r/Hypoglycemia

So I've been having issues with lows for a while now. I was hospitalized for an ED in October. At the time, they said it was reactive hypos. But now I'm going low more than just after I eat. I'm dropping randomly. I never go high. I'm calling my PCP tomorrow to ask for a referral to Endo, after having a low of 58 at work Friday night (12:20am Saturday morning). She thought it could be GI related, and it could be because of nausea/vomiting. I'm on Zofran now, and that doesn't seem to be fixing the blood sugar. I'm keeping everything down, and I'm still going really low. It's gotten to the point where I'm just trying not to go below 75 ever, because once it gets down to 75 or lower, I just drop further rapidly. I'm so frustrated with this. I don't know how to fix this. I keep correcting with carbs, apple juice, protein, fats, fiber, etc. Nothing works! Nothing holds me stable for more than 2-3 hours. My A1C was a 5.4 when it was checked last Wednesday. I don't seem to really ever go much above 160 either. I'm frustrated. I don't think these are reactive hypos anymore. I also have hEDS and POTS, but neither of those really explains this. Thoughts?

I notice that I tend to wake up super dizzy, although my glucose meter does not show me that I am low when I am awake in the middle of the night. All of the rest of my symptoms align with hypoglycemia however- the anxiety, dizziness, and extreme hunger. I had some food shortly before bed last night, and lo and behold, I did not wake up with extreme anxiety this morning.

How do you all manage this? I'm a 28 y/o woman, non diabetic with PCOS / PMOS, just trying to figure out how to recalibrate my life after I hit a blood glucose of 42, had extreme pre syncope to the point where I nearly fainted sitting down (ear ringing, panic, shortness of breath, dizziness - the works) and was hospitalized overnight for it.

I am trying to do better to manage my condition and see what works for it, but I feel like my life now revolves around the glucose meter. I have a tendency to test all of the time (more than needed, I do not qualify for a CGM) and I hardly enjoy eating or life anymore out of fear of the next low.

I appreciate any and all guidance.

I can't restrict without passing out.

The title basically says it all, but I need help.

My body fat is low right now, I'm trying to be on a slight deficit just to get more shredded.

Today I started my deficit, just a little under my manteinance. My blood sugar dropped harshly and I had to eat watermelon breaking my deficit.

One month ago, I passed out three times. I think it was low blood sugar. In the hospital, the doctor suspected of me having anorexia, due to my low weight. I was in front of my parents when asked and I was too embarrassed to admit it.

Last summer, I developed anorexia. Lost a lot of weight in one month. I restricted myself, I obviously didn't feel my best but I could easily eat one egg a day and keep living.

Now it seems possible.

I've read that maybe I'm developing diabetes. Maybe I've been restricting for too long. Maybe it's the amenorrhea. I'm not sure. But I really need help. I think I've just developed hypoglycemia but I need to know how to lose weight while having it.

Does this fit into hypoglycemia? If so, how can I lose weight while having hypoglycemia?

I would appreciate any comments ;)!

I was in the hospital for a month because of life threatening situations, glucosa IVs at night, constant eating during the day. It’s funny to say that a month ago I didn’t even have glucose meter and went about my day without putting much thought into it, until the ambulance called by my mom who didn’t hear from me saved my life. My sugar level was 22, they destroyed the door to get in and found me in a sitting position just staring at a wall without reacting to any external stimuli. That’s how I learned I have insulinoma, up to this day I can’t believe my luck to even be alive. Nowadays I measure my sugar regularly, I have a sensor, I eat when it hits 70, there are days when I have to eat every hour but I know if I don’t eat, I’ll die.

I had pretty bad reactive hypo that was causing memory problems and dizziness. With the help of a coach, I started eating a well-formulated ketogenic diet and I haven't had reactive hypo since. And if I do get hypoglycemic, I'll have ketones to do the heavy lifting for my brain until I recover. Is there a reason that more people don't try a ketogenic diet to deal with this?

I personally find it fairly easy. Eggs and avocado for breakfast, smorgasbord of nuts, cheese, salad for lunch, and meat and veg for dinner. I add olive oil or MCT to each meal to hit the fat macros, but that's pretty easy too. The one challenge is cholesterol, but I'm changing to more unsaturated fat and was already on a statin so that isn't too much of a barrier either.

In any case, would love to hear some thoughts, especially for people who are heavily impacted by this.

Hello, I’m kind of new to this whole thing and am trying to understand it alittle better.

