Need some Advice
Hi everyone, I’m looking for advice and guidance, especially when it comes to applying for SSDI.
Last October 2025, my life changed completely. I was diagnosed with Guillain-Barré Syndrome (GBS). It started when my calves went numb, and within 24 hours, the numbness had spread all the way up to my thighs. While I was admitted to the hospital, it continued spreading up to my collarbone. I developed severe tremors, lost the ability to walk properly, and was wheelchair-bound for a while.
Currently, I have to use a cane to get around. If I try to do too much physical activity, my back gets incredibly sore. Early on, my tests (two lumbar punctures, MRIs, and CAT scans) didn't show much, but months later I was informed that GBS symptoms and nerve damage sometimes show up or clear up more on testing later in the process.
I’ve always been a healthy person, and I’m just now coming to terms with the fact that I’m not who I used to be. Accepting that I have become disabled has been emotionally tough. It sucks realizing I’m not "normal" anymore and can't do the things I used to do.
I applied for disability within that same month because I knew I wouldnt be able to work for a while, still havent heard anything as of today.
For those who have gone through this, especially with GBS or nerve issues:
- What steps should I be taking right now for my SSDI application?
- How do I make sure my medical records properly reflect my physical limitations?
- Any advice on coping with the emotional side of suddenly becoming disabled?
Any advice, personal experiences, or tips would be greatly appreciated. Thank you so much.