u/Artmospherica

▲ 1 r/Anemic

Venofer side effects

Curious of people’s thoughts… I had 3 Venofer infusions last year and am needing some more. After each one, I had side effects: burning feet, headache, low BP, diarrhea, bright orange snot, stabbing/searing pain by big toenail, joint pain in feet, iron flu, bad fatigue, etc. Different side effects after each one. I waited until side effects calmed before getting another infusion, so my infusions were too spread out: two months btn the first and second, followed by the third a month later. So I didn’t have iron repletion. I’m curious, if you had side effects (that lasted weeks/months), would you go ahead and get another infusion or wait until they calmed down? I’ll probably get another infusion soon. Trying to decide btn Venofer and Monoferric. If I have side effects, my gut feeling is to wait before getting the next infusion. But I want to get 5 infusions in 2 weeks so I actually have iron repletion. My shortness of breath and fatigue are really bad at this point.

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u/Artmospherica — 4 days ago
▲ 3 r/Anemic

Venofer or Monoferric

Has anyone who’s sensitive to meds/supplements and/or has MCAS, an autoimmune disease, or small fiber neuropathy gotten a Monoferric or Venofer iron infusion? How was your experience?

I had non-allergic side effects to Venofer for weeks/months afterward, but am concerned about switching to Monoferric since it’s higher dose.

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u/Artmospherica — 11 days ago