r/spinalcordinjuries

▲ 2 r/spinalcordinjuries+1 crossposts

Should I go to the ER?? Will I be Paralyzed?

I re hurt my back a few days ago and the internet says immediately go to the ER due to my symptoms I could become paralyzed if not treated immediately, so here they are.

Memory is bad since the incident.

Deep dull aching pain in Lower back, right hip/butt

Shooting pain down all limbs.

Significantly more on the right side.

Hands weak and sore, more on the right side.

Day of the incident, arms and hands had pins and needles and both hands locked up like claws.

Lips and neck also had pins and needles with spasms.

Neck pain developed one or two days later or at least that’s when I noticed, and is getting worse.

I feel weak and unstable when standing or walking.

Shooting pain in the leg has made my leg give out, causing me to collapse twice.

I forgot to mention I did go to a doctor and I get x rays tomorrow but everything I read says it’s more likely spinal cord compression in the neck and herniated disc in lower spine, and x rays tomorrow won’t see that. Apparently if my spinal cord is compressed it’s very serious and I can lose control of my limbs which seems to be starting already

I want to start doing everything I can to treat it asap but I’m afraid of making it worse

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u/Get_Ricked_ — 21 hours ago

Possible SCI?

13M, I got punched in the back by a kid at school yesterday. It hurt a bit, but there were no immediate severe symptoms. However, I wet the bed last night, completely out of the blue. Could this be a spinal cord injury or am i just being paranoid?

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u/_JustARiceFarmer — 18 hours ago

Update … on nerve pain and movement

T10 incomplete
I made a post about randomly getting REALLY bad nerve pain about a week or so ago. I remember my butt and my left leg being the worst. Fast forward today, I can now move my left foot ! And my nerve pain is 100% gone. I’m on 300mg of gabapentin a day just in case not sure if having that in my system is what’s blocking it from coming back? But it’s just gone? Like it never happened.
I now have more sensation in my left leg and it moves 🥹
Thanks everyone for the advice on nerve pain.
I’m sure it’ll come back one day, I really hope it doesn’t.
But for now I’m just so happy. 😭

u/Elizabcor111 — 24 hours ago

Bowel issues after Botox (updated)

Hello everyone I posted about a week ago regarding my friend/client losing all bowel retention following bladder Botox. I got a lot of comments saying to change her bowel program but unfortunately with the severity of the incontinence (always diarrhea) her bowel programs have ceased entirely. She is now housebound, trips are needing to be canceled. Extensive research has led me to believe the shot was done wrong and it somehow migrated to the colon and it advised her to call the urologist. When the urologist was called he shut her down saying it's a PCP issue and not at all related to Botox. Well PCP was called and stool samples taken. Everything came back clear and negative. We have spent hours crying together over the loss of any quality of life. She's also risking bladder infections because all the liquid she drinks goes right into her bowel. Her urine output after 16hr was only 300ml. I'm just so lost right now as to how I can help her. Could she take legal action against this doctor? No bowel side effects were disclosed when she made the appointment.

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u/BossBrickBabe — 1 day ago

Understanding your SCI

I've seen some conflicting info in here about what it means to be "complete" or "incomplete," and also just overall general confusion/concern by newly injured people on what exactly SCI means. So, I wanted to provide some easy-to-read charts and kind of break it down.

My hope is to just overall educate on what SCI prognosis looks like and give some slight encouragement that your initial diagnosis isn't always what it will be. So don't give up- keep it moving! (pun intended)

*I did use ChatGPT to help me explain this and am also including my own personal diagnosis.

--------------

A spinal cord injury is considered complete or incomplete based on whether there is any preserved motor or sensory function below the level of injury, especially in the sacral segments (the lowest part of the spinal cord).

Complete Spinal Cord Injury

A complete SCI means there is:

  • No voluntary movement
  • No sensation
  • Below the injury level
  • Including no sacral function

This is classified as AIS A on the American Spinal Injury Association impairment scale.

