u/xiuxiu1313

My Story - Pretty bad to pretty okay

TLDR: Experienced Prostate, bladder and pelvic floor pain at 45 years old for the first time in my life for approx. 5 months and things are getting better.

Started Feb 10, 2026 with weird but not painful sensations down below. Woke up the next morning with bladder discomfort and a week stream. Symptoms progressed through week. Testicular pain began. Made apt with GP

  1. Blood test negative for bacteria

  2. digital exam was normal

  3. Blood test was good, PSA, Electrolytes and white blood cells normal.

  4. Doc ordered testicular ultrasound. Found cyst but nothing else.

  5. Ordered STI urine test. Negative.

  6. Put on Cypro for 9 days. No change.

Everything got worse. Started having urine hesitancy. Golf ball in anus feeling and pain. Hurts to sit. Bladder and urethra on fire.

Went to a Urologist. Put me on 30 days of bactrim and alpha blocker. Neither helped. Started taking graminnex. Cut out milk and most other dairy.

We are now in what, April? Symptoms remain. Metal health suffering. Libido gone, ability to perform gone. Painful everything.

Still on Graminnex and still on alpha blocker.

Around May I started to have periods of minor relief with flair dome ups.

Things slowly started to improve to the point where I would almost feel normal some days

In June I was feeling really good so I stopped my Alpha Blocker (it was causing sleep issues and heartburn). Had a bit of pelvic tensing for a few days once the drug was out of my system.

Now I am doing much better, not 100% but good enough that it's not top of mind or bothering most of the time.

Here is everything I did that I am still doing

  1. Cut out dairy and reduced cheese

  2. Cut out hot baths

  3. Taking graminnex twice a day

No idea if any of these above things actually helped or if it just needed to run its course.

reddit.com
u/xiuxiu1313 — 5 days ago

45 yrs old. Sudden pelvic pain started 3 months ago. Testicular discomfort, back pain, prostate pain, urethra, etc. and urinary hesitation thats worse in the evening.

Blood and urine test fine. Testicular ultrasound fine. Two rounds of antibiotics. CT scan fine.

Symptoms have lessened over the last 3 weeks or so, but not gone.

Final test is Cytoscopy. I am himesitant based on what I am hearing. My dad had one done said it was excruciating 5hen came down with an infection that put him in the hospital

I just dont see what actionable discoveries that could be found when everything else points to CPPS. I worry it's a "check the box" procedure.

Thoughts?

reddit.com
u/xiuxiu1313 — 2 months ago