u/ArtoftheOrdeal

I'm a very athletically active person recently diagnosed with orthostatic intolerance and low blood volume. When I say "very active" I mean it. Until quite recently, I was doing strenuous multi-day backpacking trips, century rides (100mi) by bike, etc. But as my symptoms have developed, I've found it harder to stay fit and keep active. When symptoms are bad, or when life just gets busy, I get deconditioned. Then, when I try to get back in shape, I struggle. It's hard to push myself without wrecking myself. Even moderate increases in activity (necessary to build fitness) risk leaving me light-headed for the rest of day, not to mention foggy the next (with something like post-exertional malaise). Has anyone else faced this challenge? What are your tips for staying active and building fitness despite this condition?