Signs doctors look for

  • No feeling around the anus/perineum
  • No voluntary anal contraction
  • No deep anal pressure sensation
  • No motor function more than 3 levels below the injury

Even with a “complete” diagnosis, some reflexes may still happen automatically because reflex arcs can survive below the injury.

Incomplete Spinal Cord Injury

An incomplete SCI means some signals still get through the injured area.

There may be:

  • Some movement
  • Some sensation
  • Or both below the injury level

The key feature is usually sacral sparing, meaning some function remains in the lowest sacral nerves.

This includes AIS grades:

  • AIS B = sensory incomplete
  • AIS C = motor incomplete with weaker muscle function
  • AIS D = motor incomplete with stronger preserved muscle function

Important Reality About Prognosis

“Complete” and “incomplete” are clinical classifications — not guarantees.

Some people initially diagnosed as complete later regain some function, especially during the first year after injury, due to:

  • Reduced swelling
  • Recovery of partially damaged pathways
  • Spinal shock resolving

That’s why early exams can sometimes change over time.

----------------

I've seen people say that "complete vs incomplete" relys on if you have bowel function or not. This is not entirely true and should not be used as a sole determining factor.

Bowel function alone does not determine whether a spinal cord injury is complete or incomplete.

For example, a person with a C4 spinal cord injury who can move throughout their body and feel sensation below the injury would almost certainly be classified as an incomplete spinal cord injury, even if they still have bowel dysfunction.

The reason is that bowel/bladder regulation depends on very complex autonomic nerve pathways, and those pathways are often disrupted even when a lot of motor and sensory function remains intact.

Why Someone Can Walk or Move but Still Have Neurogenic Bowel

The spinal cord carries different types of signals:

  • voluntary movement
  • touch/pain sensation
  • autonomic functions (bowel, bladder, blood pressure, sweating, sexual function)

These pathways can be affected differently.

So someone may regain strong movement, have decent sensation, but still struggle with:

  • constipation
  • bowel timing
  • incontinence
  • lack of urge sensation
  • difficulty emptying

This is extremely common after cervical injuries like C4–C7.

Another Important Point

Even many people classified as:

  • AIS D (high-functioning incomplete injuries)
  • or who can walk independently

still have:

  • bowel dysfunction
  • bladder dysfunction
  • spasticity
  • autonomic issues
  • neuropathic pain

Those systems are often the last to recover and sometimes never fully normalize.

----------------

My personal prognosis

I am C4-6 Incomplete. At first, I couldn't move or feel anything but my head. This was considered an AIS A- complete injury. But after the "spinal shock" wore off, I started gaining function. This took about 2 weeks post-injury. It started with a finger movement, then slowly progressed everywhere. I was "graduated" to an incomplete AIS B/C.

By month 3, I could stand and take steps with assistance. I used a foley cath and had a bowel program.

By month 12, I was completely independent from my chair. I could drive, shower, dress, etc with no assistance. I was able to self-void both bladder and bowel with no cath or program needed.

I am now 23 years post-injury and still remain independent in my daily living. I am between an AIS C & D - asymmetric tetraparesis, meaning I can move everything to some degree but have weakness centralized to my right side. My sensation (feeling) is spotty. I can feel all parts of my body, but some areas have different sensations. For example, I can feel touch on my lower back but it's dull (can't feel the sharpness of scratching), but my shoulders are super sensitive to scratching.

I use intermittent catheters now due to Botox taking away my ability to self-void. I don't use any bowel program, just go when needed.

u/OptionBulky6687 — 1 day ago

Similar experiences

I am a C5 incomplete about nine months out from my injury. From what my PT has told me, my injuries is kind of unique and I wanted to see if anyone else has had a similar experience.

Initially, I was supposed to be a complete C5 later on swelling went down, and I began to show small movements in my right hand and right leg. Fast-forward through months of PT. I’m able to use my right arm and right hand completely aside from the severe spasticity. That goes same with my right leg. I’ve had traces of movement in my left leg and left hand.

