How to navigate CIRS as a complex patient (person) with MCAS, POTS, CFS and HASHIS
I have been sick for 3 years since have mold in my bathroom following cancer and chemotherapy, which I had assumed was what had made it so hard for my body to deal. Now, three years on and I have been diagnosed with MCAS, CFS and POTS. I have recently been thinking about CIRS and wondering if that is not where the upsteam issue lies (drs of course only want to treat symptoms).
I have ordered a HERTSMI-2 test and will make sure that my condo unit is now ok, or I'll move out. Likely stay with my bro till I figure this mess out. I have been wanting to sell my condo for awhile now as I have been too sick to manage it. I work half time and the other half is spent on my sofa.
I wonder if anyone might have suggestions re going it alone with the treatment or using an extremely expensive Shoemaker specialist. I'm currently loading up with Omega-3s and then would like to start CSM at a tiny dose. There is what sounds like an excellent clinic - Fatigue to Flourish - in Alberta, a few hours from where I live and 30 min from where my brother lives. But is would cost me about 20 k over a year, which would be difficult.
I'm just wondering really if any complex illness people out there have gotten better - not necessarily fully - going it more or less alone with the Shoemaker. And what test have you gotten to confirm that it is CIRS?
Thank you