r/Prostatitis

Look, I know so many people will just dismiss this, but this is how I healed from Cpps. It wasn’t a bacterial infection in my case, it was chronic pelvic pain - non bacterial.

I urge you to research Alan Gordon, read his book, and Howard schubiners stuff, remember those names.

This could save your life as it did mine, it will help so many people when you believe it is TMS (tension myositis syndrome). I talk with such passion because I’ve been through it all. Pains everywhere, for years, flare after flare.

Now I’m 100% Cpps free and my life is soooo much better.

Please look up the names I posted, do somatic tracking, research it all. That is how you’ll heal.

Thanks for reading

Jacob

I Had ongoing symthoms after gardnerella and Ureaplasma exposure in April. Pain after urination and the feeling of a swollen urethra/ hard flaccid... took antibiotics may 5th. but it never got better. Concluded it as CPPS. Started PT 2 weeks ago and have been stretching everyday. pain has subsided in the urethra from a 7 to a 5 but now there is discomfort in my left testicle. It started 3 days ago. It feels like random uncomfortable mild throbbing. I can also feel it if I sit or if I don't stand with my legs wide. I have to prop me left leg up when I sleep. Lastnight I started feeling around my testicle with my fingers and felt something inside near the top of it that feels like squeezing my nuts when I feel it. Does the testicle pain, weird feeling within the top of the genital come with cpps symthoms or this sounds like something else. I'm tired of keep going back and forward to the emergency room but Im not sure if this it's actually something else going on with my body. I plan on letting my urology know this Monday. But I've callled them so many times and set up so many appointments in starting to feel like they've been brushing me off.

I have to start by stating I only discovered this sub today, but it has been a revelation.

My timeline -

Over last 2 years -

Suspected UTI treated with antibiotics

Suspected epididymitis (3x) treated with antibiotics - trimethoprim

Confirmed UTi treated with antibiotics

At least two of the courses was ciprofoxaxin.

About 6 months ago and still present -

Severe abdominal pain

SIBO

Weight loss

Joint pain

Bone pain

Brain fog

Fatigue

Burning sensations in body

Feet ice cold all the time

Suspected prostatitis treated with 6 weeks course of antibiotics - can't recall which ones

Long course of antifungal medication due to persistent thrush

Past 3 months -

Muscle fasciculations all over body

Burning sensations in back and abdomen

Back pain

Word finding issues

Concentration issues

My question -

I am now convinced that I have been floxed, damaging mitochondrial cells and causing the nerve issues, pain and fasciculations. The antibiotics have caused SIBO reducing my ability to absorb nutrients. The fasciculations are just now easing off - however my urinary symptoms are back. Burning sensations after urinating, feels like there's something stuck in my rectum - GP examination found prostate enlarged and tender. 2 prostate antigen tests at the start of the year were clear so diagnosed acute prostatitis and prescribed coamoxiclav (I've researched and question the efficacy of it for prostatitis).

Please help, any advice from people who have been here before is welcome.

Any idea why it keeps coming back? What I can do to eradicate it without getting floxed again?

3 years in. I can’t take it anymore. Stabbing pain in penis. Tailbone also hurts. Sitting sometimes hurts. But biggest issue is stabbing pain in penis. Sometimes even hurts when pee. No bacteria. Been in physical therapy for almost a year now. Taking muscle relaxer and Valium suppository. Still in daily hell.

Hi all,

So, i saw a urologist yesterday after being referred by my GP to investigate the possibility of prostatitis post STD, he checked my prostate and said it felt really healthy and was confident from that alone that its not inflamed, it didnt really hurt when he touched it, obviously it was generally uncomfortable but is this enough to rule it out?

He said that from what he did in there, if it was swollen i would have screamed in pain and it would have felt boggy, which he said it didnt.

I guess this leaves me with PFD being the culprit if so.

So I’ve been dealing with IBS for a year now it was soon after I got Covid, I started experiencing a pulling sensation in my testicles it wasn’t painful, I went doctors they told me I had a UTI after I did a urine sample, I took a short course of antibiotics and the pain went away. But since all this my IBS has been acting up, some days I have to go toilet 5-10 times an hour other days it’s not as bad. Recently in the last few weeks I have started noticing that this pulling sensation type pain in my balls has come back - it doesn’t last long or hurt much it just feels like pressure. I feel pain in my lower back and also started noticing I have leakage. I have a feeling it’s pelvic floor dysfunction but could it be prostatitis. Did anyone else take a while to get treated?

What are some good habits that you now do that contributed to your recovery? What are some bad habits that you stopped doing? Do you still do Pelvic Therapy with a therapist to this day? Even if it's once a month? Is doing "internal" work a MUST? I've started with a pelvic floor therapist almost a month ago, and we haven't started any internal work. She wants to go the "conservative" route, but I'd like to hear from others.

In 2021, I started having pain in my genitals, mainly on the left side of my penis.

I tried everything. Exercises, stretches, you name it. But the one thing that really made a difference for me was walking.

I started with 1 kilometer. Then 2. Eventually, I worked my way up to 10 kilometers.

Now I walk 10 kilometers every week. And when I get a flare-up, I start walking again.

For me, walking helps relax my pelvic floor and can significantly reduce the pain.

I also train at the gym twice a week, but I have to be careful. Too many abdominal exercises can trigger my pelvic floor. Stress can do the same thing.

So when things flare up, I keep it simple:

Walking. Walking. Walking.

Nothing crazy. Just a normal pace. Not too fast. Just keep moving.

For me, it can reduce the pain by around 60%.

Give it a try. It might help you too. And if it doesn't, well… it doesn't. But it's simple, free, and worth trying.