My consultant told me the best we can do now is pain management
I’m gonna try to keep this brief:
I was finally diagnosed in July 2025 with Stage 3 Endometriosis via laparoscopy, after 9 years of trying to get doctors to listen to me! Following surgery I felt great, no cramping, no brain fog, no fatigue, no back pain, i could walk again, i could exercise again, i was less bloated…… for 4 months until all of this began to return.
I am now 10 months post surgery and I am back to how I was before surgery. I am taking time off work, cancelling plans, not sleeping properly, taking codeine multiple times a day. Basically i’m living a life of staying at home 80% of the time and working through pain where i can.
I had a consultation this week. My consultant (who is also my surgeon) said it deffo sounds like my endo is back in full swing. However, due to the short term relief i got from surgery, he doesn’t know if this will be a viable option in the future (he wants to wait at least another 6 months before doing another surgery anyway). My options now are just to remain taking painkillers and potentially look at inducing menopause (i’m 23 years old, so i’d really rather not do this). He has prescribed me some stronger medication too, and medication for sleep.
I imagine many other people on here experienced this feeling being left to struggle in pain. I wanted to hear some other people’s experiences and lifestyles after being told no more surgery.