What works for candida die off?

I can only tolerate about five days of nystatin before I start to have die off. I don’t think I can handle continuing antifungals. I’m off nystatin for 3 days and I still feel extremely tired, nausea, dizzy and burning muscles and joint pain. My skin feels itchy

I know I have a candida problem but I have learned to manage living my life having chronic symptoms of candida vs when I treat it everything becomes so exaggerated to the point it’s hard to function.

What’s a gentler way to get rid of candida. I am a mom to a toddler and a teenager so I can’t be in bed with these symptoms. My kids need me.

How long does the die off last? My husbands in the military and I’ll be alone with the kids first week of November.

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u/sunshineofbest — 8 days ago

What does this CT report mean ?

So I went to the ER because I’ve been feeling like hell. I did one round of doxy for a suspected sinus infection after having two back to back viruses. Anyways this is the report from the CT scan

SPHENOID SINUSES: Mild mucosal edema without air-fluid levels at the floor of the sphenoid sinus. NASAL FOSSA: Concha bullosa formation left middle nasal turbinate. S shaped scoliosis of nasal septum.

My symptoms 8 weeks of
Eye pain
Headaches
Neck pain
Fatigue
Dizzy
Post nasal drip
Face pressure
Teeth pain

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u/sunshineofbest — 1 month ago
▲ 5 r/CIRS

Tesla and CIRS

Hey guys.

Can a Tesla cause some issues in cirs patients due to their sensitivity?

I don’t think I’ve had emf sensitivity I don’t notice anything being away from technology vs at home.

But I’m getting. A Tesla because I’ve been having a hard time long distance driving when my brain gets those inflammatory symptoms and I go body drained. So I’ll be using the self drive feature on the days it’s challenging to drive

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u/sunshineofbest — 2 months ago

Need advice how to stop a flare up

  1. please need advice how to get out of a candida flare up
  2. how long does it take to just get back to my shitty candida baseline ?

Hey guys, I fucked up and I did seven days of oral liquid and nystatin without really changing my diet and on one of those days I had a carb heavy day and I eat a sandwich with some pickles, some jalapeños, hummus and potato chips and basically ever since that day I’ve been in like a severe Candida flareup and it’s been like three days already and my energy like down the drains I feel super dizzy. My tongue is extremely white. Basically, I got off the nystatin because I realized that I need to fully change my diet before I start taking this stuff and it has put me in a really bad flareup worse than my normal baseline without the medications anyways I need help. How do how do I get out of this exhaustion flare up and body pains/ dizzy. I’m producing tons of mucus drip, energy like ten percent. Usually I’m at a shitty 50 percent on a baseline. This is hell. Help!

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u/sunshineofbest — 2 months ago
▲ 37 r/MECFSsupport+1 crossposts

So proud of myself for walking out 3 minutes into my doctor appointment! I feel like I stood up on behalf of all of us with CFS

Hey guys, so my husband’s in the military and I have rotating PCP and today I was going in to request a cardiology referral because I suspect I have POTS as a result of CFS. So the doctor walks in and he asks about my symptoms and how long they’ve been going on and I told him that this started as a result of Covid and I was diagnosed with Long Covid and MECFS and he said I don’t even know what Long Covid is and then I proceeded to explain that my heart rate goes very low into Brady cardio and tachycardia and it’s giving me symptoms. I feel like I’m gonna faint and when it happens, it makes me want to vomit and I don’t even have to explain to you guys these dysautonomia symptoms. It just feels really fucked on top of the CFS. Long story short I walked out. I told him I’m sorry you’re not the doctor for me and then I walked out of there and I went and complained to the front desk and they said yeah that Doctor is bad. He gets a lot of complaints anyways I wrote him a note stating how he made me feel and then I submitted to the front desk to give it to him, and then I reported him.
This is a different world. It’s not a civilian world so nothing will happen to this doctor.
In the military community, it’s normalized for people to deal with shitty doctors. Anyways I am lucky that I have mild MECFS and I can make these kinds of complaints on behalf of all of us. I am sending love and hugs to everyone.

u/Clearblueskymind — 2 months ago

When did you know it was time to go no contact with your parents?

Post your stories !

I’m so fucking close blocking my mother and the only I haven’t is because she helps me with my toddler when I’m having an autoimmune flare up I have something called (ME/CFS and fibromyalgia) and when my husband leaves on military trips she definitely helps out a lot. I do believe she loves her grandkids but me and her have never gotten along

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u/sunshineofbest — 3 months ago
▲ 4 r/mecfs

Those of you who are very severe what is your resting heart rate? Do you guys have bradycardia, pots or a mix of both?

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u/sunshineofbest — 3 months ago

Energy crashes following a low Heart rate ??

