Hi friends!
curious, on average, how many steps are you able to get in a day, or how much time do you spend on your feet? Also, how does everyone manage to work out with erythromelalgia? I’m really in need of some tips and ideas for staying active while managing symptoms.
I’d love to hear what works for you!
Anyone here just randomly got erythomelgia and it randomly went away? Or any remission stories? I need hope 😭😭
Feeling very lonely with the horrible condition. I am sad most of the time. Just want to feel less lonely I guess 🥺
Hi does anyone just flare when sitting down? Or walking for too long? How do you guys manage walking?
Does any one else wake up with swollen feet after an EM flare that happened over night?
Hi all,
I’ve been dealing with some health issues and am struggling to find peace and comfort. I’ve been crying for the past month and could really use some encouragement. Life has been feeling pretty dark. Does anyone have favorite scriptures that have helped them through difficult times? Thank you.