r/Lyme

Possibly? I thought it was just bad anxiety. I’m on buspirone so I sweat a lot. I get really fatigued and legs walking. In the e heat I get super dizzy drunk confused feeling. I literally get so anxious my knees buckle. I can barely walk

So I have recently been diagnosed with Lyme disease, anaplasma, mold toxicity, EBV, parvovirus, and parasites and heavy metals.

I got started with an LOMD and her first process is putting me on high doses of B vitamins to open up pathways for my body to release toxins.

These past few days I’ve been feeling like my head is 50 pounds, a little bit dizzy, and my face feels fuzzy. Does anybody have these symptoms? Is this a Herx reaction?

I'm asking on behalf of my friend. They recently went to the ER (for a workplace injury completely unrelated to lyme) and the doctor noticed a bullseye-like rash on their arm. My friend hadn't noticed any other symptoms of lyme (though after they told me about all this, I pointed out that they had been drowsy all week, though they'd been attributing that just to stress). They're still waiting on test results to prove that it's lyme, but the doctor decided to prescribe antibiotics in the meantime, just in case. That makes sense, but the prescription itself is strange: *10 weeks* of doxycycline. That's not only more than the 10-14 days recommended by the CDC, but it's double the 4-6 weeks recommended by ILADS. Does anyone here know why that timeframe was chosen?

I’m convinced I have Bartonella due to my feet pain. Currently I’m on Ciften for Lyme which does not treat bartonella. I had intracranial pressure from doxycycline, so going back on it wouldn’t be ideal. Unless I try to suffer through the insane head pressure. Will doxycycline often eradicate bartonella on its own if it’s early? (2 weeks).

At this time I’m unable to get an LLMD. There’s months waiting list even for clinics in other countries.

I’m asking for help here as I’m unsure what to do and I know time is of the essence. I won’t be able to trial Rifampin+Azithromycin until I get an LLMD, which could be months.

What would be the best to do here? Which herbs/supplements could I buy specifically to halt Bartonella?

If I go back on doxycycline, would it be enough to kill bartonella alone?

Two months ago, I woke up and my arms felt very heavy. My left hand wasn’t working right, it’s still really weak, every time I reach into a bag of chips and try to release the chips, It does not release easily. The arm weakness and the weakness in my left hand eventually moved to my whole body, making it feel super weak and hard to do physical activity. Literally feels like they’re sandbags attached to my body. I’m having muscle fasciculations, and I have atrophy in one arm and one leg. Obviously, I think the worst. Tell myself I have ALS. Now, some of the weakness in my limbs went away, but it’s still there, and it moved to my bladder being full quicker than usual and my voice sounding kind of hoarse and dull and just a little bit deep. My white blood count n neutrophils is on higher side and I have night sweats as well as a swollen lymph node in groin. I also have the horizontal ridges in my nails, which usually indicate major illness. I go for my EMG in about two weeks and I see an LLMD in about a month. Does this sound like ALS to any of you guys? Or did any of you guys have these with Lyme? Also, what are some ways I can detox in the meantime. Thank you

Hi can anyone share which Dr helped you the most with moving the needle for Babesia? I think it’s the reason why im stalled in my CIRS treatment. I’m 73 and I’m so sick. I have no life as I once knew and can’t even travel to see my family. I don’t have many years ahead and I’d do almost anything to have even a little bit of time to feel well again. I’ve been on 25 drops Cryptolepis 2x day + Japanese knotweed 2x day - both about 6 months and no relief. Please is there anyone who can give me some hope? 🙏🙏🙏

I’m hoping to hear from people that have experience with this, because I am really struggling. My appearance has been a big part of my identity, and trying to enjoy anything right now is really tough. I don’t know if I can handle this not getting better.

