FND and Pots
For context, I was diagnosed with POTS in 2024 when I was being evaluated for CFS. I didn’t receive an CFS diagnosis because of underlying mental health issues that they suspected might be the cause of my fatigue and lethargy.
Recently (about a month ago) i started developing new symptoms, muscle spasms in my thighs, stomach, neck and torso. The feeling like your getting shocked right before falling asleep but then not once, but multiple times sometimes non stop for minutes. As well as having these ‘drop’ episodes where I’m still fully aware but it feels impossible to move. I get weak in my legs and have fallen from it more then once. My eyes close and I can’t force myself to open them and recently I have started holding my breath during these episodes making me feel like im suffocating. I ‘come too’ gasping for air and often drop again within seconds. Sometimes these episodes lasting over an hour. It’s the worst when my boyfriend is with me or im relaxing trying to sleep.
My primary doctor suspects fnd, but from everything ive read about it it doesn’t quite fit. I was wondering if anyone here might have experienced something similar.y doctor is currently looking into referring me to a neurologist but she thinks I need to relax more and get therapy sooner rather then later. (Ive been on a waiting list since dec 2024)