5 months after my setback post: back on track, ~50+ safe foods now
I posted this thread 5 months ago. I had been making progress with diet expansion, from Carnivore, mixing in IBD-AID, and eating more. Then I had a major setback: a week of hellish symptoms after I pushed things with a heavy meal. But I'm happy to say now things are back on track.
I've read some posts here recently about the thought of suicide. I've been there, the bathroom floor curled in pain wanting just about anything to end the pain. This inflammation we deal with is so internal, so core to our being. That sustaining ourselves with food, something our global culture holds so centrally, can cause us so much pain. It's really a lot to deal with. I know all of us come out stronger on the other side because of what we have to endure. And I really wish the best for everyone suffering through this disease.
But there really is hope. Medication is getting better every few years. New treatments are being studied that we may see in our lifetimes. Time heals.
And in my experience, there are underlying triggers and causes that we can improve. Since I made the post above, I've kept expanding my diet (slowly, carefully), and now count about 50 foods that I feel I can safely eat. I can make it to select restaurants with friends, and they're genuinely happy for me to see me with a plate approaching normal. The social aspect itself is something truly difficult on elimination diets, and with this disease at large.
It's still been 2 steps forward, 1 step back. I'll get confident and push things like texture, more raw foods, something a little heavier/with more oil than I should, and if I do that for more than a meal or two, I'll feel the consequences. But with each week my gut feels slightly more stable.
A lot of my progress with diet has been with the help of AI (Claude mostly). I fed it studies, content from some sources I found for which I didn't have hours to watch all the videos and become a gut health expert. And it was able to make useful suggestions, guiding me in the elimination diet approach. I finally launched an app mainly for myself to help me manage my diet progress, track symptom and possible triggers. I've been using it for 90+ days now and it's been helping me.
I have a lot of love for this community that is supportive, insightful, and really there for one another. I know it's because we all go through this alone. The bubbling, burning, churning that happens inside of us is not easy to communicate with anyone that hasn't gone through it. But we aren't alone! We're all here still fighting, and we will keep healing.