Hypo but I don’t feel my lows
I was just recently diagnosed with non diabetic hypoglycemia during an ER visit for sudden blurry and double vision. spoiler alert… the vision issue turned out to be unrelated. But, when they checked my sugar it was 58, and kept dropping to about 50 while in the ER. It got so bad that they maxed out on all they could do in the ER and had to call for the Rapid Response Team (icu). The scary part is I felt fine, other than a little tired and a headache. But I don’t sleep well and have migraines so it was literally my normal feeling.
The nursing staff was freaking out like I was headed to heaven any minute. It took pbnj, OJ w/added sugar, apple juice, 2 glucose gel tubes, 3 Dextrose 50 injections, a dextrose iv drip on max, and 2 glucagon shots given at the same time as dextrose to finally raise my blood sugar to the 80s. All of this while I felt like my regular self the whole time.
Dr thinks I may have been having this for a while and developed unawareness to the lows. Super scary bc I am dependent on a cgm or finger stick to really tell me if I’m in the danger zone.
I’ve seen 2 endos and so far they both think I have insulinoma or my Zepbound is what caused this.
After 2 botched 72 hour fasts during my hospitalization, I’m waiting to see if they want to do another, or go straight to imaging.
For the people that don’t really feel the lows, any tips on how you manage your day to day?