r/cfsme

What DXM are you taking, dosage, and has it worked?
▲ 2 r/cfsme+1 crossposts

What DXM are you taking, dosage, and has it worked?

Please share name, dose and link? What has it done for you. I bought a bottle several months ago RoboTablets 30mgs and tried it, link below. I take one a night a few times but i never noticed a difference. Or paid attention. I wasn’t confident having more than one. Im on low dose naltrexone 4.4mgs at night and take methylphenidate/ritalin for my adhd during the day to work. I have very moderate/severe ME for 15 years now. Can dxm help pem??

https://www.discounthealthproducts.com/product/robotablets-cough-suppressant-dextromethorphan-30mg-100-doses-100-tablets-5mm-diameter-tablets-for-cough-relief/?srsltid=AfmBOooxpk8qK90MqmLG\_IT\_y3\_G3DJ4fg-KqgFXHOJp6lovxCOn97li

u/freya6748 — 1 day ago
▲ 9 r/cfsme+1 crossposts

My mum has FND, ME and Fribromalgyia

hey i’m a 17 years old and really struggling to help my mum with her health condition! she has three conditions that all affect her body and brain. the miswiring in her brain causes her to have over 200 symptoms for all three conditions and was wondering if anyone knows any support she could get as we are struggling to find some atm. the NHS emergency surgery and GP practice are not being helpful and she is being judged for her seizures while in A&E constantly being laughed at or being told she cant get any help such as MRI scans or to see a specialist! if anyone knows what i could do to help her or anyone who could help her please let me know.
Thank you!

reddit.com
u/Any_Dragonfly_9979 — 4 days ago
▲ 10 r/cfsme+1 crossposts

The One-Breath Hum Experiment I’m experimenting with something ridiculously simple and wondered whether anyone else with ME/CFS would like to try it with me. 🙂

Three times a day for the next seven days, whenever it feels comfortable, pause for just one breath.

Take an ordinary, comfortable breath in. Then, as you breathe out, gently hum “mmmmmm” for as long as the exhale naturally remains comfortable.

That’s it.

Don’t force a deep breath, don’t try to make the exhale especially long, and don’t try to relax.

When the hum ends, just notice what happens for a few seconds.

I’m curious whether doing something this simple produces any noticeable benefit.

Maybe breathing changes. Maybe heartbeat, muscle tension, mental activity, or the general sense of being settled changes.

This isn’t meant as a treatment or exercise program. It’s just a tiny shared experiment in noticing.

One gentle humming breath.
Three times a day.
Seven days.

Then perhaps we can compare notes:

What happened?

Even “absolutely nothing” is useful information.

One of the wonderful things about having a group like this is that we don’t always have to figure everything out alone. Here’s one very simple thing we can experiment with together, each paying attention to our own experience, and then compare notes afterward.

Maybe one person’s observation will help another person notice something they hadn’t noticed before.

🌿

Let’s just see what we can learn from one another. 🙂

u/Clearblueskymind — 11 days ago