u/everythingislitty

Follow up to my 4:30 am hospital pity party

Follow up to my 4:30 am hospital pity party

Almost exactly 1 month from the first day I started having symptoms, I no longer need a walker or cane to walk and I can confidently go up and down stairs by myself. I am so so lucky that I had a relatively “mild” case (meaning I didn’t need intubation) and the IVIG was successful.

I spent 10 days in the hospital and 4 days in rehab before I discharged myself AMA last Sunday cuz I felt my mobility was coming back on it’s own (and i was suuuuuuuper fucking sick of hospital settings and having no independence).

Now, I’m still not 100% - my stamina is still pretty low and I need to take lots of rest breaks when walking. I also need my afternoon siesta where I veg on the couch. But my progress has been amazing and every single day I’m getting stronger!

Today I’m sitting by the lake, super grateful for the amazing doctors who took my GBS concerns seriously and for all the love and support from friends and family.

u/everythingislitty — 4 days ago

How do you all manage the nightly back pain?

I was diagnosed with GBS on 4/27. One of my first symptoms was severe back pain at night, which has continued to persist. It’s like a deep ache, not the pins and needles type nerve pain.

I’ve been dosing up on Gabapentin since probably 4/29. I started at 100 mg 3x a day and now I’m up to 300 mg twice a day and 500 mg at night. So far, I haven’t gotten any pain relief from that.

With that said - how are you all managing the nightly back pain? Also, how long did it take for Gabapentin to start working, if you take that?

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u/everythingislitty — 12 days ago