Need recommendations for a urologists in Illinois

I'm in central Illinois but at this point will travel anywhere. 7 urologists so far and all are clueless for one reason or another.

My latest one has been the best but doesn't treat the bacterial side or even test for it at all aside from basic urine samples.. I fought hard with my 6th urologist to order a semen culture. I had to locate a lab who would test. His office was clueless. It took 6 months but I found one and it came back positive for bacillus.

My 7th urologist looked at it and said he has never seen this in 25 years of his practice. He has referred me to a infectious disease doctor. I am awaiting my 1st appointment.

All of this started after a crazy but of jock itch. So bad it discolored my upper inner thighs and I had open sores from scratching so hard. Cured it with using a bidet, laying naked with open legs near a fan and wiping occasionally with alcohol wipes. Took just under a month.. prostate symptoms started soon after 3 years ago.

Psa has been a roller coaster. 3.2 at the start. As high as 5.9 and currently 4.8 but symptoms are the worst currently.

1 year ago my semen turned clear and watery. Just this month I started having close to dry orgasms. Very little output.

The main symptom that has been constant is urine flow thats weak and completely stops when I push out to try and make it stronger. Opposite effect...

My wife has had 4 miscarriages in this span. She has also developed issues with yeast and ecoli after trying to conceive. I was put on antibiotics previously but wondering if we were giving it to each other without being simultaneously treated.

I can not find a doctor to take bacterial or fungal infections seriously. Even with my latest semen culture they are just pushing me off to someone else..

I'm hoping to find a urologist who will perform a 2 cup or 4 cup urine / prostate fluid test? Also possibly testing for fungal infections like candida. I don't believe there is an accurate test for this which is why I'm getting the run around but I'd like to try a quick 1 or 2 week trial of fluconazole and see if it helps.

Yes I have seen pelvic floor therapy. About to try a 3rd. None will do internal work so far. My 2nd straight up told me I seem fine just slightly imbalanced. She said nothing she can do will help my prostate inflammation. So I never went back. Still hoping to find someone better.

My semen culture has seemed to open a new door and im hopeful this infectious disease doctor will work with me better.

My stats 46 years old, 6'6 220lbs. Just over a healthy bmi but I do have extra abdominal fat I need to lose.

I've had 2 MRIs. 1st showed 50cc. 2nd a year later showed 40cc. Weight loss seems to have helped mass but has never help symptoms as they have gotten worse.

I was diagnosed with ADHD and and trying vyvanse. About to get a MCAS diagnosis. Im also on Dupixent and Mirtazapine. Going to ask for Ketotifen and or cromolyn sodium next for that but hoping losing another 20lbs will do some good.

I've asked to test for sibo and my gi doctor is clueless.

I'm giving gut issues for 2 years now. Mushy poop that breaks apart and creates a cloud when flushed. The ONLY thing that seems to firm things up a bit is consuming a massive amount of milk. My urine turns cloudy from too much phospate of unfiltered milk throughmy kidneys (I have horseshoe kidneys and have to watch them)?? But its the only time I will have a slight part of my poop solid and normal. Nothing else does this.. my body does feel better eating junk food though. Candy and pastries. I wonder if its because I'm feeding yeast???

Anyways. Can someone recommend a urologist anywhere in illinois? I'm on medicaid and willing to travel anywhere in the state

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u/Twister96AnotherCow — 3 days ago

Che and Jost need to go

I don't even want to tune in anymore. Over half the night is Commercials and their same tired schtick. Its better to just watch the skits the day after on social media at this point. Its been 20 years of pretty much Seth Meyers and these 2.. seriously change it up already.

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u/Twister96AnotherCow — 19 days ago

Advice for water distiller tgat shuts off before running out of water

We bought a vevor distiller and it works great as long as we clean it with citric acid once a week or so.. We drink about 2 gallons a day and run it 2 to 4 cycles a day depending if we slacked the previous day. We pour it into 2 gallon glass jug water dispensers with lids.

Problem is, even though it has automatic shut off, it only shuts off after the water is fully evaporated meaning any sediment burns to the bottom. We can not leave it to work overnight.

