u/Due_Chapter3027

Just curious as any change I make with supplements, meds, etc are brutal. I’m super sensitive. Lowered my lexapro 2.5 mg 10 days ago and am now having dizziness, vertigo, zoning out, flu like malaise, cold/warm, nausea, bowel rumbling, panic, restlessness, NORMAL to LOW temp!!! It’s such a low dose switching from 15 to 12.5 but can it cause this? It’s so weird having mcas I don’t know what is normal or not… this is hell already dealing with cirs and black mold illness.

Hey all I have mcas as well and lowered my lexapro from 15 to 12.5 and have been ok until a week in. Have been on SSRI’s for 14 years. Super reactive to med changes as it is with mcas… Worst bowel cramping and backed up feeling and making me feel flu like when I get it like normal and I have mold illness flu like flares often anyway. This is horrible and full blown panic attack and bowel rumbling with nausea and gerd plus dizziness. Anyone else experience this a week into lowering? When did your withdrawal symptoms start?

Hey all, wondering if SSRI’s are even helpful to me anymore as I’m just getting side effects and still getting anxiety and panic although I’m dealing with chronic health issues. I started SSRI’s before puberty and through my whole development… Was on Prozac for 13 years now Lexapro for one. Tired of the GI Issues, Emotional blunting, zero libido, etc. very afraid of tapering off as I’m super sensitive and wonder if it will leave lasting side effects or symptoms as well as brain damage. Or even what I will be like without them or go crazy? Has anyone here stopped after being on them for over 10 years? Experiences? Better without them? I’m tapering from 15mg to 12.5mg right now and the GI upset is rough. Going to then go down to 10 after 2-4 weeks then 5 and then 2.5…

Just curious what you guys think or would be better alternatives for regular use. Looking at Sta-Green 29-0-5 +2% iron. Kinda like the bionite in the YM products though…

Going through the wringer yet again as I’m on too much lexapro and just came out of a massive week long CIRS/MCAS flu like flare. Haven’t had a bowel movement in 2 days which is long for me and having lowered my lexapro I’m feeling it… to break the constipation cycle woke up today with Bile Acid Diarrhea now I can’t go… overflow? My gallbladder has been acting up lately as it’s overactive with 80% EF. Any correlation between bile/bowel issues and mcas/nervous system? I’m SUPER sensitive to change so my poor bowel and stomach are so confused. On lexapro, guanfacine, used hydroxyzine occasionally, and .25 mg lorazepam once in the past 2 days. This sucks. Just a rant I’m sorry.

Just trying to see for those of you that are on SSRI’s if they calm your mast cells or seem to aggravate them. On Lexapro 15mg (which is too much for me) makes my GI issues worse, Silent reflux is worse, and wondering what else it’s doing. Trying to taper down from 15 to 12.5 then back to 10. I’m on day 7 of a horrific massive flare and went to the ER last night for an overactive gallbladder attack with bile acid diarrhea. Very flu like still with normal temp and vitals daily.

Hi all, I’m 26 M and have been on SSRI’s since 12 years old. Currently dealing with horrific Mold illness and MCAS for 2 years flu like constantly. I was on Prozac for 13 years and made the switch to Lexapro because it didn’t seem like it was working. Went from 30mg Prozac to 10mg Lexapro clean switch. Anxiety was no better so I went up to 15mg. And man I have emotional blunting, no libido, daily GI upset, nausea, headaches, worse Silent Reflux (LPR), panic attacks, anxiety still… I’m pretty certain I’m on too much or it’s the wrong medication. Only problem is tapering and adding/switching meds is absolute hell because of my MCAS and makes me flu like. So on top of my horrible immune flares from mold illness and mcas I have side effects from Lexapro. My Dr. said to go from 15 to 10 but I’m going to go slower at 15 to 12.5 then to 10. Anyone else experience these side effects after being on it for awhile? My body is so inflamed and messed up I don’t know what is what. So much GI upset and constipation as I’ve never really had that plus an overactive gallbladder. Wondering if anyone noticed relief of weird symptoms by lowering. Thank you.

