Is there any hope?
I was diagnosed last year with severe gastroparesis. I've been chronically constipated my entire life and have been dealing with GP symptoms for years. I just never noticed a pattern or, maybe, never cared enough to figure it out. Linzess stopped working. Motegrity gave me 3 weeks of hell and then stopped doing anything. Botox didn't work. My doctor refuses to put me on Reglan for fear of developing dyskinesia. I need twice weekly IV fluids and can't eat more than once a day. I'm in pain 24/7, none of my clothes fit because I'm so bloated all of the time, and it feels like there isn't a food out there that won't make things worse. I feel ugly, disgusting, uncomfortable, and exhausted. There's constantly air trapped in my upper abdomen that doesn't go anywhere because I also have R-CPD. Constant, dull pains in my stomach area. Sharp, stabbing pains randomly throughout the day. Gastropathy from chronic NSAID use and iron tablets, but no one will take me off of these medications and the hematologist refuses to authorize iron infusions. I'm suffering and miserable. I can't eat the foods I want to eat, wear the clothes I want to wear, or even do the things I want to do. I've tried the OTC stuff and nothing works. Miralax does nothing unless I down the entire 510g bottle in one sitting. Gas-X makes the pain 100 times worse. Peppermint oil doesn't work. I just want to be comfortable in my own body. I really don't want to hate it, but I do. It hurts, it's ugly, and nothing I do works.