The only solution I can think of is to connect a manual shutoff plug in timer and stop it 20 minutes from normal cycle completion. However, we want to buy a second unit as well. This thing is pretty loud and almost like running a window air conditioner.

I'd like to buy another unit that doesn't have this issue. Can anyone recommend?

Side note, yes we drink distilled but make sure to consume minerals from food. If we slack, we take supplements but are also adding in pink salt for sodium and slight minerals, no salt brand seasoning for potassium and a bit of food grade Epsom salt for magnesium.. but not always. We usually just drink it straight or I add a splash of oat milk for added creaminess.

If you are wondering why, our rural area has terrible quality water and mix that in with old pipes. We do not have a house softener system and we have to clear every faucet and toilet of sediment continuously. Especially if we shut off the supply and turn it back on. It will cause instant blockages and once unclogged, our water is reddish brown for a minute. The sediment left over after distilling a few gallon looks like clay and builds up fast.

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u/Twister96AnotherCow — 21 days ago

Semen culture found bacillus. Wife has reoccurring e.coli. so far doctors are no help

I'm on my 7th urologist. The 6th finally ordered semen analysis and culture. Problem is they had no idea where I should go. I fought with them for months and called everywhere. Finally found a place who would accept it but I needed to pick up a steril cup from my dr..

I messaged my dr explaining and they said I could pick up a cup. I had a plan.... 2 weeks later after some abstinence and planning around other dr visits (lab is 1.5 hours away) I messaged the doctors team to see where they were located today for pickup. They refused to answer. Told me the nurse would contact me. She never did. Sent a message instead stating I had to go online and order a kit.. huh? Confused, I sent a message explaining i need to pick up my sterile cup for culture... they messaged back saying all information is in my vasectomy handbook... WHAT???? I messaged them back saying lay off the booze and read my chart...

So what did they do? I received a warning from the hospital system about abusing the messaging system with profanity..

Anyways I went to the lab without a cup. They previously told me they couldn't provide one or a place to take care of business. However, after some explaining, they looked the other way while I took a cup to the bathroom. Problem solved right?

Results came back positive for bacillus. No other info given.. the dr team sent another message stating to stop the abuse right now.. abuse? For saying lay off the booze? Meaning get your head on straight?... they really took offense and im looking into issuing a complaint with the state in retaliation.

Also said the doctor would look at it and get back to me.. its been 10 days and crickets. This is why I changed drs yet again. I asked my new urologist to look into these results this morning and waiting his response. This Healthcare system is ridiculous

Anyways. Im 46.. wife 42 and I are trying desperately to conceive one more time. We've been searching for answers for over 2 years. Almost every time we try to conceive she ends up with problems. Sometimes it clears by itself. Sometimes she needs help from her obgyn.. this last time, she was positive for e.coli

Wondering what my next steps should be? Should I fight for an antibiotic? I clearly have bacteria in there

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u/Twister96AnotherCow — 23 days ago

Spending 2 days in Ottawa, IL anyone have a good itinerary? 2 adults and a 6 year old

Will be in the area next weekend. Ive done starved rock a few times so I know what to expect but doubt our 6 year old will want to be hiking all day. Is there anything fun to drive through or explore? Anything worth spending time at in Ottawa or somewhere close?

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u/Twister96AnotherCow — 1 month ago

Could MCAS cause prostatitis?

Im 46band have had symptoms for almost 3 years. Just diagnosed with MCAS. Im on dupixent, hydroxyzine and quercetin specifically for that and will be adding a few more soon. Probably Ketotifen.

Wondering if the inflammation from these hyper active mast cells is causing prostate inflammation? Its causing asthma and EOE and my symptoms started at the same time of a huge flair that led me to the er multiple times right after covid.

Ever since, my psa numbers have been a roller coaster up and down. Lowest was 3.2.. highest was 5.9. Im currently 4.8 but just started all these medications 2 weeks ago. Im also starting pelvic floor therapy and an intense exercise routine to strengthen my legs after leg surgery a few years ago that wasn't properly addressed.