From what the doctors tell me, I have a mildish case and they say it will get better. I was on antibiotics in the hospital 5 days after the start of my Lyme symptoms and 3 days before the palsy set in. It is assumed that I had Lyme meningitis. I’m now on Iv antibiotics for 3 weeks and steroids (I know this is debated). The doctors and physical therapist are saying my case is mild. At rest you can’t tell anything is wrong. I can still lift my eye brows and scrunch them (although slightly weak on the left). I can fully close my left eye with maximal effort, but it doesn’t blink fully, and sometimes it just flickers. For me losing my smile is the most devastating part. I can smile mouth closed, but with teeth my smile is where it’s obvious. I can still smile, but very slight on the one side. Some weird other symptoms I had were on pupil small and one big, which has gone away, and sweating only on my normal side. My blink rate on my normal side has also decreased. I believe this is incomplete paralysis.

In your experience does incomplete Lyme paralysis recover completely? The distress this has caused me on top of being so unwell from Lyme is insane. Every time I get pain in my ear I think it’s getting worse. I started physical therapy two days after the palsy set in, cold laser therapy, and acupuncture. I had an appointment with a facial surgeon/palsy expert in NYC, but cancelled for now. Think I’m getting ahead of myself, but I’ll do whatever it takes to get my face back. It’s funny, I never saw the beauty that others saw until now. I used to pick my face apart and now I would kill to have it back. Nothing will make me happier than to just look like me again.

I just finished high potency homeopathy nosodes for both borrelia and babesia and now I feel as though these symptoms shouldn’t be here yet again! It’s an awful feeling!

All,

My husband is heading to Florida in the next week to heal from a 38 year case of Lyme disease with a side of mold toxicity. His joints hurt so bad, and the PNW is not the place to reduce the inflammation, especially during the cold months, while he begins the journey of detox and starting antimicrobials.

Can you all recommend any inspiring books/memoirs that might help him stay focused on his journey while he’s away from me and our family? I don’t want anything difficult to read; the cognitive issues he’s experiencing makes it difficult to read because his comprehension is a struggle. That, mixed with the words on the page “melting together” make it hard for him to read very much at once. He hasn’t read anything in over a year as a result. I’m mainly interested in the message - don’t lose hope!

I have the 3 Bs though I think Lyme and babesia are already well treated. I started houttuynia a few days ago. Already on doxycycline. Started at 2 drops twice daily, titrated up to 3 and am herxing pretty badly so I went back to 1. I’m supposed to get up to 20 drops twice daily. Have people had similar experiences with big reactions to small amounts of this tincture? I’m taking Nutramedix brand.

I’m curious of how many here got treatment very early since bite (days or within a week), but still ended up developing chronic Lyme?

I’ve read some cases on this. Why do you think that is? Because of people’s individual immune system?

Presumably the immune system is the most important to whether you develop chronic Lyme. So for an healthy individual, 2 weeks antibiotics may be enough sometimes, but for others you may need 2 months. I feel like this alone debunks the “10-14” days kills the Lyme bacteria completely as we all have a different immune system. Not to mention the co-infections.

Hello everyone, I got bit a few weeks ago (wasn't sure what it was), the mark wouldn't go away and about 3 weeks ago I got really ill, high temperature, joint and muscle pain and headache and neck pain. I noticed a rash around the bite, it was getting bigger, called the doc and got Doxy for 4 weeks. A few hours after my first pill all my symptoms went away.

It's been two weeks on antibiotics and I've been fine except today noticed my lower legs were feeling painful, muscular pain, not sure if it's related as I also often suffer with mindbody pains (TMS) which are stress related and usually resolve once I realize the source of the stress.

I can get three more weeks of antibiotics when this course is finished but was wondering if it's worth it to add herbs at this stage. I was wondering if the herbs interfere with the antibiotics and if not which ones to take (Buhner protocol or cryptolepsis or teasel.

Would love some advice on mixing herbs with antibiotics.

Thanks!