After waking this morning I had 170grams of Greek yogurt (16grams of protein) alongside 2 slices of whole grain bread with 2 boiled eggs. After a couple of minutes my CGM showed a normal reading of 7.6 I felt fine then about 30-40mins later I felt a massive crash of energy, eyes felt heavy, and my brain was a little foggy so when I checked my CGM my levels had dropped to 4.8 and were indicating they were still dropping so I just had 1 glucose tablet a half a small sugary bar. A few mins later I felt fine. Would this possibly indicate reactive hypoglycaemia or are my sugars just crashing a bit. I don’t think even if I ate I would of dropped into a hypoglycaemic state but it’s hard to say obviously

I have both reactive hypo and fasting hypo. I feel like I'm rescuing my sugars all day. I eat 5-6 small meals every 3 hours because I'll be hypo by the 3rd hour. I'll dip low at 3-4am at night despite a bedtime snack and I'll rescue it with another mini meal, and in the morning I'm low again.

For those advising that they've managed to put a stop to this by eating low carb, how do you manage to do that? If I eat low carb, I don't spike much and I'm hypo by the 2nd hour, not 3rd hour. And after dinner, I'll have to bring forward my bedtime snack or have 2 bedtime snacks. I would really love to follow all the advice you guys have.

also advice on low carb meals and snacks that can somehow NOT cause a hypo would be appreciated. So far, I seem to have to eat more carbs rather than less :(

I recently had an appointment with my PCP and mentioned I’ve been struggling with intense tiredness and brain fog and it has been particularly bad after eating. I am a vegetarian so I asked for the to check my blood/iron levels etc thinking maybe it is related to that. The same day I had my PCP appointment, I also had decided to try a CGM based on a friends recommendation.

CGM dropped below 55 after I ate and stayed there for 30 mins until I ate some candies I had. I shared the results with my doctor and she basically said there is nothing she can do with this information and to stop using the CGM because it is just going to give me more anxiety.. then she went on to question the accuracy of CGMs for non-diabetics because my A1C was normal.

I’m feeling a bit confused. How else would I know that I have low blood sugar after eating unless I tested myself for it? Also, is CGM not the best way to do that?

Has anyone else had a doctor tell them to ignore results and stop use?

Anyone with reactive hypoglycemia or anything really.. my endocrinologist told me no carbs, no sugar. I can’t do this because I’m honestly recovering from an eating disorder and it just wouldn’t be good. I don’t know what else to do.

I go low 3+ times a day. Last night I got down to 38. I’m just tired of this and I’m getting so frustrated.

Help 😩 I’m seeing anew endo back home but it’s not until end of July.

If I don’t eat I’m good

Otherwise my RH doesn’t follow any rules. I’ll drop without spiking, I’ll drop from eating a piece of cheese.

I’m tired of nothing working

Hey everyone, currently at work and I am used to my BG dropping in the 30s-50s but I just had a drop from 157 to 76 to another immediate spike back to 130 5 minutes after. It stayed in a normal range but the movement seemed to be a little fast. This happens a lot throughout my day and all night while I sleep. Is this normal? Should I do anything about it? I keep getting alerts from my phone about 2 minutes from my phone(wearing a CGM). I tested finger pricks and everything seems to be accurate.

Any advice for me? Or am I worried for nothing?

28 y/o woman. Relatively new to managing this condition. I recently went to the emergency room after having a blood sugar of 42 (!!) and it was the most terrifying experience of my life in a way I hardly have words for. My blood sugar tends to drop, especially during my work day (I work in a warm and fast paced environment) and I have no idea how to manage the condition effectively- even with a doctor's vague guidance.

I have a ReliOn Platinum meter that helps with this, but i feel like with how hungry I get (and how quickly my blood sugar drops) i have to check my glucose at least every 2 hours. If not, I risk another drop. The idea of going down to 42 again terrifies me, I have constant anxiety about it ever since.

Paradoxically, I struggle to eat because of anxiety. It doesn't make sense.

How do I sustain blood sugar so I can feel better and have my life back without fear?

So I've been taking tirzepatide (aka zepbound) for weight loss for about a year. Recently diagnosed reactive hypo. I'm seeing conflicting opinions on the effect of this medication on glucose so I'm wondering if anyone has any experience.

I can't get in to see an endo until August.

On the one hand, glp-1s slow digestion, which should be beneficial for hypo.

On the other hand, it increases insulin production, which would be bad.

On the third hand :) it's supposed to only increase insulin production when insulin is low so.....

I feel like I've had glucose issues my whole life, been on tirz for a year, just diagnosed hypo last month.

I got a bad stomach bug, during which I stopped the tirz for 10 days. My glucose was all kinds of low and spikey for the first 7 days when I was sick, then it leveled up very consistently above 70 (though not by much) when the bug went away. I let everything stabilize for three days and then started the tirz again yesterday and while I haven't gone dangerously low, it's been dipping again.

So I'm wondering if anyone with reactive hypo has experience with tirz and how it affects you.

This makes the third time, twice one three days that I have woken up from sleep with panic anxiety and then having shakes. I am not diabetic and have lost 80 pounds since October with a glp1. After taking glucose tablets it goes away in about fifteen minutes. I assume I have low blood sugar? How do I go about preventing this? I don’t want it to happen again I hate the panic lol. Am I just not eating enough?