If I do get better, I won't know if its the medication, exercise, or the pelvic floor stretches. Oh and I also might start taking lexapro for anxiety. Im basically doing everything possible to finally get better.

Im wondering though. Has anyone with confirmed MCAS noticed any difference after starting specific MCAS medications?

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u/Twister96AnotherCow — 1 month ago

Wondering if this is MCAS related and histamine dumps are causing inflammation?

This all started for me 3 years ago. I had covid in August 2023. Unknowing was consuming mold in November. Urine flow issues started in December. From January to March 2024 I thought I was near death. I had weird disconnection from reality feelings that led me to the ER multiple times. Strange neurological and physical symptoms. A lot that felt like it started with food and gut health.

Fast forward and after countless doctors and tests. Im diagnosed with EOE, Asthma, POTS, many many environmental allergies, Raynauds Syndrome, chronic fatigue... tingeling in extremities, essential tremor that gets worse with food or exercise. Exercise intolerance where my gut shuts down and I puke any water I sip.

So im being referred to a new allergist and a MCAS specialist. Im already taking Dupixent shots weekly. I started quercetin supplements. Ive tried every otc h1 and h2 medicine and finally prescribed hydroxyzine which does help a lot of my environmental allergies and helps me sleep.. im going to ask for Ketotifen next

Other than that, November of 2023 i also had ankle surgery that failed. Repeat surgery and raynauds diagnosis made me take it extremely easy for a long time to make sure my tendon healed with enough blood supply after the cold winter months. Im finally just now starting to run again but there is a complete imbalance with my gait and my right leg dwarfs next to my left.. the right calf is literally just as big as my forearm.

I am starting pelvic floor therapy this Friday and will also be sent to rehab my leg to balance the muscles out properly.

So ill be fixing both issues simultaneously and if I heal, I won't be able to know what worked.

Funny side note. Had 2 MRIs a year apart and it went from 50cc to 40cc after losing 22lbs.. symptoms are worse though. Semen is almost completely clear when it was thick and white previously. My wife has been through 4 miscarriages. My psa levels are a Rollercoaster. Lowest was 3.2.. highest was 5.9 and currently its 4.8. MRI doesn't show any lesions.

I'm getting a culture done (just made another post asking for advice about it)  because my wife keeps getting infections after sex. She finally tested positive for ecoli after her last miscarriage. So I need to check for bacteria and hopefully get treated at the same time if that is the case. We will see.

I'm curious though if anyone's prostate healed after starting MCAS medications?

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u/Twister96AnotherCow — 1 month ago

Weird situation- I need to find somewhere to masturbate for a semen culture

So I've been given orders for a few urine analysis and pushed for a semen culture as well. Found a doctor to finally oblige. I called around and no one in 200 miles radius accepts these. I finally found the one lab that does but I need to bring the sample in. They don't provide a place for me to take care of business. I also have to pick up a sample cup from my doctor first, who also doesn't provide a place to do this.

I live over an hour away and the sample will be destroyed. I feel like this is the start of a story of how I end up in jail..

I'll take a few alcohol pads but hoping I can find a clean room after washing my hands.

I don't like talking about this with other guys. This gives me no thrill at all.. but hoping someone can give me some advice on where to produce this sample in close proximity to the lab

UPDATE: so Healthcare in the Midwest is absolutely terrible for us. They don't care we have prostatitis at all.

I had to call my urologist because I was supposed to pick up a cup direct from them to submit my sample to the lab. When I called, they refused to give me the address they were located at for today (they travel to different hospitals depending on the day to treat the whole area) they said the nurse would call me back.. I waited and waited and nothing. Had to leave to make another appointment near the lab. (I had 2 appointments today in that city and wanted to time everything perfect) the nurse finally sent me a stupid message saying I can pay for one on the website they suggested for semen analysis.. first off, I already told them I'm doing the analysis in person at a fertility clinic.. and second, I JUST NEEDED A STERIL CUP TO TAKE TO THE LAB FOR A CULTURE, NOT AN ANALYSIS... I sent them a long message basically calling them incompetent and wasting my time.

