u/The-Not-Deer

Hey guys! How does PT actually help people with hEDS? I’m trying to deduce if I would benefit from it. Thank you!

Hi Everyone! I’m not a mobility aid user, but I’m curious about everyone’s experience/stories, from whoever is willing to share. Like, Why did you start considering them, how did you approach the topic with a doctor, etc. Anything y’all are willing to share is appreciated, thank you!

Does anybody have any tips for dealing with the heat, specifically with muscle fatigue?

For context, I was doing a lot of walking, and was just miserable, and moving my legs felt like I was moving through quick sand. I think the heat made it worse. I was diagnosed pretty recently, so I’m still figuring out how this has affected my body. Any tips would be appreciated! Thank you so much!

(Side note, I had my knees taped while walking, which helped with other aspects a bit :D)