Hey,

I have a weird type of dysautonomia where at a baseline my hearts always high but when my energy crashes due to pushing to much over days or weeks and I go into these low energy low heart rate crashes that make me feel even more awful and they can last a few days each time sometimes up to a month. I wonder if I have a wrong diagnosis or does this happen to other people with pots ???

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u/sunshineofbest — 3 months ago

Does anyone else have a low heart rate when they crash ?

Hey guys I usually function and feel better when my hearts high but when my energy crashes I go into these Brady episodes my hearts like 55 laying down 60 sitting 68-77 standing and I feel drained whereas when I’m functioning at a baseline my hearts like 66 at rest , 77 sitting , 86 -130 standing /doing stuff like washing dishes

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u/sunshineofbest — 3 months ago

I’ve been diagnosed with both AFS, CFS & CIRS

So Dr lam Diagnosed me with AFS
A Rheumatologist diagnosed me with CFS
and a ND diagnosed me with CIRS due to mold exposure a few years ago.

Obviously all of the symptoms overlap. So at this point I don’t know what the hell I have blood cortisol is low ish , CIRS labs are wonky , no markers for cfs just I get tired and crash after I go go which is what happens with AFS …. So how do I know what the hell I have ?

Some weeks I’m high and on top and some weeks I’m very low and stay in bed a lot…

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u/sunshineofbest — 3 months ago
▲ 2 r/CIRS

Do yall experience a burning headache and upper back burning ?

Hey so when I’m exposed to mold I think I experience dysautonomia and nervous system issues plus a burning headache and burning skin sensations… I feel this either a few hours after the exposure or the next morning. Anyone else ?

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u/sunshineofbest — 3 months ago
▲ 6 r/CIRS

I switched to taking my binder at night

Dudes … I switched from 5am dose to 10pm dose and that’s the best sleep I’ve had in years …. I didn’t wake up one time. But when I take in the morning about 4 hours later i feel detoxy.

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u/sunshineofbest — 3 months ago

Anyone else with AF get these passing out waves ?

Not looking for medical advice just similar experiences:

During a AF crash does anyone else feel like they’ll pass out? I know I have this according to Dr lam…. I already ruled out everything under the sun seeing six different specialists over the last two years and they say my blood work is “perfect.”

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u/sunshineofbest — 3 months ago
▲ 13 r/mecfs+1 crossposts

Worsened symptoms with weight loss

Hi I’ve recently lost 12 lbs and my energy levels have dropped so much I think I was a very mild case of long covid CFS version … I could be on my feet all day most day with little pacing … anyways ever since two months 7 weeks ago my baseline dropped my energy is much lower and my resting heart rate has dropped (it’s normal now vs pots ) but I feel like hell now … I wonder if the weight loss is taking away my energy ? For reference I was eating like a fatass lol I had no restrictions other than being gluten free … I was eating close to 2800 calories per day now I’m down to 1600

My heart is low the last six weeks and I feel like hell now lol

u/sunshineofbest — 3 months ago
▲ 3 r/CIRS

Did weight loss increased your CIRS symptoms?

Hey I’ve recently lost 12 lbs the last few weeks and I’ve noticed ever since my pots resolved but now that my heart is normal I feel like hell because I’m used to functioning with a high heart all the time .. I assume for me pots was driven by insulin resistance which has improved a lot over the last few weeks but j feel like hell and my energy is lower than it was before.

Has this happened to anyone with CIRS ???

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u/sunshineofbest — 3 months ago

Question for the ladies with secondary insufficiency

Ladies ,

At the time you got diagnosed with adrenal insufficiency, did your Pregnenolone/progesterone test very deficient also?

What about your DHEA ?

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u/sunshineofbest — 4 months ago

Pass out feeling

Hey is it normal during a crash or stage 3-4 to feel like you pass out constantly?

I legit feel like death and like I’ll pass out when I walk. I’m extremely exhausted with low back pain. Of course im waiting for a saliva cortisol test but all other six drs i have seen just say its long covid and no more answers.

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u/sunshineofbest — 4 months ago
▲ 3 r/MTHFR

What happens when someone who has methylation issues takes a cyanocobamalin b12 shot ?

Hey guys, I am feeling extremely sick and even more so exhausted then before I got the B12 shot 1000 MCG‘s. Basically I am diagnosed with Long Covid fatigue and after going through a little setback of fatigue, I got so desperate for energy that I went to my PCP and she gave me a B12 shot to see if it improved my energy but instead and made me feel so much worse so sick I feel so much nausea and relentless exhaustion and it’s been like four days since I took the B12 shot, can this be the result of that or is it most likely my Long Covid just being weird?

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u/sunshineofbest — 4 months ago