I went to the lab anyways as I had orders from a different doctor for urine analysis. I wanted both done at the same time. Semen first, hoping for prostate fluid to be mixed in with the urine after...

I get to the lab and explained how stupid my doctors nurse was. They gave me a cup and basically looked the other way. One of the nurses wanted to call someone to see if it was OK but I just grabbed everything and went into the bathroom. Did my business and came out with completed samples. They were completely cool with everything and laughing about it. I felt no shame at all. Funny how a doctors nurse stupidity and masturbation brought us all together in harmony.. ha... but seriously, never again....

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u/Twister96AnotherCow — 1 month ago

Question about games.

I have over 100 games in my collection which I want to copy to a hard drive. Plan is to store games on a 24tb external.

That said, I also am in search of a few games to download. I know how to find certain "legal" -wink- ones free but my question is, does everyone pay for the download servers to obtain these free games?

If there is no completely free way to download. It makes more sense to buy on ebay, copy, and just resell no? Or am I missing something?

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u/Twister96AnotherCow — 1 month ago

Family member age 74 just diagnosed with pancreas cancer. Im devastated and now pissed

I don't have all the info as im giving the immediate family space and time. Im a very close relative who is always around and am loved like immediate but not in the immediate circle technically.

That said, his story is starting out like many i have read on here.. he was told by a doctor to go into er for jaundice last week. They couldn't figure it out at first but then found a mass at the head of the pancreas. He was given a stint. Jaundice is better now.

I was hit hard with this news and was terribly emotional so a lot went over my head at the time especially with lack of knowledge about this cancer previously. I was called a few days later and told he has 6 months and nothing can be done..

I want to give them the weekend and will try to talk more with his wife about specifics if she is willing. Im hoping to push for them to get a 2nd opinion away from this rural area in the Midwest.

From what I've researched so far, options for some are the Whipple procedure or chemo. Im also reading that trials are opening up for daraxonrasib.

Word from an immediate relative is that they are preparing for the worst and sounds like they are giving up already.

My question for everyone, can you give advice about how to handle this and be supportive the best way possible? Any recommendations for when we do communicate? If its still early, is there a trial or drug he should jump on asap?

I want to gather as much info as I can and present it all printed out and as an all in one overall package but I dont want to come off as im diagnosing or pushing them a certain way without any medical expertise of my own.

I already told his wife thru text that I would get another job and would contribute 100% to anything they need out of pocket. Thinking about it more now, if they are set on no treatment, I feel like my offer could make them feel as if they are not doing enough??? So I quit talking further before I put my foot in my mouth deeper.

I would do anything for either of them and want him to stick around as long as possible but I get the quality of life factor..

Life is so messed up sometimes. How are we all supposed to just accept this and take it? And then move on with our own lives knowing this could happen to anyone again at any time. I have a long history good and bad with church, God and faith in general. I sometimes get drunk and start a prayer that ended with me completely going off on God, calling him every derogatory that I could think of.. this happened a lot. And starting again now while I'm completely sober. I have been unlucky enough to have multiple tragedies in our family im my life and I seriously want to go up to God and slap the s out of him. Pin him down and whale on his face over and over and over nonstop until he gets some sense knocked back in him. I want to bite off his fingers and shove them up his a** if its possible.

Im sick of this Bible stuff shoved on everyone to be good to your neighbor blah blah and then he does this to people... and then I snap out of it and realize that the Bible was created by other humans who didn't know a damn thing about the afterlife. There is no real proof that jesus ever really existed. and knowing that there are over 10000 different religions world wide means there most likely isn't a God anyways.. its about balance which really translates to karma.. there wouldn't be a way for humans to comprehend good experiences if there were no bad ones to contrast. Anyways, this is where I am now and im sure it will ruffle a few feathers. Im not attacking anyone's beliefs personally. I just really need to vent about this world being filled with realities that we are just expected to bend over and take without being able to do a damn thing about it..