I’ve had horrible spasticity ever since my injury. While I was at Shepherd, it affected my rehab so bad they recommended the baclofen pump. I’ve had that along with take oral dantrolene. After all of that, it’s barely helped and they recommended Botox. As you would assume that has not worked either. Is there anyone else that is dealt with spasticity like this?

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u/IiNodus — 1 day ago

Magic bullet

I haven’t had a bowel program for months but recently I’ve been on antibiotics for 37 days. It completely destroyed my stomach. It’s been near impossible for me to use the bathroom without the magic bullet. Now my question is when I use the magic bullet it never completely empties. I’m not sure if I’m doing something wrong or that’s just how it works.

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u/IiNodus — 1 day ago

Starting to feel hopeless. (Vent)

The more I look into my injury (damaged s2 nerve) the more I begin to lose hope of ever functioning normally again. Between the bladder and bowel dysfunction and the complete loss of feeling in my genitals, I don't really know how I'm ever going to feel like myself again. For more reasons than that but that's an issue for me as well.

And Google isn't helpful thanks to the AI summary, it changes every time I try to look up treatments to help with both of these issues. Has anyone ever successfully had some sort of treatment to regain sensation in these areas?

Thank you for reading, I hope that in my case these issues can be resolved

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u/ObviousAardvark990 — 2 days ago

Confidence and catheters

Hi, I’m fairly new to all this and have a suprapubic catheter. I’m young and self conscious especially now with shorts. I’m wondering if anyone has any tips, I keep thinking that people will think it’s weird especially if I want to look for people to date. It’s embarrassing to me to explain I have a bag of pee on my leg if someone asks. I have a bag cover which helps but I still get rly uncomfortable in public with it. I don’t know anyone in person especially no one at 19 who has one of these catheters. Even though it’s been life changing when I did straight cathing no one could see my pee lol. I know I shouldn’t feel embarrassed and that it keeps me alive but if anyone has any tips or can relate pls lmk.

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u/Away-Song5125 — 2 days ago

Does anybody else have problems with their Vans bottoming out over speed bumps and sounding like it's tearing the bottom of the van out?

here's a solution.

u/RollnRye74 — 2 days ago

Sex with my SCI boyfriend

I’ve able bodied but my boyfriend of two months is not. We had sex for the first time yesterday and I started crying out of no where and couldn’t stop because I knew all the work I was putting in felt like nothing to him. I didn’t want to tell him that’s why I was so upset so I made up a story about how intense it was physically and we continued. This morning I gave him oral after a few minutes he asked me to stop because it was “pointless“ I feel so bad for him I wish there was something I could do. I feel so useless knowing this just is what it is for him. It will be three years for him being a paraplegic this June and he hasn’t had sex since before the incident. I guess I dont have a question to ask, just hoping someone from this side of the relationship can relate and let me know it gets better.

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u/Last_Veterinarian349 — 2 days ago
▲ 4 r/spinalcordinjuries+1 crossposts

Catheter Disposal

I’m a 26M living with a roommate in a 2 bed 1 bath apartment. I self catheterize 4-5x per day (roommate is aware, not trying to hide it) and I’m having a hard time figuring out where to dispose of them when I’m done. Right now I just have a garbage bag on the floor of my room I put them in.

Wondering if anybody has a good system for disposal in a situation like mine? In the past I’ve had a dedicated garbage in the bathroom but we share it so I’d rather not do that. Also any tips on cathing with a roommate would be appreciated. Thank you.

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u/UpperSong16 — 2 days ago

Suprapubic catheter maintenance?

How do you guys care for your SPC? I do a basic wash in the shower when I bathe but I don't think it's doing enough. After about 10 days or so my urine starts to smell and get a bit darker.

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u/Mattm334 — 2 days ago

Trying to ejaculate/orgasm on a full bladder

I am an incomplete para. Direct cause unknown. Problems started lower lumbar. I am wheelchair bound but have sensation everywhere now. In fact, my genitalia are super sensitive: more than my ambulatory days. If my hand brushes my crotch, I start feeling horny asf. But I still haven’t cum since Dec 2018.

