u/Aggressive_Hotel_810

▲ 2 r/PudendalNeuralgia+1 crossposts

Pelvic Floor/ Pudendal Neuralgia, 25m

hi! i am dealing with burning pain in the penis when touching my perineum or shaft at all, even very lightly. I imagine this is due to an irritated pudendal nerve.

has anyone recovered from this successfuly? any tips? i am so discouraged and afraid. dealing with this nightmare for 5 months now.

please help.

i’m on gabapentin and in pelvic floor therapy already, neither of which seem to help

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u/Aggressive_Hotel_810 — 4 days ago

M 25- Symptoms listed, please help!

Hi! I’ll keep this as short as possible.

4 months ago, started having intense rectal pressure & the feeling like i needed to have a bowel movement even if i didn’t. This eventually turned into a 24/7 pain “golf ball in the rectum” feeling. I had tests done that all came back clean (colonoscopy, pelvic MRI, doppler ultrasound)

I deal with this from the moment I wake up, to the moment I sleep. Other symptoms include:

-Super sensitive penis. touching the head, or any part really will feel hypersensitive and also cause a constant reflex/spasm. Erections also cause this spasm effect there, where it’s constantly pulling back towards my stomach. It’s basically always spasming even when flaccid.

- Tingling in perineum / bulbospongious muscle area. I wouldn’t say necessarily it’s like a painful thing. Just tingles when I’m relaxed

It hurts constantly and I can’t sleep these days. Lost job, relationships etc…

been in PT but doesn’t feel like it’s helping at all.

One weird thing is, sitting doesn’t necessarily make it worst at all… Wether i’m standing, sitting, peeing, laying down or anything- it all just kind of hurts the same.

Does this make sense with Prostatitis or Pudendal Neuralgia or does it point more towards muscle / LAS? No muscle relaxers are helping, and pain relief in general is minimal.

I’ve cut off masturbation, sports, minimize sitting etc…

Any tips for me? Thoughts?

I imagine there’s some nerve irritation / damage going on. Will this be permanent? I’m being brave and optimistic, getting all the help that I can, but at the same time this is kicking my ass.

Urologist told me to take Doxycicline for 3 weeks, and also wants to do a Cystoscopy. Both of those things kind of scare me and in general I don’t really believe that I have an infection or any bacteria that is causing this, but idk.

Would appreciate any replies.

Thanks,

reddit.com
u/Aggressive_Hotel_810 — 9 days ago

25M - Constant Pain

Hi! I’ll keep this as short as possible.

4 months ago, started having intense rectal pressure & the feeling like i needed to have a bowel movement even if i didn’t. This eventually turned into a 24/7 pain “golf ball in the rectum” feeling. I had tests done that all came back clean (colonoscopy, pelvic MRI, doppler ultrasound)

I deal with this from the moment I wake up, to the moment I sleep. Other symptoms include:

-Super sensitive penis. touching the head, or any part really will feel hypersensitive and also cause a constant reflex/spasm. Erections also cause this spasm effect there, where it’s constantly pulling back towards my stomach.

- Tingling in perineum / bulbospongious muscle area. I wouldn’t say necessarily it’s like a painful thing. Just tingles when I’m relaxed

It hurts constantly and I can’t sleep these days. Lost job, relationships etc…

I’m seeing a urologist tomorrow, been in PT but doesn’t feel like it’s helping at all.

One weird thing is, sitting doesn’t necessarily make it worst at all… Wether i’m standing, sitting, laying down or anything- it all just kind of hurts the same.

Does this make sense with Pudendal Neuralgia or does it point more towards muscle / LAS? No muscle relaxers are helping, and pain relief in general is minimal.

I’ve cut off masturbation, sports, minimize sitting etc…

Any tips for me? Thoughts?

I imagine there’s some nerve irritation / damage going on. Will this be permanent? I’m being brave and optimistic, getting all the help that I can, but at the same time this is kicking my ass.

Would appreciate any replies.

Thanks,

reddit.com
u/Aggressive_Hotel_810 — 10 days ago