Would anyone know of an all in 1 database to best link or reference? Also is there any info about the best way to go about trying to obtain daraxonrasib? Should they be fighting for chemo at least? Would it be best to travel to a major city for a second opinion? Any help would be greatly appreciated. I really want the best quality of life for the longest amount of time possible. Please don't hurt him by withholding information over my own beliefs

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u/Twister96AnotherCow — 1 month ago

Cheapest wireless controller that works for all systems in retropie raspberry pi 4b

Someone just posted asking for the best which seems to be 8bitdo?

My question is more specifically for the cheapest wireless (unless there is a 2ft wired controller) that works for all games no issues. Is there a Chinese knockoff version or 2 packs of quality controllers that are packaged for a deal? We have 3x ps4 systems and only 3 controllers. Maybe its better to buy more ps4 controllers for swap ability for the rare occasions we have company?

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u/Twister96AnotherCow — 2 months ago

Fireworks for the 4th tonight. Who will have the biggest display?

Strictly regarding fireworks only and not included events beforehand

Does anyone know if the capital area downtown will be bigger than knights action park? Anywhere in the area to travel to aside from those for the best display? I'm sure st louis would be the absolute biggest. We are considering if there is semi close parking with easy in and out to get back home quick if someone has a tip.

We are also considering jacksonville il.. our kid wants the biggest loudest longest display

July 5th update:

We ended up at the capital sitting in the street directly in front of the display.. the fireworks were different compared to other shows. They were lower to the ground and louder.. and they were constant.. it was overwhelming at the end in such a good way. Not great for people with sensitivities. I actually had goosebumps at the end from feeling so immersed. Im 46 and only had that feeling one other time in my life from a firework display. I believe we made the best choice.

For anyone seeing this comment in future years, just remember this was the 250th birthday. The budget may have been bigger. Subsequent years may or may not be the same

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u/Twister96AnotherCow — 2 months ago
▲ 2 r/MCAS

Do I meet the criteria for MCAS?

Edit; need to add ocular migraines to the symptom list. I can go a year without any and then have them 3x in a week. Weird zigzag neon flashes that start in the center of my eyes and work their way outward before completely vanishing in about 30 minutes but I need to sit down or pull over for this because I'm blind. Both eyes.. eye doctor can't explain it. I was told by family dr to take magnesium supplements and make sure I was hydrated but it happened while I was closely monitoring electrolytes over a long period.

Original post; Crazy physical and neurological symptoms appeared 3 months after covid august 2023. December i had urine flow issues 2 weeks later I had intense fatigue where I was "tired" from literally throwing a snowball.. I saw shadows and flashes, intense gastro distress. Tingeling extremities and motion sickness. This lasted at an extreme level for almost half a year. I asked my family dr about MCAS and he laughed at me saying only 1 patient of the 5000 he has seen has MCAS.. I was prescribed SSRIs and diagnosed with anxiety. SSRIs didnt touch anything. DNA test showed i have double mutant gene for MTHFR. started methylfolate but didnt help any aspect of my life.

Prostate problems and gi issues got worse. They started taking me seriously because my mom died of MS complications 20 years prior at 49.. I was 43 when this started... CT scans and mris cleared me from MS.. I then had fluid slightly around my lungs and diagnosed with pnemonia. Went for tests and found out I have asthma. Lived with it my entire life and only had 1 strange episode when I was 10 after falling. They said I just had the wind knocked out of me. I thought being out of breath crazy during exercise while spitting up phlegm as a bonus in the cold fall weather was normal for everyone..

Also finally saw a cardiologist dr because of spells of low blood pressure, usually when standing quick but also palpitations and a low weak beat.. diagnosed with one side larger than the other with slight regurgitation. Most likely caused by the asthma?

I then went in for a colonoscopy/ endoscopy to look for problems. Had polyps they removed but the kicker was EOE diagnosis at 28 eos.. (60 on my endoscopy last month) they always told me previously that impactions and one off hiccups where I sound like a frog, were caused by a slight hiatal hernia...

Anyways, I go to a urologist for prostate issues (im now on my 7th urologist) and was prescribed doxycycline 2 weeks and bactrim 4 weeks. Prostate had no change but I felt like my other crazy symptoms started to ease up. I didnt feel close to death for the first time in almost a year. And then I got a terrible tooth infection that went behind my eye. Had it drained twice in er.. no fun.. and more antibiotics.. I feel like the antibiotics saved my life and was perfect timing. But I developed cdiff.. more antibiotics.

