u/poopywampus

Hi everyone,

I’m a 35F who was diagnosed with gastroparesis in 2017. About a year ago, I had an Enterra Gastric Neurostimulator implanted because I had chronic nausea that just wasn’t responding well to medication.

Overall, the device has honestly been amazing. It’s helped my nausea so much, and up until January 2026, I hadn’t had any issues with it.

Around January 2026, I started getting these weird stomach cramps. At first they were pretty mild and only happened when I was walking. They would go away pretty quickly, so I didn’t think too much of it. Over the following months, though, they started happening more frequently and became more painful.

It’s hard to describe the pain, but it seems to stem from the area where the device is implanted. The closest thing I can compare it to is an air bubble that can’t escape, except the pain is absolutely excruciating. At its worst, it’s honestly a 12/10. My partner has never seen me in this much pain, and I’ve been through two ACL surgeries.

I told my GI about it, and she ordered X-rays to make sure the device and leads looked okay. Everything came back normal. She prescribed hyoscyamine and muscle relaxants, which I thought were helping for a while.

Fast forward to a few weeks ago, and the pain became unbearable. I was literally crying because it hurt so badly. I couldn’t walk or even breathe normally during the episodes. Heat was the only thing that calmed it down enough for me to eventually fall asleep.

Then it happened again yesterday and completely ruined our July 4th plans. I threw everything I could think of at it—hyoscyamine, muscle relaxants, Tylenol, Advil, and a heating pad—but nothing touched it. The pain lasted for hours and is actually still continuing today.

Has anyone with an Enterra device experienced anything like this? If so, what ended up causing it? Was there anything that helped?

I’m honestly scared they’re going to tell me the device has to come out because it’s been such a lifesaver for my nausea. I have an appointment with my GI in a few weeks and definitely plan to bring this up, but I was hoping to hear if anyone else has gone through something similar.

Thanks in advance!

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Hi. I just got diagnosed officially with POTS and hEDS a few weeks ago. I have a long history of chronic health issues, including MCAS, celiac, chronic migraine, and gastroparesis. I’m brand new to the world of POTS and hEDS and there’s a lot of information out there. What are a couple things that were game changing for you with flares and symptoms? No stupid answers. I have my first appointment with my PCP tomorrow to talk about her suggestions, but doctors suck so I wanted to ask here first.

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