About 4 weeks ago I developed a tight band sensation and tingling in both feet and ankles. Within a few days it spread to my left hand. My PCP ordered an MRI of my spine, which showed multiple herniated discs, but the spine specialist felt my symptoms didn't fit the MRI findings and recommended testing for Lyme disease and vitamin B12 deficiency. My Lyme testing came back IgM positive (reflex testing) and IgG negative, and I was started on doxycycline for 21 days. I'm currently on day 11. Instead of improving, my symptoms have continued to progress. The tingling has now spread to my right hand and seems to be moving farther up my legs. I've also developed aching muscle pain in my thighs and upper buttocks. Despite this, my strength remains normal in all four limbs—I can still walk normally and haven't noticed measurable weakness—but everything feels "off," with persistent tingling and odd sensations. My doctor believes this could be a Jarisch-Herxheimer reaction and advised me to continue the doxycycline. However, I'm worried because the symptoms seem to be expanding rather than improving, and I'm concerned this could be something other than Lyme disease. I have appointments scheduled with both an infectious disease specialist and a neurologist, but the progression is frightening. Has anyone with confirmed Lyme disease experienced symptoms continuing to spread after starting doxycycline? If so, how long did it take before things stabilized or began improving? I'd also appreciate hearing from physicians or anyone with a similar experience while I wait for my specialist appointments.

Je ne savais pas que j’avais la maladie de lyme avant de tomber enceinte et je viens d’être diagnostiquée alors que mon bébé a 8 mois.
J’ai eu des symptômes tout le long de ma grossesse et je n’ai pas pris d’antibiotiques. Je suis à la fois terrifiée et extrêmement en colère contre moi-même de ne pas avoir cherché et envisagé la possibilité d’avoir lyme et donc de ne pas avoir fais le nécessaire (prendre des antibiotiques) est ce que mon bébé est sûr à 100% d’être malade ? Pour l’instant il n’a pas de souci particulier à part des soucis de transit. S’il vous plait partagez avec moi votre expériences à long terme, comment vont vos bébés si vous êtes dans le même cas que moi ? Comment avez vous su qu’il l’avait aussi ?

Anyone here has Lyme and fibro. If yes, can you make the difference between what is Lyme and what s fibro. My doctor thinks my symptoms are due to fibro following the Lyme diagnostic since I was treated with two weeks of antibiotics. It s the flair from fibro acting up she says which I doubt. It doesn’t feel like my fibro. To clarify, I was iagnose with fibro yrs before Lyme last March

I was starting the process to be treated for a chronic infection. I had a vibrant test done which showed a couple IGg antibodies but all in the yellow.. I have had mild symptoms for years and debilitating symptoms for the past few months. I wasn’t feeling totally confident that Lyme was my problem based on the vibrant test, even though my symptoms match perfectly, just because of all the Lyme controversy and the doubt that traditional medicine put it my mind about it.
WELL I pulled a tick off of me two weeks ago and sent it to the lab for testing. the week after I came down with awful body aches for a couple days that where distinct from my previous chronic symptoms. Those acute symptoms passed in 2 days and things went back totally to normal. Lab testing came back from the tick as positive for Lyme and Anaplasmosis. I never had a rash or anything. Just two days of body aches. I started antibiotics for my chronic infection a week after the body aches from the acute infection so we’ll never know for sure how it would have played out if I continued to go untreated. But it was eye opening to see how easily an infection could be missed and go untreated. If I had not pulled a tick off me and sent for testing I would have never known I had a new infection. Would have just thought it was a random bug. It just gives me a little more confidence that Lyme is the cause of my other chronic health problems, because since I live in an endemic area and am a very outdoorsy person, there’s just absolutely no way I haven’t been infected(probably multiple times) in my life..
Oh and also another note on just how endemic Lyme is in the northeast, I am one of 3 members of my household who had an acute infection just in the last 2 months. My daughter had a bullseye(that’s the only reason we knew for her, never found a tick) and my son had a tick on him that I sent for testing and came back positive.. he spiked a fever the week after the bite too… idk… I’m just writing this maybe for anyone who is looking for more validation of how very likely it is that you contracted it and never knew. Because things don’t always present in the “typical” way.