My level of care increased once doctors took me seriously and saw diagnoses. I went to an allergist. Crazy high allergies for certain grass, trees and through the roof for mold (alternia alternata). It made sense because I had to give up my lawn care business after 4 months years ago because I was extremely sick every day and couldn't take it anymore.

Gave in to anxiety still to explore every option and diagnosed with adhd but wondering if its more just a symptom. I tell everyone that i constantly feel like an invisible giant fist is reaching inside of me squeezing at different levels throughout the day. The only thing that ever felt like that grip loosened was alcohol (I stay away from all other drugs even caffeine most of my life) I feel like inattentivness is really because I cant concentrate while dealing with all my symptoms. I just started vyvanse 20mg to see though.

So my list of issues

-Allergy related Asthma.

-EOE with a current count of 60.

-Gut issues off and on for life - mushy poopthat. disintegrates when flushed.

-Prostate inflammation with roller-coaster psa levels.

-long list of extreme environmental allergies internal and external (welts from grass or pine/evergreen needles)

-adhd diagnosis for inactivity can't focus

-random spurts of low blood pressure lightheaded but I'd say its mild but for life I feel like bending down to rest hands on knees makes me feel better from when standing. Especially on hikes through the forest or mostly just standing still. I never feel this way walking downtown Chicago in a city aspect

-random low blood sugar feeling while glucose meter reads at normal levels. This happens only at random times in my life for maybe a month at a time. I feel its connected to food since when it does happen, its the same time every night

-raynauds syndrome suspected- lose feeling in fingers and legs. Had sores on feet develop after cold spells. The worst occurrence is jumping into ice water and lost all feeling from the waist down for almost 2 hours until I got home and sprayed hot water on my legs. Very scary but fine after I warmed up. I always felt like I was allergic to cold

Oh, forgot to mention I was bit by a tick in 2018 and had the bullet rash. Didn't realize that meant lyme disease until almost a year later. 30 days doxycycline in 2019 but I felt perfectly healthy (normal for me) and no symptoms then aside from impactions from eoe and mooshy stool ive been living with that randomly disappears for months or years in-between.

Oh also at the height of my crazy symptoms, I went to the er multiple times for weird detachment from reality type out of body feeling. Had this one other time 25 years ago randomly after walking in a forest and going to a movie theater eating oversalted popcorn (don't think the salt is related but had to mention the only odd thing about that day). Went to the bathroom and it was such a weird sensation I can't exactly explain correctly. Er back then had no answers either just asked if I do street drugs which I am completely against since psychosis from drug use runs in the family. Alcohol is my only vice and its very rare these days

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u/Twister96AnotherCow — 2 months ago

Retro gaming best way on ps4 or would a raspberry pi be the better way to go?

I'm going to get back into setting up all 3 of our jailbproken ps4s 2x on 9.00 and one on 12.52

We have a couple unused raspberry pis 3b and 4... but no controllers.

I want to play all the retro couple sols with my 6 year old and wondering what the best experience would be. Should I even bother setting it all up on ps4 or should I focus on raspberry pi and purchase a few dedicated controllers?

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u/Twister96AnotherCow — 2 months ago

Canon 5d original and 7d mark ii, is there a way to get the shutter count?

I can't find any recent info. All old forum posts link ways that give false numbers. Hoping someone has updated info with a reliable way to do this

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u/Twister96AnotherCow — 2 months ago

3 consoles 2 jailbreak previously at 9.00 and one non jailbreak 12.52 should I run vue for all?

I jailbroke 2 consoles last year. Bought a 24tb hard drive planning to backup over 100 physical games. It never happened. I haven't touched it since.

My daughter wants me to jailbreak her 12.52 now and wondering if vue is best for all so all 3 consoles are on the same page? I plan on using this tutorial

https://youtu.be/EdserHNynL4?is=Ho3dPqXtK-FdQWsX

u/Twister96AnotherCow — 2 months ago

RALP instead of active watch for slow growing low risk

I've been going through 3 years of roller coaster psa results 3.3 to 6.o currently at 4.9. Free psa was tested twice 16.6% and 18.5%. 2 mri showed prostate clear with bph and possible prostatitis. 50cc for the first and 40cc the 2nd after 20lb weight loss. Score of 2 for the 1st and 0 for the second.

