u/Alternative-Town9407

Has anyone done hyperbaric oxygen therapy? My surgeon cleared me to do it, I had surgery 9/16 and it’s great for wound healing and post surgery recover.

I really want to start it, but I’m nervous about using Hollister or coloplast products in the chamber.

Some of them say they are flammable and I called both Hollister & Coloplast suppliers and there are no “studies” on using them in the chamber so they “can’t recommend them”.

My surgeon said I could use it for healing but I would have to ask Ostomy clinic, HBOT director and ostomy suppliers if it’s safe.

I contacted them all and they said to ask a different person so no one really knows.

Can someone please tell me if you’ve done HBOT with an ostomy; and what supplies you had when you went in so I know it’s safe?:) right now I use Hollister Ceraplus one piece 8091 and the Ceraplus adapt barrier ring. Thank you!

Just had surgery 10 days ago.

No matter what I do it’s SO watery. Comes out like juice.

I’ve been trying everything to thicken.

Have been a ton of eating bananas, rice, toast, pasta, applesauce, tofu, potatoes, rice cereal.

Tried immodium - doesn’t work at all for me.

Pyslium husk capsules helped some, but can cause blockages so have to be careful. Also made me cramp a bit.

I’ve been getting so dehydrated so fast everyday that I have to go to wellness centers and get IVs.

I’ve had 1000-2000mL in output daily. I’ve notified doctor and we’re trying everything. Just weird because in the hospital the first 5-8 days it was normal.

Any advice appreciated. New to this.

How long did it take you to get your reversal surgery, and what were the reasons why?

I just got an end ileostomy; I am almost 2 weeks post-op (Crohns disease, 29F). So far I'm doing extremely well, I'm eating so much (I was on a liquid diet for 2 years). (I am almost concerned with how well I am doing and worried I am overdoing it or doing something wrong post op!!)

The full anastomosis was too dangerous for me to do because I was on steroids, severely underweight and malnourished, and am extremely anemic.

My surgery was almost 5 hours long and I was so dilated some of my intestines moved to my back and my surgeon literally had to "unstick" it from my back and move them back in place. wtf.

Once I gain 15lb and get off prednisone they will do the reversal.

Any advice for a newbie of how not to mess things up? What were your reasons for having the end ileostomy/ostomy, and are you planning on doing a reversal and when?

Just curious of your experiences, would love any advice for a newbie!

P.S. Soooo grateful to have this reddit community!!!! It's truly so supportive! Having an ostomy isn't so bad, I'm so grateful it saved my life.

Just got a ileostomy for the first time (I’m still in the hospital), Crohn’s disease, 29F.

I know everyone is different, but can you guys give me a list of what you know for sure triggers you and doesn’t/goes down well? It would be nice to know from others especially the first few weeks that I’m recovering!

Thank you for your tips!

Hi all!

I need food suggestions asap. I am SO limited because my flares have been SO bad and I desperately need to gain weight.

I'm mostly dairy free, I can tolerate a little dairy, like in candy or chocolate but I don't do large quantities of it like milk or yogurt.

The nutrition formulas and shakes are a complete NO NO for me. I think it's something about the high processing or something, not sure. I cannot tolerate oil (coconut, avocado, olive, etc.)

I try not to do a TON of sugar since it activates sibo, but i can do it in small amounts (20-30g a day).

Here's what I eat now:

1. 2-4 tbsp of PB a day (can't tolerate more than that)... thinking about trying nutella too?

2. Unlimited coconut malk (has 0g of fiber, pretty much the only milk I can find that has no fiber)

3. Mori-Nu Silken Tofu - 0g of fiber, has to be the super silken/soft kind! It's not great taste wise but i eat it with dressing and it has 17g of protein per box :) I usually have it with peanut dressing/Asian sauce and it tastes like an Asian inspired dish!

4. Instant mashed potatoes/potato flakes. These have less fiber than doing real mashed potatoes. I usually eat with butter/sour cream for calories.

5. limited Icecream, maple syrup, honey for calories! but not too much bc of SIBO/inflammation it creates.

6. The vegan forager unsweetened yogurt has only 1g fiber, the COCOjune passionfruit yogurt has 1g of fiber. Those are the only two yogurts I do.

