actinos.

Anyone tried?

I know it’s there is risks with gut dysbiosis etc but I’ve been tackling for years now and doxy does have good skin penetration.

Planning to fly into to JFK terminal 5 with 4 suitcases and know I’ll need to take airtrain to get to uber pickup. Can you take luggage carts from baggage claim onto the airtrain?

Will need to rethink if not.

Thanks!

Been living near Saturn and Chiron line for almost 3 years now. I’ve been in living hell. Health issue after health issue, can’t make any friends, have had no fun whatsoever.

I have the opportunity to leave and go back to an area with no lines where I was before which wasn’t perfect but I had friends and fun. For some reason I can’t pull the trigger. I have no idea why! I have nothing on paper here that’s good but my soul can’t let go for some reason.

Has anyone had a similar experience and could offer some words of encouragement?

Anyone got experience with breakfast burrito spots that can do a dairy free option?

Severe dairy intolerance but love a breakfast burrito. Trouble is so many places put cream/butter in eggs even if request to remove cheese.

Places I’ve found thus far are Dialog (shoutout to how accommodating they are) and Erewhon, but beyond that no luck.

Hollywood based, willing to drive.

The Shoemaker squad are going to have a field day with this one.

I believe pushing this narrative that the Shoemaker protocol is the only way to heal is immoral.

The whole basis of mold/wdb illness is that some people can be totally fine in mold and others the complete opposite. I.e. everyone’s bodily make up is different.

To then say that there is only one way to heal, despite the premise of the illness being that different people handle toxins differently is not only illogical but irresponsible.

Cholesterol is a hugely essential molecule for both immune function and brain function. For the first line of treatment to be a medicine that strips your body of an essential chemical is ridiculous.

I’m not saying you can’t heal on Shoemaker, but to push this narrative that it is the only way is both wrong and irresponsible to our sick peers.

It pushes people to think if they can’t get all these labs or a prescription binder they’ll never heal, causing them to lose hope and HOPE is an essential part of healing.

There are multiple ways to heal everyone - just like there are for almost all other ailments.

Also, think of the saying ‘if the shoe fits’ and shoe-maker…..

Started ivermectin recently and I’ve been having a real explosion of symptoms thatre quite unbearable which seem Bart like?

Insomnia, insane anxiety, heart beating like crazy, SI, feeling like I’m possessed.

Anyone else have ivermectin affect Bart?

Been suffering with mold/lyme/cirs hardcore for 3 years now. Really running out of steam to keep going. It all feels so hopeless and unattainable. I’m on my 5th apartment in 2.5 years which now has a problem and symptoms are worse than ever.

I am from the UK originally and have been living in the US for 10 years now on a visa. I am so alone here and burnt out from this experience. I had to finally give in and take short term disability a few months ago but now I only have 3 months to get well enough to work again or my visa gets invalidated and I’ll have to leave the US.

I can’t seem to find another living situation that would be safe and I’ve been looking for 3 months now.

Part of me wants to just give up and go back to the UK because I have friends and family there but I am so petrified because the doctor resource situation there is so much worse than here and not like the mold situation is any better.

It feels like the walls are closing in on me and there’s just no point even trying anymore. I don’t want to die but I also don’t know how to keep doing this everyday