Hey guys on day 2 of what I think is my gallbladder attacks. Temp is normal, burning in stomach, only one bout of diarrhea when I wake up then backed up the rest of the day. I get right under my right rib pinching, Bile Acid diarrhea, EXTREME nausea, sweats, loss of appetite, burping, silent reflux, lump in throat… Trying to find a Dr to take it out because they say 80% EF is “normal”. ER said CT scan and bloodwork were good.

Hey guys I have MCAS and Mold Illness (CIRS) and have been extremely flu like with panic attacks for 5 days… finally needed to try something and Dr. prescribed me Lorazepam .5 mg for my panic but I only took .25mg. And WOW. Turned my flare from a 10 to a 3. I was expecting it to only help my panic but then my symptoms lessened and lessened. Now I’m not a proponent of benzos but at a very low dose during a horrific “I want to end it all” flare with immense panic it saved me. No feeling high just calm. I only want to use this when I absolutely have to but read something saying it can calm mast cells as well as the central nervous system. Anyone else experience this with Ativan or benzos?

Hi all! Had back to back massive panic attacks in 2 days from my flu like flares being chronically ill. Vestibular migraine made me very dizzy, staring spells, feeling presyncope, and nauseous so I went into full blown panic with crying, derealization, feeling impending doom, numb limbs, hot flashes, nausea, etc. after my attacks (on top of my brutal flare) I get cold, shakes, bowel cramping, nausea, gerd flares, tired, and feel out of it. Really feels like I’m dying and miserable already feeling like death. 26 year old guy if that makes any difference if anyone is dealing with similar.

Getting horrific panic attacks because I feel like I’m dying while in a flare of my MCAS and Mold illness flu like flare and triggering my vestibular migraines. I get so unsteady, feeling like I’m dreaming, impending doom, nausea, fatigue, face flushing, warmth feeling rushing in chest and neck from a massive panic attack. Second flare and second panic attack in 2 days… absolutely horrible and a pressurized head feeling. Comes and goes throughout the day. Really scary. Now I’m cold and shakey after the panic attack and nauseous.

I need help finding someone as the person I’m currently with is disappointing me. I’m super sensitive and don’t want to take the supplements they are pushing as I have severe MCAS and sensitivity. Currently in a 11/10 MASSIVE flare that is making me want to end it all it’s that bad. Extreme fatigue, malaise, lymph node pain all over, bowel pain, hot flashes, joint pain, zero energy… I need someone who is responsive and can help me navigate this process as binders flare me. 2+ years of complete misery with nonexistent MSH, positive high for marcons, and severe mcas. Every day is a battle to want to even still be living not to be sappy. I’m in a clean house with a perfect Hertsmi-2 + Endotoxin test… I can’t get anyone to prescribe me pure resin CSM.

Just curious as I want to find something with the least amount of fillers or junk. Am trying to take it to slightly and naturally calm mast cells. Thanks!

Yesterday made a massive mistake of eating Raising Cane’s and think I’m paying for it today. Woke up with tons of bloating, gas, horrible feeling and Bile acids. Noticed my body for was bad today and I get that when I flare BAD. Temp is normal at 98.7! Horrible allergies the past week and 2 months on top… Itchy eyes, zero mucous in nose, scratchy/prickly throat, ear pressure/itchiness, etc. was outside today windy and warm and sudden joint pain, fatigue, hot flashes, lymph node pain, nausea, bowel pain, headache, and malaise… is it my undetectable MSH driving this? Marcons? I know it’s a mix but my bowel is in shambles. A mix of bad allergies that feels like a cold and a flare that feels like the flu. Has been about 2-3 weeks since I’ve had this so I’m bummed. I just need to start binders and get this over with. Nose and throat have been super dry and scratchy and allergies keeping my baseline mcas symptoms very bad. Gotta take a hydroxyzine to try and knock this down… No more fast food…

Headaches, eye itchiness, ear fullness/wet/itchy, dizziness, super dry nose, tickling/scratchy throat, face flushing, hot flashes, zero mucous. I flare daily from mcas and mold illness (CIRS). Tree pollen is bad for me but grass seems to be even worse. Hard to describe as I have mast cell/ histamine issues so my allergies seem worse… Flonase, Allegra, and hydroxyzine to the rescue! Western Pa has been super windy lately and a bit cooler. Just cut grass yesterday too which was a massive mistake 😅