u/mistycheddar

hi so I'm hoping to try dating in the near future but I'm worried there's no point trying or that it'll just end in disappointment for everyone. I'm high risk for infections and whilst I've found a lifestyle that works and doesn't interfere with any of my interpersonal relationships (non romantic/sexual), obviously there's not really a good way to mitigate/accommodate for kissing (particularly on the lips) except for not doing it. so I'd be entering the dating pool with a baseline of no kissing (who knows about in the future). are there even any people out there who would want to go on a date with someone like that? would it just upset everyone if I was trying to meet girls? (I would like to make more sapphic friends too though like if I went to queer socials)

I love the sound of MRI machines. they're very good for harmonising and composing to as they provide a rhythm and pitch that remains constant for a few minutes and then changes. they are also very comfortable as you get to lie down and be held in place, it's all nice and cozy. I find them highly enjoyable. the headphones do squash the ears a bit but it's well worth it for the nice ergonomic block you get under your knees. I love MRI scans and cannot think of a more pleasant hospital visit.

the only downside is getting up from them makes me pass out unless I do it really slowly. also I would like to clarify this post is about MRI without contrast. I've heard very bad things about contrast but they've never actually managed to find my veins so I'm afraid I do not have a personal opinion on the matter.

it was boasting about 'free range british beef' and then a cow popped up and it really startled me and then made me realise how much my mindset has changed since going plant based. like I saw the cow and I was like, oh hey, a cow! WAIT THEY'RE ADVERTISING PEOPLE EATING THE COW-

but yeah it's my one year anniversary of switching to plant based. I'm not perfect by any means, I have to have dairy in my medical formula (which really pisses off certain vegans lol) and I have been unknowingly given food with meat in it TWICE in the last few months despite saying I don't eat meat... but overall I love not eating animals! makes it so much nicer watching the farm animals on a train journey when I know I'm not killng them :)

I'm so tired..

I'm disabled by multiple chronic illnesses and trust me when I say my body has put me through hell. but by some miracle and with some extra time, I managed to graduate highschool (equivalent) recently. during my final year (I was studying STEM in school) I decided to pursue my dream in the arts. I worked my ASS off as much as my energy would allow. it's the one thing that keeps me going.

but the INACCESSIBILITY! now I don't say this to brag but to give a general idea of where I'm at - I have only one year of proper training and I managed to get offers for several university programmes. yet despite this, I haven't managed to be in a single show, or even backstage or in the creative team for a single show. why? inaccessibility. I can't access most places whether that is productions or training that my peers can. I actually got a place at my dream school, a top arts school, and I was so excited until I found out that it was too physically inaccessible for me to attend. why is it that not being able to walk up a flight of stairs closes off 99% of the world?

and then there's discrimination. some people just don't want to accommodate for me. I've even been told to just give up because I'll never succeed as a wheelchair user. been rejected without consideration because of my disability. I'm not giving up on my dreams, mostly because I couldn't imagine what I'd do otherwise, but it's just so upsetting to watch other people get so many opportunities and make so much progress whilst I'm stuck here. and it's so upsetting when there are people who want to help and people who are making an effort but the infrastructures and systems are not designed for accessibility!

p.s this was originally posted on another sub but was auto removed due to low karma on that sub so if that is eventually approved and you see it twice that's why! I'm not just plastering it everywhere I just need to get it out there.

I'm so tired..

I'm disabled by multiple chronic illnesses and trust me when I say my body has put me through hell. but by some miracle and with some extra time, I managed to graduate highschool (equivalent) recently. during my final year (I was studying STEM in school) I decided to pursue my dream in the arts. I worked my ASS off as much as my energy would allow. it's the one thing that keeps me going.

but the INACCESSIBILITY! now I don't say this to brag but to give a general idea of where I'm at - I have only one year of proper training and I managed to get offers for several university programmes. yet despite this, I haven't managed to be in a single show, or even backstage or in the creative team for a single show. why? inaccessibility. I can't access most places whether that is productions or training that my peers can. I got a place at my dream school, a top arts school, and I was so excited until I found out that it was too physically inaccessible for me to attend. why is it that not being able to walk up a flight of stairs closes off 99% of the world?

and then there's discrimination. some people just don't want to accommodate for me. I've even been told to just give up because I'll never succeed as a wheelchair user. been rejected without consideration because of my disability. I'm not giving up on my dreams, mostly because I couldn't imagine what I'd do otherwise, but it's just so upsetting to watch other people get so many opportunities and make so much progress whilst I'm stuck here. and it's so upsetting when there are people who want to help and people who are making an effort but the infrastructures and systems are not designed for accessibility!

sorry I know this is very specific. I have a condition called gastroparesis and it is quite bad, so I am on a very restricted diet. I try to be plant based in diet whenever possible (and vegan in lifestyle ofc) and I'm on the hunt for some new foods to try and see if I can tolerate! my worst triggers are fat and fiber as well as things that are heavy or dense. I struggle with volumes so things like soups and salads are pretty impossible too.

some of my safe foods (for example) are tofu with noodles and some sort of sauce, white bread or mashed potatoes with a small amount of vegan meat and/or something like hummus or blended sauce, a banana cocoa smoothie, or vegan yogurt with fruit purees.

ideally recipe suggestions could be prepared in advance (by my carers) and then easily reheated or had cold! I can only eat very small portions so anything that's best consumed fresh is unfortunately not very feasible.

edit- forgot to say I also have autism and strong flavours like balsamic vinegar or olive oil or nutritional yeast can be tricky but I'm happy just eating things bland or with a bit of soy sauce/vegan cheese!

