Disorientated and confused and it gets worse
Hey everyone,
I don’t know what’s happening to me at the moment. Today is like the worst day ever when it comes to disorientation and being confused.
I got diagnosed with POTS in February while having my first real crash or flare-up (I do have the standard POTS symptoms since around 24 years without knowing what I have).
Excuse me if I write nonsense but my brain isn’t functioning properly anymore.
My symptoms are:
- Difficulty to identify people’s faces I know (everyone looks different than I remember and I notice weird anomalies in their faces, like I’m sure they look different normally)
- I do write, read, listen and watch things but it seems like I‘m not able to understand what I‘m experiencing (can’t even explain that properly)
- I walk my normal routes and suddenly I’m confused if it’s the right way, like if I got lost and walked somewhere else and don’t recognize the place anymore
- I‘m confused about time and can’t understand the connection of reading a clock and what the time means in correlation to the status of the day (this sounds weird?)
- I lose track of time and spend hours doing „something“ and get lost and panic when I actually have an appointment somewhere and didn’t do the things like showering, doing make up, pack my bag or dressing up to be prepared for the day and the upcoming appointment
- I feel like I got replaced by someone else, I feel so disconnected from myself like I’ve used to be
- my clothes feel like they don’t belong to me or don’t fit my body anymore (like if someone replaced my whole wardrobe over night with similar clothes but something is quite different in each item), clothes generally feel „weird“ I extremely feel every tag and textile fibre
- talking and thinking feels weird, I often misspell words, I mess up sentences I want to say, while talking I don’t know what I said seconds ago even tho I recognize that I said something but it’s soooo disconnected and just weird
- I feel dizzy and have vertigo since weeks (on top of that I often do have a headache or migraine attack) I assume it’s linked to vestibular migraines (not diagnosed yet, but I plan to get appointment for testing)
- everything is just EXTREMELY loud and bright and I do smell odors from far away and they’re too heavy for my nose and confuse my brain even more until I can’t think clearly anymore
- I can only sleep for 2-6hrs a day and don’t feel exhausted but sometimes I do feel an extreme exhaustion and have to sleep several times for hours a day
- I switch between extreme overheating and feeling extremely cold
- food tastes always extremely weird, like it’s always extremely hot and spicy even though people say they didn’t put spices except salt in it and can’t taste what I taste
I just walked upstairs to my room after checking if my food in the oven is done and hit my foot severely cause I couldn’t figure out how to use the stairs and the pain is so immense I nearly fainted
There are more symptoms but I’m too exhausted to remember them. I guess it’s a good overview of the main symptoms though?
I was in hospital last week cause I got diagnosed with a spinal fluid leak after a lumbar puncture 4 weeks ago and had severe symptoms since then.
I had 4 MRIs, everything looks fine, several blood and vitamin tests but they’re normal. Even B12, D3 and thyroid values + no diabetes.
I got tested negative for MS, tumors, sagging brain due to the spinal fluid leak, no inflammations. NOTHING. My body is fine even though I feel worse everyday.
I feel like going to have dementia or a psychosis but I am 36 years old.
Gotta say I do have ADHD and I’m on the autistic spectrum, I guess that’s also a huge impact (watched videos about autistic burnout and yes, that might be that + POTS crash + constant vestibular migraines without headaches).
Did anyone have similar symptoms or experiences? I just wanna feel normal again, it really scares me :(