u/Same_Confidence808

Question for the guys. Cervical incomplete, everything from my chest down works enough and mostly full sensation except my hands and arms don’t work well. Being that I’m almost 40, the two round things between my thighs are a little bit bigger and sag a little more than they used to. Any tricks you guys have to kind of adjust I don’t know something that I could hold and put up my pant leg of my shorts? Sitting in the wheelchair all day in this summer heat is getting uncomfortable with them getting stuck further back than they should be. I can stand up with a walker for a minute or two, but it doesn’t seem to be doing the trick.

I don’t know if it’s appropriate, but I am going to use Reddit to record my progress, using an Arc Ex home unit.

Asia C incomplete quadriplegic about 18 months out
C2 through C7 damage two left ligament
C3. Spinal cord injury.
C4 burst fracture
T2 hyperintensity throughout
Brown syndrome meaning my left side is much weaker than my right
Weight-bearing, able to walk short distances with extreme back pain
Neurogenic back pain
Extreme flexor tone from the waist up
Baclofen pump to manage extension tone from the waist down
Ability to void bladder
Suppository dependent on toilet
Hand splints required at night time
Severe weakness of left hip
Foot drop left leg
Left arm in hand, practically no functional use
Maxed out on both narcotic and non-narcotic spasticity medications 120 mg morphine
40 mg Valium
1500 mg methocarbamol
120 mg oral Baclofen 300 mg Dantrium
1400 units Botox every three months chest, pronators, wrist, flexors, finger flexors