for the last 3 years I have used the cross trainer machine every single day, especially for the last year as even with the cross trainer it's got bad enough I have to be on a restrictive diet with lots of semisolids/liquids. if I eat = I use the cross trainer. if I'm out and have solids it's intense agony and the food doesn't go down till I'm back home with my cross trainer. but I haven't left the house much also, so not a big problem...

until I had a traumatic dislocation of the knee last week that has left me with patellar maltracking to the point where I can't bear walking or using the cross trainer. it's like overnight my food and water intake has plummeted. I feel awful 24/7. I'm weak, my head hurts, constantly nauseous and a tiny breakfast takes until dinner time to move through my stomach.

isn't this the perfect time to be in the middle of a complaints process because I was denied any care or medical intervention by my GI doctor (who also flat out lied about my symptoms to say I have functional dyspepsia instead of gp which was just so helpful /j) this is just brilliant isn't it! /j

what's the problem if it doesn't hurt.. um, you can't walk on a subluxed joint?? duh?? like pain is just a sensation anyway why isn't the yuckiness of a joint out of place worthy of being taken as seriously if it's just as unbearable. and the joint is just as unusable.

edit- forgot to say, I am looking for any and all advice pls!

had my first ever knee dislocation (probably, but can't confirm because they won't mri) last week as an already disabled ambulatory wheelchair user - this bit is important because my house is inaccessible and so are the exercises I MUST do for my comorbid conditions. doctors at urgent care didn't give me anything, GP couldn't give me anything, hoping to see the local physio for an assessment in minimum 3 weeks. I can't straighten my leg properly so can't walk or do exercises, been bum shuffling up and down the stairs half the time. you might be wondering, what about my doctors/physio for my existing condition that put me in the wheelchair? don't have em. literally, no treatment available on the NHS.

so yeah, I knew NHS care was lacking for chronic conditions but this is a new low considering it's acute. apparently because I'm already a wheelchair user it doesn't matter too much (huh?). I'm looking at the donjoy (tru pull lite or lateral j patella) or bioskin (patella stablizer or hinged knee brace) braces, I'm willing to spend however much it costs but I need my knee function back. the problem is my knee is currently clunking/getting stuck up and down rather than side to side, so I don't know how much they'll even help. if anyone has advice or similar experiences pls lmk.

this is such a disaster lol. I also dislocated it doing absolutely nothing and I'm not even twenty yet, kinda laughable. bloody hell!

I would LOVE to see him as ocean but going out in the heat is dangerous for me and it's giving me so much fomo. if anyone is filming it or knows of anyone filming it or knows of any recordings pleaseeeeee let me know!

p.s dm requests are locked shut because I won't give my gov ID to random third parties BUT I can send you a request if you just say anything in the comments (ik link sharing isn't allowed so just give me a sign any sign lmaooo)

hadestown is one of my fav shows (and therefore fav things on this planet) ever and means a LOT to me. I was actually going to be in the teen edition but it got cancelled. then my old school announced they were doing it, but I had already changed schools because of their negligence. recently I auditioned for another production and was rejected. I can't speak for certain for this audition but as a disabled person with visible medical devices, I am almost always rejected/not considered on account of that. anyway long story short I'll be too old for the teen edition soon but it's my dream to be in hadestown one day. is there any hope of the non teen version being released for local theatres? not that they'd cast me anyway LOL but at least I could be delusional.

I just wanted to share my experience so it's on the sub, I know I would've benefited from hearing this, I think it is quite rare but it did happen to me so who knows if it could happen to others.

I was perscribed prucalopride for my gastroparesis. initially I took 1mg but it gave me horrific headaches and constant pooping that did not cease in a bearable period of time, so I reduced my dose. this is common, and others on this sub talk about it a lot. and it did help to go to 0.5mg!

I was doing okay for a few days, increased appetite, a good amount of pooping, headaches back to normal. but then I noticed my dreams started getting unpleasant. and looking back I wish I had recognised this sooner. they weren't nightmares per se, but they felt long and drawn out and uncanny and vivid but in a bad way. I woke up uneasy and uncomfortable. then, I lost my special interests and hyperfixations. I genuinely desired a 9-5 office job (I'm a musician). my constant stream of thoughts reduced to 1 single thought at a time and I couldn't focus at all. at this point I did contact my doctor but couldn't get through, and my GP wouldn't speak to me about it.

I kept taking it - WHICH I SHOULDN'T HAVE! I then started getting hallucinations of bugs. it was terrifying so I stopped taking it immediately. unfortunately for me, the hallucinations seem to be wired into my brain now and come back every time I'm stressed. the other side effects have ceased. I never did get to talk about it with my doctor.

this is not me saying nobody should take the med. but considering these side effects aren't even on the leaflet... I think people should be aware, and if these symptoms happen they should talk to their doctor if possible or evaluate if they should keep taking it if not.

ok serious post now. I've been struggling with this question for a while. what counts as tolerating it? is it if I'm able to function without debilitating symptoms after a meal? is it if I can keep it down? I have an elliptical/cross trainer machine, that I am able to use if the conditions are perfect (comorbidities), that allows a certain amount of food to move through my stomach. if I don't do it god knows the food will sit there for the whole day. but if I say to my doctor, I can tolerate a small plate of rice and tofu, that doesn't account for the fact that I have to do at least 10-20 mins of elliptical/cross trainer afterwards or I'll feel awful and everything will traffic jam at the top of my stomach...

that's the post. whenever I'm wondering how far along my food has moved, I just press along my stomach from the top until I get an exquisite tasting menu of my previous meal. fine dining indeed. I mean, who needs to be a squirrel and store food in your cheeks when you can just store it at the top of your stomach until you next want to eat something again! life hack y'all

edit- forgot to mention I can ALSO make a DIY trampoline by eating any actual portion of food and then drinking anything and it'll bounce right back up, still cold! if I don't laugh I'll cry...