Someone told me NOT to empty my bladder before I try for orgasm. I now see what he meant: I was SO close! But I’m afraid of what might happen. Will I hurt myself somehow? Will I just give myself a golden shower and nothing more? Will I orgasm/ejaculate AND urinate at the same time?

Anyone experience this? What’s been your experience?

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u/WeightliftingWheeler — 2 days ago
▲ 4 r/spinalcordinjuries+1 crossposts

Car recommendations: one that fits wheelchair and a stroller

Hello everyone,

I have been searching the web for a while and it seems like there are so many options.

Did anyone actually have a good experience with a budget family car that has enough space for a manuall wheelchair (a bit on the bigger side) and a stroller? And if possible one which is not too high, so that it is still possible to transfer easily from a wheelchair.

I am not much of a car person myself and could really use a good tip here.

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u/sikterusa — 2 days ago

Over it. Being taken advantage of.

Its been approximately a little over 2.5 years since my injury. Some days i feel semi okay but i still get extreme waves of anxiety and depression.

I feel as if im not really taken seriously anymore and have lost my authority to speak up. Anytime i do speak up i made out to be in the wrong and all of a sudden theyre so offended.

Its very hard to find reliable caregivers that show up everyday when theyre supposed to. I try to be lenient and try not to mind if theyre late or cleaning isn’t done. But a lot of the times stuff isn’t getting done like organizing my room/laundry. Again i try not to mind but what do you do when you find out the reliable caregiver that has been showing up consistently and you highly rely on has been taking much more hours than they should have??

I guess i wouldn’t have minded but again things are not being done but yet i need them because i need help cathing in the morning and getting out of bed.

I hate this life ive been forced to live. Im trying so hard to be independent so i wont need them anymore but reality is i still need them. It saddens me and makes me very uncomfortable because even though i know theyre wrong i still need them and dont want them to be upset with me for being upset with them.. does that make sense? I don’t know im just worn out with people seeing me as someone that can so easily be taken advantage of.

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u/Glittering_Piece576 — 3 days ago

Regained sensation/stem cells

Hello, I am new to Reddit. I'm a C4 complete tetraplegic and I plan on undergoing stem cell therapy, and with the possibility of regained sensation, this being something I've never experienced before, does the regained sensation feel the same or similar to the way it felt before your injury? Does anyone have any insight into this?
Also if anyone has any advice or insight regarding stem cell I would greatly appreciate it because I'm honestly really nervous.

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u/I_WEAR_PRADA_ — 3 days ago
▲ 49 r/spinalcordinjuries+8 crossposts

How to Think About Medical Risk Realistically 🩺⚕️

I created this handout to help patients advocate for themselves, and better and more accurately assess their true risk when it comes to medical procedures.

As a longtime sufferer from Iatrogenic(doctor-caused) Adhesive Arachnoiditis, after a botched, unnecessary epidural steroid injection when I was only 16 years old, I’m very passionate about advocating for better doctor patient transparency. I encourage patients to frequently and thoroughly question their doctors, to get second opinions when any doubt arises, and to make sure they aren’t just blindly trusting them like so many of us have been trained to do. Just remember that YOU CAN ALWAYS SAY NO, and if things just don’t feel right, or the doctor doesn’t seem confident in what they’re doing, its perfectly acceptable to stop any procedure, and opt to try again another time. It’s YOUR body, your life, your well-being, and YOUR CHOICE! A good doctor will respect your decision, a not so good one may guilt trip you about “wasting their time”, which would show you all you need to know anyways!!

I hope this helps someone out there not end up in the situation that I did. 🙏🩵 Trying to use all that I’ve learned the past almost 3 decades to help others navigate the medical system more effectively, finally gives me some much awaited purpose.

u/Sdfoxmama — 3 days ago