u/dinosaur_vacume

41F. 125lb 5’5 healthy
5 years post Guillian Barré Syndrome.
I did not make a full recovery. I was hospitalized for 10 months. I’m still paralyzed from the knees down. There’s really no handbook for paralysis and I wasn’t prepared by the hospital for a long-term effects.

Right now, my toes have begun to curl under themselves. I have long thin toes and my second toe, the one beside my big toe, the first flange I think it’s called with the nail is flat on the ground under my foot. I’m walking with the nails flat on the floor. The other toes are following.

I can still physically uncurl my toes with my fingers. It doesn’t hurt to do so. But walking on top of my AFO’s is getting quite painful.

I believe the tendons have shortened. When I put a lot of weight on one foot say going up the stairs. It feels like my toes are gonna snap.

How do you correct this? Is surgery basically the only solution? And if it is, what am I looking at?
Thank you for your time.

Medication’s
Baclofen
Hydromorphone contin
Cymbalta
Lyrica
Latuda
Clonazepam
Vitamin B12
Zinc
Vitamin D

My feet of been paralyzed for five years. Progressively over the last year or two my toes started to retract and now some of them are curled and I’m literally walking on the top flange,I guess you’d call it. I’m walking on top of my nails. They’re flat to the ground.

Does anyone have experience with long-term paralysis in the feet and has experienced this? I’m pretty much certain their surgery in my future. Nobody tells you what to expect long-term with these sorts of things. But it’s quite painful to walk on with my AFO’s.

TL;DR
My sister‘s kid got really into playing the piano. She’s two years old so I bought her a little electronic piano sister didn’t even say “oh cool”.

My sister and I have been having a hard time getting along lately. My dad passed away a couple months ago, things just haven’t been right since.

She has a remarkable two year-old. My sister sent me a video of her little girl playing the piano at what I assumed was her boyfriend‘s house. I was so blown away. I immediately went online, looking for an appropriate electronic piano.

I found one after a lot of searching. I needed one with a headphone jack so I could get her headphones that way her banging away on the piano wouldn’t drive the roommates up the wall. The piano is pink and I got her headphones with little kitty cat ears. I was stoked.

I’ll just add that I haven’t seen my niece since Christmas. That’s a whole other story my mother and I cohabitate. I live in the basement. The stairs are a real challenge for me. My sister showed up out of nowhere last weekend. I’ll add that I’m disabled. My legs are 80% paralyzed and I suffer from bouts of crippling pain. The day she showed up was one of these pain days.

All of a sudden, I hear my niece banging away on the piano. They had opened my gifts and gave them to her. My sister never came downstairs to say hi to me. She never brought my niece down to see me and she never said thank you. Not even close. Talking to her the week before she came over and I told her about the piano she said “oh we’ve got tons of them. I’ll just throw it on the pile.”She didn’t even say “oh that’s nice.”

I’m a little bent about this. They went ahead and opened my presents without asking and then never acknowledged it. Like I said, I’m not looking for a freaking metal,just some common courtesy. Am I being weird about this? When we were growing up if you didn’t say please or thank you you get a smack up the back of the head!
Am I overreacting?