Im having heart surgery soon
Hello all. 20m here.
I spent a good 3 years of my life making post after post dragging on the same problems because the validation from other people felt nice, but in the end it was just reassurance seeking. I’m really sorry if I’ve come across as ungrateful as I know it seems like I’m never getting better. I’m sorry if I’ve become a recognisable person from my username alone. From now on, if I post I want to be sharing a win, or a specific problem.
This is sort of both?
In November of last year I was diagnosed with Atrial Fibrillation. I’m only 20 and if you don’t know what it is, it means my heart sometimes beats very out of rhythm very quickly. A bit like a squirrel in my chest. I’ve had 2 major episodes that have landed me in hospital and a couple very short ones.
It’s been isolating because it is overwhelmingly a condition of old age. It’s so rare in people my age that even at age 50 it’s considered very young.
It’s also difficult because I have to be my own advocate and often have to explain to doctors that no, I’m not stupid, I genuinely do have this condition. I’ve been questioned multiple times by doctors and have to say ‘No, I really do have afib!’. It mainly sucks because it feels isolating when even the doctors don’t understand you.
Either way, I’m having heart surgery in about a month or so. I find out the exact date on Friday. They’re basically gonna go in using catheters and map out the electrical structure of my heart, then depending on what they find they will scar the faulty part.
It’s not a cure but a treatment. I’m in a favorable group because I’m young and aside from the afib my heart is structurally fine. I’m also having this treatment done in London with a leading researcher of the condition!! He’s one of the people that actually brought the surgery to the uk back in the 80s.
I’ve never had surgery before so I’m feeling quite frightened. I also don’t really have a stable relationship with family to lean on, and I don’t have many friends. I worry that I will struggle emotionally with it all and feel really alone like I do now.
On the plus side I feel like I’m a stronger person than I thought I was. I’ve dealt with this life altering diagnosis and still kept going which I’m proud of.