u/godsgrave1984

I have extremely severe constipation. Constantly. Since I was a child. I've never known a life without constipation. It's gotten to the point that I believe I tore something. I had a bowel movement yesterday and it was pure torture. Nearly passed out. There was a lot of pain and bright red blood. I'm pretty sure something tore. I'm still having some light bleeding today. I know I should see a doctor about it. I just can't, literally. My gastroenterologist is booked out til 2027 and at my last appointment, he recommended Senna and Magnesium Citrate. I've tried Senna before, it doesn't work. I take Linzess, it doesn't work. I've tried Miralax, Motegrity, fiber (before my gastroparesis Dx), and more and none of it works. Does anyone else here deal with severe constipation? What do you do? I don't want to ask the constipation subreddit(s) because they'll just say to eat fiber and if I hear that recommendation one more time I might actually lose my mind. I'm not asking for medical advice, just to know I'm not alone and if something has worked for you. I personally don't take any meds/supplements without my doctor's approval/recommendation.

Almost forgot to add, I go less than once a week on average. I track my bowel movements closely with the Happy Poop app (not an ad, just wanna share if anyone else was looking for a good, subtle app for it). It says I go 0.48 times a week on average according to what I've recorded. That sounds about right to me too.

This is so embarrassing to me and I don't know how to deal with it. I have not been diagnosed with ADHD. I have strong suspicions, but I don't even know the first step to getting evaluated and it sounds so exhausting. On that note, I do have either hypersomnia or narcolepsy (doctors cannot make up their minds). I started on Adderall 10mg twice daily about two weeks ago and it ended up affecting me differently than I expected it to. My head is quieter, I'm calmer but not overly sleepy, and my daytime naps have gone from 2-4 hours to 20 minutes. I've always been an incredibly anxious person and cannot relax at all, and I mean that so literally. Adderall has given me the ability to relax. Like, I can watch a TV show without feeling stressed about being productive 24/7. Anyway, I've told some friends about it and, me being me, have been quite excited. Which I guess comes across as too much. I have a friend who's made a couple comments now basically saying that I like it so much because I'm getting high. If this is getting high, then it's incredibly disappointing because I feel like how I should normally. I'm not experiencing euphoria, I'm experiencing contentment. Like I finally found a missing puzzle piece that fits into place. I still don't know if I have ADHD. Maybe I don't. I just don't like the implication that I'm taking the medication for any purpose other than the one intended. I get very anxious regarding medication, especially Schedule II's, and already had some trouble starting it. I don't know how to convince my friend that while I feel better, I don't feel high.

Content Warning: Talking about diarrhea. I know a CW for this probably isn't necessary in this sub but it's, like, the only thing I'm gonna be talking about.

Hi all. Not here looking for medical advice, just whether or not this has happened to anyone else and, if so, what you did. I've tried a lot of stuff. I won't get into all of it, but I have been on Linzess for probably close to 2 years now. Doesn't do much by itself. Two months ago I was prescribed the generic Motegrity. I expected diarrhea for the first week or two and forced myself to hang in there. Unfortunately, I am still getting liquid diarrhea twice a week and this is pretty much the only bowel movement I'm having. Sometimes I might have a solid bowel movement, but I'm still only going twice a week and I don't feel great. Prior to the Motegrity, I was going maybe once a week. Before the Linzess, it was about once every 10 days. I get dehydrated so easily without having diarrhea, so I've been really struggling.

So basically, I'm having more frequent bowel movements but they're pretty much torture. I can't leave my hours for the first couple hours after I take my meds. I already struggle with chronic dehydration so it's harder to keep up with this too. I don't want to go back to severe constipation but I don't know if I can keep doing this either. Did Motegrity fail for anyone else for this reason? I never had any of the other side effects such as headaches. Just diarrhea.

How many people here have both? How has endometriosis affected your bowel movements? I just got diagnosed yesterday. They found lesions all over my pelvis, bladder, and rectum. My doctor suspects my chronic constipation and painful/bloody stools could be caused by the endo (or that it's at least contributing to it). Just wondering if bowel movements got any easier after excision but with gastroparesis.

Just got diagnosed with "extensive stage I endometriosis" and the surgeon found it in my rectovaginal peritoneum as well as my perirectal peritoneum. There wasn't extensive scarring and the tissue is superficial, but apparently it spread into an uncommon area? It just seems contradictory to be both stage I and infiltrating where it did. I plan on talking to my doctor about it, just wanted to get some personal experience and such.

I was diagnosed last year with severe gastroparesis. I've been chronically constipated my entire life and have been dealing with GP symptoms for years. I just never noticed a pattern or, maybe, never cared enough to figure it out. Linzess stopped working. Motegrity gave me 3 weeks of hell and then stopped doing anything. Botox didn't work. My doctor refuses to put me on Reglan for fear of developing dyskinesia. I need twice weekly IV fluids and can't eat more than once a day. I'm in pain 24/7, none of my clothes fit because I'm so bloated all of the time, and it feels like there isn't a food out there that won't make things worse. I feel ugly, disgusting, uncomfortable, and exhausted. There's constantly air trapped in my upper abdomen that doesn't go anywhere because I also have R-CPD. Constant, dull pains in my stomach area. Sharp, stabbing pains randomly throughout the day. Gastropathy from chronic NSAID use and iron tablets, but no one will take me off of these medications and the hematologist refuses to authorize iron infusions. I'm suffering and miserable. I can't eat the foods I want to eat, wear the clothes I want to wear, or even do the things I want to do. I've tried the OTC stuff and nothing works. Miralax does nothing unless I down the entire 510g bottle in one sitting. Gas-X makes the pain 100 times worse. Peppermint oil doesn't work. I just want to be comfortable in my own body. I really don't want to hate it, but I do. It hurts, it's ugly, and nothing I do works.