u/Away-Song5125

Confidence and catheters

Hi, I’m fairly new to all this and have a suprapubic catheter. I’m young and self conscious especially now with shorts. I’m wondering if anyone has any tips, I keep thinking that people will think it’s weird especially if I want to look for people to date. It’s embarrassing to me to explain I have a bag of pee on my leg if someone asks. I have a bag cover which helps but I still get rly uncomfortable in public with it. I don’t know anyone in person especially no one at 19 who has one of these catheters. Even though it’s been life changing when I did straight cathing no one could see my pee lol. I know I shouldn’t feel embarrassed and that it keeps me alive but if anyone has any tips or can relate pls lmk.

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u/Away-Song5125 — 4 days ago

Tips for the summer heat

I have such a hard issue with overheating and temperature regulating now that it’s getting warmer. I’ve tried ice packs, fans , spraying water on my face, and wet towels and headbands. I still end up overheating and feeling horrible and can’t do things I want to outside even if it’s for a short amount of time. Does anyone have any tips or tricks I would greatly appreciate it. Still new to all of this.

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u/Away-Song5125 — 6 days ago

Does anyone have their own tips about preventing pressure sores, I’m new to having a spinal cord injury and I wasn’t taught much about prevention , checking skin ect/ products. There’s so much different information online it’s overwhelming and I’m so worried about developing one especially because I haven’t been doing much as a should to prevent them

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u/Away-Song5125 — 22 days ago

Hi, I’m around a year and a half post injury and I’m dealing with a lot of pressure from my parents about walking. Im 19 and live with them. I care more about learning to drive, do adaptive sports and just trying to adapt to life in a chair. My parents say I’m giving up by doing this instead of doing intensive rehab to start walking, and keep comparing and sharing stories of other paraplegics that “recovered”/ didn’t “give up” and that I’m not trying hard enough. I guess I just don’t care as much about walking as much as I care about trying to live my life and they keep telling me I’m making a horrible choice and act like it’s weird I feel that way. I was wondering if anyone else has had something similar, I also keep seeing these stories online about people who didn’t “give up” and pushed themselves to recover and I feel like it makes it seem that if you don’t you just didn’t try hard enough. I know this is a long post my bad, I’m new to Reddit

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u/Away-Song5125 — 22 days ago