u/Be4nieDream

Fibromyalgia, Weight loss, Exercise, Medication and the excessive optimism that leads to disappointment

I think we've all heard it at some point. Exercise more, you'll feel better. you aren't doing it right. Lose some weight it it goes away. All eluding that weight loss and exercise is like some 100% cure all for Fibromyalgia when it was never meant to be that.

Exercise and weight loss can help some, does not mean it will help everyone. Its the same with medication. Some it works for others it doesn't. Whether its exercise, weight loss and or medication how much it helps will vary person to person. Also some people are already in shape and fibromyalgia still causes them problems.

I just wish people would stop treating those things like they are the ultimate panacea. It's disheartening to constantly hear that it should be working for me and being questioned when I have done everything doctors, physical therapist, rheumatologist and others with fibro have told me, tried more medications than i can count (and experience a ton of side effects with none that helped.)

I'm tired, I'm frustrated and even more than that i'm angry. Because now that i've developed arthritis in my hips and its been sooo much worse. They say it's early for my age. And guess what now they are saying my pain is all because of that. And I question oh is that so? Even ten years ago? Now its more medicine and then when i'm still in pain because of fibro, not the arthritis (it feels different if that make sense), they want to up the medicine for athritis which honestly I thought would work more than it does.

I just don't know any more. I wanna go back to work, I miss being fully independent and I don't trust the current state of anything. Just ugh all around.

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u/Be4nieDream — 3 days ago

Thinking about chopping off my locs and just staying natural, cutting my loc length in half or starting over fresh because nothing has kept lint from building up.

Its been almost six years since i started my locs and i've been so proud of my them but some time early 2025 i started to notice some lint in the ends and that led me to diving into all my locs checking and the bottom half has a lot of lint with in the shaft and I was devastated, but i was told it was salvageable I just had to be more vigilant.

But at the time I already I used a lint roller daily, picked any lint on the outer shell, I wash every 1.5 - 2 weeks. used only no build up products (but I feel like even those can leave a bit) I've tried the detox (but i know that's more for gunk than lint), satin bonnet and pillow cover, try to keep my hair up when wearing certain clothing materials and its still so much lint in there. I'm going to try dying it but knowing its there and some is embedded just makes me worried about my locs integrity and potential breakage.

I mean i know there is no way to 100% keep lint out of locs I just thought I was doing a better job.

these are the things i'm considering.

  1. Chopping it off and just sticking with my 4c coils

  2. cutting off the bottom half (top half isn't bad)

  3. cutting them off, wash them/detox/etc to see how they fair and re-installing if viable.

  4. Starting completely fresh

  5. Starting fresh, but adding some hair because I'm not a fan of the really short phase. I was really self conscious about it.

Thoughts?

u/Be4nieDream — 11 days ago