r/elhersdanlos

. End of last year he started with incontinence (he will use the bathroom to pee but he will also just go without realizing he needs to in his pull-up) previously no urinary issues, followed by vomiting and regurgitating food multiple times a day (we now have this more under control) we were told he has inflammation in his stomach entrance exit and inside the stomach itself. He still can not do activities like bouncing constantly at one time or things like jumping jacks bear crawls he will throw up. Most recently his gastro said the entrance to his stomach opens easily. Scans show no gastroperisis at the time of the test. He also has hyper hidrosis of the hands and feet. He is flexible but not grossly so. I (mom) have psoriatic arthritis, great grandma fibromyalgia. I feel like the doctors are not looking at the whole page. I’m frustrated and just want his quality of life to be better. He also has autism

I have terrible slipping rib syndrome, about 2-3 times a day. of course it being out of place creates intense pain throughout my thoracic region, but moving it back into place is terrible for the supporting cartilages.

i just stared working at lowes where i’m picking online orders, most of which include heavy lifting because people would rather have us do it (makes sense). but has just made these issues worse. any suggestions or recommendations for a good brace that would support my ribs? or would that even help?

i’m a full time student working full time, with clinicals also. i’m always strapped for cash so i’d rather get some opinions before making any purchases.

looking for advice from people with similar issues until my next visit to my pcp :)