u/Maleficent-Savings39

Diagnosed w/GBS in March after going to ER for TBI/Severe concussion. My memory of events starts with asking the person taking vitals Where am I, scared them terribly. They said I had been in ICU for 3 -4 days, undergone every scan, test, etc.. results from spinal fluid, confirmed GBS. IVIG treatment 4 infusion bags over 4 days provided my body handles it. Mid-way through bag 3 I start feeling better, after bag 4 I transfer out of ICU into ARU and begin learning how to stand and walk again over the next 3weeks. Trending upwards , getting around with a cane I'm sent home with outpatient follow-ups for continuing therapies. 4-6 weeks out, regression: legs on fire, strength plummets, and my balance is way worse. IVIG is scheduled to see if that calms things down, I'm hopeful because of the positive results from last time. Today was Bag 5 Infusion day.. never had any bad reaction or effects from the first 4, but by the time I got home, head is pounding, eyes super sensitive to light, my.head feels balloon like, hearing is worse, i can't sit up without weaving side to side, front to back and now I'm having those Flu-like symptoms chills and aches. How/Why is my body's reaction so different? Anyone have similar experience? How long will i feel like crap? Because of the head injury that I initially suffered my I can't remember all of the things he told me and it was my eyes I can't read the papers if they sent me home with at this time my poor eyes