7. Once in a while I can tolerate caviar, but all other meat/fish products are a NO. These don't really have calories, it's just micronutrient heavy which is good.

Any suggestion that works for you guys?

Has anyone tried marshmallows or candy bars? They are 0-1g fiber and pretty much dissolve in your mouth, I'm always nervous about trying something new though in case I flare. Like marshmallows sound amazing texture wise but I'm so nervous.

Side note: supplement TUDCA and Hyperbaric oxygen therapy have been IMMENENSLY HELPFUL for my gastroparesis and gut motility. Hope it helps you too!!!

Have any of you done hyperbaric oxygen therapy with a bag? I want to do it after my surgery but I'm nervous.

I'm having a bowel resection for Crohn's disease on July 15th. They will probably take out 12-15 inches. I failed Humira, Skyrizi, and Entyvio. Plan is to try Remicade after surgery.

Surgery risks: I am 96lb and malnourished. I failed TPN and had a catastrophic reaction to it, I can't tolerate most of the protein shakes/elemental formulas. I'm on 14mg prednisone and have unstable blood pressure. I've been on prednisone for over a year.

I will have a temporary loop ileostomy and probably get another surgery to get it removed in 3-4 months and heal in the meantime.

1. Should I do an epidural?

2. How should I prepare for the loop ileostomy? I'm SO scared and have no idea what to buy, what to expect, or how my quality of life will be. I really need advice on this. Any youtube videos I should watch? Do you have a checklist of what you would buy? How often do you change the bag? Will I have to learn to do this in the hospital or will they do it until I leave?

3. Any other tips? Dealing with a lot emotionally right now, just ready for this to be over and start healing again.

Love this community and thank you for all of your help. <3 Having an ileostomy was always my worst fear but this community gives me hope it will be okay.

I'm having a bowel resection for Crohn's disease on July 15th. They will probably take out 12-15 inches. I failed Humira, Skyrizi, and Entyvio. Plan is to try Remicade after surgery. (29, F)

Surgery risks: I am 96lb and malnourished. I failed TPN and had a catastrophic reaction to it, I can't tolerate most of the protein shakes/elemental formulas. I'm on 14mg prednisone and have unstable blood pressure. I've been on prednisone for over a year.

I will have a temporary loop ileostomy and probably get another surgery to get it removed in 3-4 months and heal in the meantime.

1. Should I do an epidural?

2. How should I prepare for the loop ileostomy? I'm SO scared and have no idea what to buy, what to expect, or how my quality of life will be. I really need advice on this. Any youtube videos I should watch? Do you have a checklist of what you would buy? How often do you change the bag? Will I have to learn to do this in the hospital or will they do it until I leave?

3. Any other tips? Dealing with a lot emotionally right now, just ready for this to be over and start healing again.

Love this community and thank you for all of your help. <3 Having an ileostomy was always my worst fear but this community gives me hope it will be okay.

Having a temporary anastomosis / end ileostomy for 3-6 months while I heal.

What should I look out for? What are the things I can and can’t do?

Can I work out again and sweat? Can I sauna? How’s sex life?

I’m so nervous but I know my body needs it :( send prayers and so grateful for this community!

Has anyone here gotten a bowel resection being severely underweight and malnourished? I’m 98lb (f) and intolerant of TPN. I’m worried about the surgery risks and just having a lot of anxiety before my surgery in two weeks, especially since after surgery most people lose a ton of weight. I don’t have any to lose

I’m getting a bowel resection in two weeks. I am F, 98lb, and in my late 20s. The surgeon told me if I don’t gain weight (5-10lb at least) before the surgery it’s very risky, so they put me on TPN. I can barely tolerate food orally, at most I can have 800 liquid calories a day. I’ve been on the TPN for 2 weeks now, and I lost 2lb on it and my health has declined drastically. They tried taking out the lipids and I tolerated it maybe 15% better, but I am in extreme pain with the TPN, and whenever I take a one day break from it all of my pain goes away. Has anyone else had a bowel resection being severely underweight?:( I’m so worried because I don’t wanna lose more weight after the surgery :( I’ve been flaring for 2 years and on a liquid diet for 6+ months. I’m so tired and defeated😔