u/AgitatedAd8950

Hey y’all! I have TMJ and I am hyper mobile, so jaw popping isn’t abnormal. However, I was existing and talking on FT and boom! Popped into a lovely subluxation. Usually it works back into place pretty quick, but it hasn’t gone back and it keeps getting stuck randomly, I’m worried about it locking or dislocating. What would y’all recommend? It’s not very painful rn so I’m trying to fix it before it hits that point.
Additionally, I have a bite guard I wear to sleep for teeth grinding/TMJ.

I finally received a kinda diagnosis: my 2nd orthopedic doctor, who is absolutely amazing at listening and understanding hEDS, said I most likely have hEDS, but due to the change in diagnostic criteria coming he didn’t put it officially as he doesnt want me to miss more fitting diagnosis of the criteria doesn’t matc.

I have several ortho issue: sacroiliac joint issues (got my belt finally and holy shit amazing), hip dysplasia, and hyper mobility. I have fainting and digestive issues as well.

while I am so grateful a doctor listened, the fact it took over a decade means I have over a decade of medical shit to make up for. and all I can think is WHY DID NOBODY LISTEN WHEN I SAID I WAS ALWAYS IN PAIN??? I wouldnt be 19 and so stressed about medical bills because my mom decides when she wants to help or not (whole other thing with her that belongs in another r/). I have literally almost by myself met my families dedu that is over $3000. Ive helped pay for bills with the help I’ve gotten, but ofc due to the pain and health issues I call off work (who is very understanding, which I am so grateful for). I was told I need an MRI, which we all know is expensive (USA if the insurance complaints didn’t show that lol) I may need surgery, that dur to hyper mobility, needs a specialist who understands hEDS/HSD.
im moving out in august and im already so terrified of how expensive things are and medical bills just add to that stress.
hyper mobility ruins my quality of life, insomnia, low spoons, brain fog (that makes me feel so fucking stupid, Ive been forgetting how to spell words and basic definitions of things), no energy ever, can’t cuddle with my boyfriend without experiencing pain, pain all the fucking time. I am TIRED. I don’t even know what it’s like to not be in pain and I just want to be pain free, even for one day. The gym was my coping skill, got that taken from me, I love concerts, I get faint and in so much pain if I dont prep and stay supported during and after, I can’t sit and do my hobbies for long or my joints hurt (same for standing). I just want affordable medical care and some relief.