u/Agreeable_Window_309

Recently I was told I have seizures and some type of seizure disorder I'm still working on getting diagnosed... which for obvious reasons means I can't drive anymore. I'm not sure where to go from here and it feels like things are falling apart. I honestly was going to just get started with van life in a few months due to some other life stuff happening recently, but now it feels hopeless. I can't do public transit for a variety of reasons (not comfortable getting into), but I have no clue what to do now. Would love any advice or anything. I'm 19 so I know I'm young and there's tons of time left for things to change, but my home life isn't great and I just wanted to live more freely.

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u/Agreeable_Window_309 — 19 days ago

Hi! I am going to start a youtube channel soon and am wanting some advice on what to expect in some areas. Some background about me is that I am an artist and am disabled and cannot work full time. I recently got diagnosed with seizures... so I'm probably going to have some spare time to work on whatever while dealing with that. I want to start posting my art and music and maybe some talk videos about disability stuff. I would like to down the road make 2-3k per month from my videos, but not sure how long it will take to get there. I plan to post every week 10-18 minute long videos and maybe have an extra post in a month to make it 5 videos a month. If I keep around that pace and if my content is entertaining ofc how long will it take to get monetized and start making some good money? I'm so lost on what to expect and so thought I'd ask here for advice.

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u/Agreeable_Window_309 — 21 days ago

I was suspected of having seizures. For reference since I was 13 I've had short bursts of full body shaking (or my right side tensing up and shaking) normally with an odd feeling beforehand that has only got worse over the years. In the past few months the shaking has grown from 3 seconds to 9 seconds with several minutes of a distressing feeling beforehand (ranging from disabling dizziness, vision issues, feeling weird pressure, or other weird feelings before). One of my doctors thought it might be focal aware seizures but wasn't sure. Jump to now where I had a 48 hour long EEG and they picked up no epileptic activity and said it was non epileptic seizures and was triggered emotionally. I've been in therapy for a long time, I know what triggers my anxiety and am very self aware and these seizures will happen for literally no reason except for intense breathing or randomly. I of course understand if it's not epilepsy but am just thinking I'd check here to see what the chance of if it is some type of focal aware seizure of it not being picked up after having several episodes while doing the EEG. I understand it is probably PNES, but I seriously don't think there is a trigger I wouldn't know of (or why it doesn't happen when I'm stressed). I don't want to say the doctor is wrong, but he was very dismissive of my concerns. But I want to know if there is a chance and how high it is they may have missed something.

(other note in case important is I tend to have the full body shakes 6-15 times a day)

Edit: Forgot to mention I'm awake and aware during the seizures, also that I have had many concussions in the past from sports when I was younger and two in the past 2 years

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u/Agreeable_Window_309 — 23 days ago

Hi! I’m currently about to start college as an artists but one of my dreams for years is to either convert a bus or van into a home and just travel and be around nature. Though I’m wondering if it’s worth it and what I need to know while planning for it. I have 4 years to prepare to go full time. I plan to have a cat and/or dog with me, I want my van to have a toilet and shower, and I want to really make it look nice and have a cottage vibe. I’m wondering besides the van how much I should save up and what is a good monthly budget to live more than comfortably? I love traveling and going places, doing new things, and just exploring. I don’t have that many belongings, and I don’t like having much tbh. I could probably pack up everything besides clothing that I care about within two backpacks and not look back. I also want to do vanlife to allow me to pay back student loans easier after school. I’ll probably be making 2k to 2.5k loan payments per month after school and so vanlife costs would make it easier to manage. I‘ll probably be on my parent’s car insurance so I’m not worried about insurance costs. I’m open to any advice, from tips on building a van and resources how to get started, budget, traveling in a van, where to sleep at night, how long it’ll take to build the interior of a van and the costs, really anything and everything that seems important. Like I said I have 4 years to plan and save up and start building, and will probably spend my breaks from college working on the van.

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u/Agreeable_Window_309 — 24 days ago