r/Hypoglycemia

Ehlers Danlos Syndrome/hEDS

This is a random curiosity question.

I have had mild hypoglycemia since my pre-teens (I'm 58). I had two severe episodes earlier this year.

Not looking for advice, but when I met w the dietician, she told me she's seeing a lot of people with hypoglycemia that also have EDS/hEDS (which I have). Interesting, bc I know of a couple myself.

So I'm just randomly wondering, who here also has it?

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u/Scary-Button539 — 4 days ago

Please help me.

Hello please help me by reading this. i am 29 years old and over the past three months i experienced three times of the same thing that happened to me over the span of the three months. i just wanna know if i have hypoglyceima. i dont have pre diabetes or diabetes. and i dont have any of their symptoms. however over the span of the last 2 or 3 months the same thing happened to me and ive been searching across the internet to know what i have and to stop this panic attack. what happened to me is that after i wake up i have my coffee with 3 spoons of sugar 1 for each cup of coffee i drink then i have a small meal of breakfast then i start drinking yerba mate with sugar. then at like the same moment i am drinking mate with sugar i feel like i am extremely hungry and i start sweating a little bit and feel like i cant move proberly. i go and eat a big lucnh. then i feel completely normal for the rest of the day. does this mean i have reactive hypoglycemia or any form of it? or does this mean i have pre diabetes ? how often does the episodes happen? i am asking all of this just so i know. also what should i do ?

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u/Previous-Conflict415 — 3 days ago

How to stop the severe rebound crash after eating fast-acting glucose?

Hey everyone,
I’m really struggling with reactive hypoglycemia and could use some advice.
Whenever my blood sugar drops and I eat dextrose (glucose tablets), it brings my levels back up initially, but literally 20 minutes later I crash right back into a severe hypo. It feels like the fast sugar triggers an over-insulin response, sending me into an even worse rebound low than before.
I've tried experimenting with different foods to prevent this, but nothing seems to work on its own. Nuts don't stop it, plain Skyr (high protein) doesn't stop it, and various other snacks haven't helped either.
If fast carbs cause an immediate rebound crash and protein/fats alone don't act fast enough to pull me out of the initial drop, what is the strategy here? How do you guys manage to treat a hypo without triggering this rollercoaster loop?
Any tips or combinations that actually work for you would be hugely appreciated!

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u/Aggressive-Bonus4541 — 5 days ago

Update

Update:

Following up on my previous post the next night at 11:37 PM, I tested my blood sugar and it dropped to 45 mg/dL. I took fast-acting sugar right away, and it went back up to 93 mg/dL.

What are your thoughts on this 45 mg/dL night reading? Has anyone experienced something similar?

u/PERKLO8 — 6 days ago

Reactive hypoglycemia and mounjro

I was diagnosed with reactive hypoglycemia four years ago. My blood sugar consistently drops about two hours after eating, leaving me feeling exhausted, weak, and constantly hungry.
I also have insulin resistance and struggle with excess weight. My doctor recommended Mounjaro (tirzepatide) and said it could help with my condition, but honestly, I'm scared to start it because I'm worried it might make my blood sugar drop even more.
Has anyone with reactive hypoglycemia tried Mounjaro? Did it improve your symptoms or make them worse? I would really appreciate hearing your experiences and any advice. ❤️

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u/lolaa2220 — 5 days ago

Is it normal to feel weak 3 hours after eating with a glucose level between 80–89 mg/dL?

My wife is 5'1" tall and weighs approximately 185 pounds; she does not have diabetes and does not take glucose-lowering medication.

She mentions that if about three hours go by without eating, she starts to feel weak. For example, if she has breakfast at 8:00 a.m., by around 11:00 a.m. she feels the need to eat because she is not feeling well.

When she has checked her glucose levels, they sometimes range between 80 and 89 mg/dL, although on one occasion she saw a reading close to 70 mg/dL. When she feels this weakness, she usually eats something sweet because she thinks her blood sugar is dropping too low.

My question is: has anyone without diabetes experienced similar symptoms even with a glucose level of 80–89? Could it simply be due to going several hours without eating or the composition of her meals? I would like her to use a GLP-1 medication, such as retatrutide or tirzepatide.

