r/guillainbarre

Hi All,

My dad got his first treatment of IVIG on August 21 - August 25. We have been pushing for more IVIG since but 4 neurologists already said that there isn’t any benefit as he is not regressing. It has been 8 weeks since he has been hospitalized but the progress has been extremely slow. Today, the neurologist offered to give a maintenance dose of IVIG (0.5 g/kg x 2 days) tomorrow and the day after, if we would like but stated there may not be any benefits of this IVIG and there could be side effects. My dad is 70 years old so I was wondering what you guys recommend. He retook the MRI of the lumbar spine and the radiologist sees improvement and less inflammation on the nerve roots compared to his first MRI which showed the Guillain Barre.

Would appreciate any input. Thank you.

Anyone go off bupropion after GBS? What was your experience?

I started bupropion 150 mg SR a few years before getting GBS just for anxiety. I had GBS 8 years ago and again 6 months ago with just a few residual issues (fatigue nerve pain etc). I think bupropion might be what’s making my sleep terrible, so I want to go off but am scared since I know it affects nerves too. I asked my psychiatrist but of course I’m the first pt she’s seen w GBS.

Thanks for any advice!

I posted earlier but worded it wrong. I developed a foot drop on Sunday where my foot wants to drag while I’m walking while still having balance issues. Yesterday it caused me to trip and fall while at physical therapy. Has anyone else developed a foot drop from GBS? I’m 6 months out from a 2 month hospitalization

I recently joined a vet school and i think it will be mandatory after a while during practice to be vaccinated against rabies and other vaccines aswell. Did anyone relapse after a vaccine shot. My GBS was triggered by Campylobacter AMAN GBS.

Hello, I stumbled across this subreddit while doing my personal research. I was diagnosed with GBS when I was just two years old and I am lucky enough not to remember it. However it has always been a big part of my life, since my parents always told me many stories about my recovery, most of them still make me cry when I think about them.

My favourite story is about my dad trying to feed me a banana. At the time, I was bedbound - basically tetraplegic and fully blind - and I really didn't like bananas, so while I was throwing a tantrum and spitting the food all around, a thumb on my right leg started twitching. When dad noticed it, he sprinted out of the room, shouting across the whole clinic that I can move, to get everyone to have a look.

Now I'm 23 years old, fully recovered (only with minor deformities to my left upper arm and thorax) and studying pharmacy in college. Since I can now fully understand the mechanism of this disease, I'm thinking of concentrating my studies on it's treatment and prevention, so that no parent has to go through the same experience as mine did.

Im not sure if my story gives you anything, just wanted to say that all of you are incredibly strong and brave and I pray for you to recover and live a happy healthy life. I hope that one day I'll be able to help people like you and that the chance of full recovery from GBS will go from most patients to all patients.