Im 46 years old and this started when I was 43. Im 6'6" 220 if that matters. Had 5 surgeries on my right leg in 5 years and have raynauds syndrome so rehab was always on hold throughout winter while the tendon heals with possible limited blood flow. I know I have pelvic floor imbalance as my left leg is noticeably huge compared to my right leg which looks more like my arm.

I can't list my full story here. Its not the place for most of it. But after all the testing and rehab. Ive been to one pelvic therapist. Going to try another soon after the wait list. Doctor believes biopsy is a must at this point and im doing all of the research to prepare for any outcome.

Yes I know this is putting undeserved stress on me but I have adhd and can not stop my brain from it all even if I tried my hardest. I know I'm not at everyone's level here but I honestly just want to learn and be prepared. Its the only way ill actually be able to relax. I feel I need to talk to people with real experience with this and not the prostatitis crowd who are trying to figure out stretches and such..

My biggest question that I can't find an answer to, at 46 and if it turns out to be pc, im aware there are different scores and levels but is there an option to just go with RALP right away for piece of mind instead of active watch? I understand the symptoms and complications that come with it but at 46, wouldn't it be better to do it while my body is young enough to heal quicker and get through the worst of the complications?

As I type i realize that medicine is advancing quickly and there may be other options within the next 10 years. . Maybe I need to go through this and wrap my head around more when the time is right but I feel like I'm the type of person who would overthink daily and just want the cancer out so I can relax. This is definitely a byproduct of adhd which I am medicating now and in therapy for but feel they can not help me.

I apologize if this ruffles any feathers as well. I know this is super early and my heart truly goes out to every one of you dealing with this. I truly just want to learn

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u/Twister96AnotherCow — 2 months ago

Transrectal biopsy soon. New research says its safe?

Transrectal biopsy soon. Dr says previous bacterial infection risks were inflated. New research says its safe

60 yr old dr who says he keeps up with the research. Says he used to tell patients not to do transrectal but has now switched based on new research.

I've recently had a cdiff infection and still have mushy stools im trying to figure out. Tests say im colonized with c diff but no current toxins. Is transrectal something I should avoid because of my issues or should I go through with it?

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u/Twister96AnotherCow — 2 months ago

Transrectal biopsy soon. Dr says previous bacterial infection risks were inflated. New research says its safe

60 yr old dr who says he keeps up with the research. Says he used to tell patients not to do transrectal but has now switched based on new research.

I've recently had a cdiff infection and still have mushy stools im trying to figure out. Tests say im colonized with c diff but no current toxins. Is transrectal something I should avoid because of my issues or should I go through with it?

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u/Twister96AnotherCow — 2 months ago

New endoscopy results. Where do I go from here?

This is only my 2nd endoscopy in 2 years. Finally switched gi dr after never getting a plan. I was shoved off to allergists who couldn't do much.

Eos number 2 years ago was 28 and considered mild. My gi didn't even want to admit I had eoe even though I had furrows and inflammation with impactions.

I'm finally taking this seriously again. After trying different diets for 6 weeks at a time, there was no change in impactions or heartburn. I lost 25lbs and got rid of the heartburn so I though as a first test, ill eat everything and see if Gerd was the cause.

Biopsy results came back with 60 eos.. that was a dud.

Dr says dupixent is a good fit now since I have allergy induced asthma and other environmental allergies which dupixent may also help with. Im scared though. Ive had issues with enlarged lymph nodes which Dr's never took seriously after insurance denied a CT scan and or mri.. enlargement was shown on a previous unrelated mri.. im scared about the lymph cancer potential with dupixent

Should I eliminate wheat and dairy and go for another scope? Or take my chances with dupixent and see if it clears up other issues for potential better overall quality of life?

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u/Twister96AnotherCow — 2 months ago