r/Gastroparesis

I’ve tried literally every prescription and OCT Aavailable with no effect. Also tried ginger (various forms), peppermint (various forms), alcohol pads, hard candy, ice packs, wrist bands ice chips, I may be missing some things I tried but I’ll add them if they get suggested

Oh, I also have the gastric stimulator at highest level. I really need this nausea under control bc it is greatly affecting my mental health

for those of you who do vomit with your gp, what exactly is it that’s making you vomit? my drs try to work on nausea so much, but nausea isn’t what makes me throw up my food. i can physically feel my stomach is full, i cannot belch and i feel the food right at my throat and my stomach feels stretched out. i just bend over flex my stomach muscles and the food pushes out. i do get nauseous at random times, and my nausea does make me throw up at times when im empty but the fullness and undigested food sitting there and causing my heart rate to go up and i get extremely hot is what makes me have to throw up. i just feel like this issue isn’t getting pinpointed like nausea relief is great but that’s not gonna help my stomach digest the damn food if that makes sense. im confused how other people are able to eat at all. i know our cases are different but it makes no sense to me and i couldn’t imagine waiting for however many hours it would actually take for my stomach to digest some things and the pain i’d be in without throwing it up. hours and hours after ive eaten theres no way i could eat anything else unless i threw up was my stomach was already full of. idk if im eating too much and that’s a main issue or what it is but i just wanna know if yall are like this or what makes you actually vomit

I have extremely severe constipation. Constantly. Since I was a child. I've never known a life without constipation. It's gotten to the point that I believe I tore something. I had a bowel movement yesterday and it was pure torture. Nearly passed out. There was a lot of pain and bright red blood. I'm pretty sure something tore. I'm still having some light bleeding today. I know I should see a doctor about it. I just can't, literally. My gastroenterologist is booked out til 2027 and at my last appointment, he recommended Senna and Magnesium Citrate. I've tried Senna before, it doesn't work. I take Linzess, it doesn't work. I've tried Miralax, Motegrity, fiber (before my gastroparesis Dx), and more and none of it works. Does anyone else here deal with severe constipation? What do you do? I don't want to ask the constipation subreddit(s) because they'll just say to eat fiber and if I hear that recommendation one more time I might actually lose my mind. I'm not asking for medical advice, just to know I'm not alone and if something has worked for you. I personally don't take any meds/supplements without my doctor's approval/recommendation.

Almost forgot to add, I go less than once a week on average. I track my bowel movements closely with the Happy Poop app (not an ad, just wanna share if anyone else was looking for a good, subtle app for it). It says I go 0.48 times a week on average according to what I've recorded. That sounds about right to me too.

Hi everyone. I’ve had gastroparesis since childhood. Initially it seemed related to my severe migraines and would be a precursor to a headache but as the years went on i noticed I’d have flares of delayed stomach emptying on its own. Sometimes a couple days. Sometimes a many weeks

I’ve never had treatment for it and just lived with it. I have other issues treated by specialists (Lupus/UCTD/Hashis/Etc) and gastroparesis just wasn’t a priority. My rheumatologist believes it’s related to my autoimmune problems so I didn’t seek an individual specialist for it.

With my history out of the way I’ll get to the point. I’ve been dealing with a flare now for a few weeks. It’s making me miserable. Food and liquids sit in my stomach every day, make me feel bloated, I can’t lay down to sleep at night even when it’s been 6-8 hours after my last small meal. But what’s most concerning is that the meds I need to take daily don’t seem to be digesting. They range from Plaquenil, pain medication, to antibiotics I’m currently on for an infection. I can tell they’re not digesting in a timely manner based on my pain medication becoming ineffective.

Last night I wound up with a migraine and I’m at the end of my rope. None of the meds I took for it were getting into my system and so I suffered so tremendously. Mine are really severe and labeled on the cluster spectrum. Mentally they take a terrible toll and leave me feeling traumatized, hence why I’m posting. FYI I realize there are meds that aren’t in pill form but those are contradicted for me because of differing health issues and risks.

The chicken salad I ate yesterday afternoon is still in my stomach about 20 hours later. I fear the sulfur burps will start soon. I need my meds to digest and I need my stomach to start emptying again!

I see my primary next Wednesday. I would appreciate any of your suggestions for tests/treatments/referrals I should ask of him.

I’d also love to know what’s the usual treatment for delayed stomach emptying? Are there any tricks for self care that can help move things along? Or end a flare? I’ve been eating like a bird and feel like I’m going to burst and need my meds to dissolve and get absorbed!

Thank you!

Edit: Just to be clear since I’m realizing causes can differ and perhaps need different treatment, my gastroparesis comes in flares and is a result of one for my health issues that messes with the autonomic nervous system. My stomach and digestion is fine outside of these flares

Anyone had added motility issues or it made their nausea , constipation , GI issues worse? Even at the lowest dose possible?

Dr wants to start Buspar due to the crippling anxiety at a low dose. But it’s not the gastro writing the script. I don’t think most psych drs are aware of how a lot of medications affect us.

I had a gene sight study done- I’m slow COMT met / Met variant. So limited on lots of psych meds.

Thanks

are you “hungry all the time” but you really arent

Has any one else had luck with Sun Fiber. It seems to be helping with constipation. However, I’ve had a slight uptick in diarrhea. Just wondering what your experiences are.

I started taking the Wegovy pill after 1 week and got severe vomiting after eating a light meal. Then vomited again after a few hours sipping water and tea. My in-laws suggested that it was gastroparesis and I reach out to the doctor who prescribed it.

Of course I'm doom spiraling on reddit, but this was a thought I had after reading that this pill isn't for people who have gastroparesis (which I didn't... but who knows?)

They also told me to not take the pill tomorrow to let everything "wear off." I'm reading people saying it's permanent so that freaks me out too.

My dr has been wanting me to go to pelvic floor pt for years, but there wasn’t one that overly close by. Recently a new one opened up about a half hour away and I made an appointment. I’m so nervous I’ve heard the horror stories. Anyone have good experiences with it and or what exercises do they make you do? Someone told me they put a tens unit around your muscles down there and it just seems so embarrassing😅

• Receive promotional e-mail about telehealth service through my medical insurance
• Me: Sure, why not, let's see if telehealth can actually do anything to help me
• Sign up for service, plug in personal info, health details, credit card info
• Hop on telehealth call, guy says he can't do anything for my condition and that I need to see a doctor in-person
• Ask him if they're still going to charge me the $59 for the visit
• He says no
• We wrap up the call
• My credit card immediately gets charged $59

Now I have to waste a ton of time reporting the fucking problem to my employer and my medical insurance provider, and get reimbursement for the $59 they stole from me.

I fucking hate our medical system. I fucking HATE it. It's absolutely fucking USELESS.

I've been tracking my flares and symptoms for 6 months and they are heavily influenced by my menstrual cycle. After discussing with my gyno we decided to try progesterone only continuous, no placebo. I know it can worsen symptoms for some but I'm interested in the positive experiences. Has it helped, did it last, did you end up having laproscopic surgery?