Disclaimer: AI generated
Don’t know if this helps anyone, but I put this together eith the help of AI to help myself just try and sanity check some of my own symptoms. It seems reasonable to me, but as always take it with a pinch of salt.
Just curious, what kind of strategies do you all use when you’re having bad episodes when out and about. What are the things that work for you? Maybe it’s medication, exercise, retreating to a safe environment..?
For me it’s changed in the last few weeks from medication towards checking my head posture and a few exercises (gentle movements for the deep neck flexors and the sub-occipitals) that seem to get things more under control.
What about you?
So a little about my story… I’ve had cervicogenic dizziness for two years now. Seen a few GPs/primary care doctors, seen ENT, vestibular specialist, 2 physios. Had an MRI and done all the exercises.
The one thing I struggle with is that almost every practitioner I ever speak to doesn’t get that pain is not my primary complaint. My latest physio has been pretty good, but even he has to catch himself from asking ‘how has the pain been?’
I don’t know if it’s just me, but so many practitioners seem unprepared to deal with dizziness that is accompanied by tightness but not ‘pain’. It’s like they don’t know what to do with it, and sometimes it feels like you need to exaggerate the soreness for anyone to be engaged with dealing with the problem.
It worries me a little just because I’m not cured yet and sometimes it feels like as soon as my muscle soreness is gone, I’m going to be stuck for treatment, regardless of whether I’m still having dizziness.
I get the feeling that there isn’t an appreciation that i may have increased resting muscle tone, and the muscle strain I may have is caused by that, rather than because I’m not resting or changing my posture enough.
Is this a unique problem?