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u/mayaguezano32 — 12 days ago

insulin resistance

currently being worked up for insulin resistance, fasting glucose was 85 insulin was 17, I’ve been feeling weird tingly clammy dizzy and off whenever my sugar is around 80-100 when I check with a glucometer.

Do any other people have “low” symptoms at these numbers even though they’re technically in normal range?

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u/Upbeat_Valuable1274 — 10 days ago

Glucose tolerance test today

I have a glucose tolerance test today for my RH. I have had this condition for years but dr’s wouldn’t listen to me because I had a great A1C. My hematologist happened to catch a low of 27 on a blood
Lab test and I finally received an endocrinologist referral.

I am nervous about my GTT today. I am having it in the hematology infusion center because I have to have the blood draws out of my port. Did you have to drink the liquid in a certain amount of time? They are doing 6 blood draws twenty minutes apart today. My sugars move extremely fast as you can see on my Dexcom

u/Effective-Boss-2264 — 13 days ago

Reacting to Antibiotics

It’s 2:16 am. I am currently in the ER. After taking Bactrim orally earlier this evening for a kidney infection I am dealing with … I began feeling symptomatic and my blood sugar began going low. Did what we all would do. Fast acting sugar. followed by some protein an fat. well. it was only sustaining me for 10-15 mins and back to dropping. Symptomatic.
Came to the ER explained to them what the oral dose of Bactrim was doing.

Doctor said she was going to take me off Bactrim and put me on Levaquin. They draw some blood to check for sepsis and my WBC

I took Levaquin at 1 am. At 1:30 i began feeling so dizzy and lightheaded again. I tell the nurse. He annoyingly brings me orange juice. I finger prick and I’m at 72. I tell him. And he’s like well hopefully the juice helps .. WTF.
He then comes back and kind of makes a comment that maybe my machine isn’t working and that he’s going to finger prick me himself. He pokes me 3 TIMES and he keeps getting error on his machine because clearly he’s not doing it right.
So someone else comes to do it and i’m at 93. Mind you it was 15 mins after i sipped a bit of orange juice so clearly it was going to be up.

I’m frustrated. Doctors comes around tells me my bloodwork is good and that I’m being sent home with an RX of Levaquin. - 500 mg every 24 hours for 10 days. I tell her I literally started dropping 30 mins after taking it and feeling symptomatic ?!!! She sympathizes and says that I may just be like this for the next 12 hours. What do you mean 12 HOURS?! I just reacted to it now and you put me on a 10 day dose. Anyone else do well on a certain antibiotic to cure a kidney infection that WILL NOT affect your blood sugar?
I feel helpless and lost. Idk what else to ask for.

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u/Emotional-Cookie159 — 12 days ago

Unsure if I have reactive hypoglycaemia.

The past few days have been a rollercoaster and not a fun one. I was having symptoms of intense hunger after having meals and was concerned I might have diabetes due to my weight and activity levels(I’m around 320lbs and 6”1). My dad gave me a CGM to check how certain foods react with me and I’ve been checking that after eating. The day of my doctors appointment I had a breakfast consisting of 2 eggs, toast and beans, I had a snack prior to leaving also which was Greek yogurt and half a banana. Once I was there they took bloods and I started feeling very unwell, this was approximately 3ish hours after my breakfast and when checking the CGM it showed 4.1mmol. After the bloods were taken I felt better maybe because the snack before kicked in? I went home and had lunch which was chicken and rice cakes and after that I felt even worse than before which prompted an ambulance call. When the ambulance arrived my blood sugar was at 5mmol but I still felt really unwell, they gave me the option of staying home and waiting for my blood test results tomorrow or going in and waiting for hours. I chose to stay home and throughout the evening and night my blood sugar was stable and I had no issues.the following day I get my results back and I’m told all my bloods are normal with no signs of diabetes or pre-diabetes. During these episodes I haven’t actually had a finger prick test where my levels were in hypo but I feel off when my blood sugar drops quickly after certain meals, I’ll attach a chart above so you can see what I’m talking about, (the two dips and rises in the middle were when I felt unwell). I can’t tell if maybe my anxiety is messing with me and causing these symptoms or if it’s related to the blood sugar. Please let me know your thoughts and I appreciate you for reading this whole thing.

u/mugxtzuu — 12 days ago