How many have accompanying diagnoses? I need help understanding

Such as tmjd, scoliosis, fibro, cci, etc? I got all of them. I'm almost certain it's cervical dystonia in my case because my left shoulder literally can't go down, and my head often scrunches into my shoulder due to how tight my muscles are. Im thinking from covid and underlying eds, mold, chronic carbon monoxide poisoning from a new trailer. I have severe anhedonia and brain fog as well with my pain so I'm bedbound. I used to be a creative type but not anymore. I have a syrinx in my spinal cord that could potentially be making my problems worse. My eyes no longer align as well. I have vocal cord dysfunction and choke and often can't breathe and it's evolved into uars/sleep apnea so I only sleep 3 hrs a night. Sorry for life story, I just think it's all connected. I'm having trouble finding a neurosurgeon and proper neurologist, dystonia hasn't been mentioned to me at all. It feels so fucking negligent, because my PT never proper evaluated me and just told me that I had one of the tightest necks she's ever felt and that's it. :( help.

reddit.com
u/goingaway1111 — 4 days ago

[MOVIE], [Fully Lost],? [Inaccessible] My Embarrassing Family and the Spanish Slugs (originally titled Min pinlige familie og mutantdræbersneglene)

There's this extremely fucked up Danish "kids movie" called "My Embarrassing Family And The Spanish Slugs" that I cannot find ANYWHERE to view. The only way to view it is if you go to a Danish Library somewhere from what I can tell. There is a music video on YouTube from it but that's about it. A few images exist on various websites. I marked it as fully lost because I'm not sure if the music video is actually from the movie or not, or some promotional thing. I think the footage is from the movie though so I wish I fixed that.

Plot: Sille is an ordinary girl, 12 years old and 364 days, pre-teenager with adhesive hearts on the pink laptop, ambitions of becoming a pop star, two chick girlfriends with whom she’s practising MGP, a couple of nice parents and a little brother. And then there’s juuuust a garden full of Spanish slugs. Well, it’s the kind of year when ‘Spanish slug epidemic’, beer traps, salt and boiling water is on everybody’s lips.

The door opens and a new, different, dark and mysterious guy steps into the class. His name is Edge. Edge makes rap music and he is ‘street’ totally different than the rest of the boys in class. Sille feels a vague disquiet and change. It finds its way into her musical compositions. “What’s happening to me?”

And then she turns 13!

There is a post describing the plot of the movie from memory on TOMT: TOMT Movie Plot Link

IMDB: IMDB

Music Video Link: YouTube Music Video Link

reddit.com
u/goingaway1111 — 6 days ago
▲ 0 r/TMJ

Why do you think your pain got worse after wisdom teeth removal?

Title. Apparently mine is mainly muscular but I do not believe that.

FOR THOSE WHO GOT WORSE AFTER WISDOM REMOVAL ONLY. OR ANY TEETH REMOVED

reddit.com
u/goingaway1111 — 9 days ago
▲ 1 r/UARS

How many people here are hypermobile or have tmjd?

Title. I feel like we're more prone to floppy airways and jaw pain.

reddit.com
u/goingaway1111 — 11 days ago

Uars? Or what

Age: 21 , Female, I am close to underweight

Symptoms: tmjd, severe anhedonia and fatigue, fibromyalgia, sleep paralysis, muscle pains, choking sensations, vocal cord dysfunction, allergies. Cant breathe through nostrils most of the time, left not at all. Ent said nose looks good??? Heart pain. I have ridges on my tongue and bruxism. I am autistic and hypermobile.

I only got a sleep study at home and CPAP is intolerable. Feels like I'm breathing through a wall constantly. Got infinitely worse after wisdom teeth removal as I feel it made my airway and mouth space even smaller.

Rei: 5.0 events per hour

Apneas: 13 total

5 obstructive

8 central

Oxygen saturation: Average 97% Lowest 93%

Worse on back, but I feel worse on sides.

From what I know I don't have a narrow pallate. I don't want to kill myself but this is unbearable. I'm having adrenal problems from lack of proper breathing and sleep and I feel like I'll just fall over and die one day. I'm too young for this.

reddit.com
u/goingaway1111 — 15 days ago
▲ 7 r/Strabismus+1 crossposts

How obvious is this? Need help.

Bvd? I am almost guaranteed I have it. I feel like I've always had it, but post wisdom teeth removal and covid really made it worse. What are the next steps I should take?

u/goingaway1111 — 17 days ago

Anyone get this from wisdom teeth removal?

Title

I have a million complications from it including anhedonia and tmjd but poor sleep is very bad.

reddit.com
u/goingaway1111 — 17 days ago
▲ 2 r/TMJ

anyone else get anhedonia/dpdr + tmjd muscular pain + sleep and breathing problems after wisdom teeth removal?

Title

reddit.com
u/goingaway1111 — 18 days ago

Anyone still have anhedonia and brain fog + pain after wisdom teeth removal years later?

I am not the same person. At all. Still have anhedonia and loss of sensory input, dpdr, etc. I've talked to multiple people who've had facial changes and mental changes after getting theirs removed. It's a thing that is not discussed enough. I have developed severe allergies, sleep problems, and tmjd as well. Anhedonia is the worst though. I'm afraid it's permanent. I had to quit my job because I'm nonfunctioning. I was going to work on art and writing, and had to stop because I quite literally lost the ability to daydream from dpdr and anhedonia. It's constantly tight in my maxilla region, tmj region, and back of skull now. I think it's the loss of sensory input from the teeth. Implants don't exist, so I'm not sure what to do here. I just want to see that I'm not alone. It's been a year and half now. It all started right after the removal, I remember feeling like I made a huge mistake and that i didn't feel like I was in my own body. I even went to the dentists a week and half later and told them that I didn't feel right, but it was told its healing fine. Whatever. Has not lifted at all since then. Please don't tell me it's all in my head because I am not the only one experiencing this, just that these people including me are unlucky. There's something going on that orthos are not telling us. Mine were all impacted, and I was put under. I guess that makes it worse. I plan on seeing a maxillofacial surgeon in a few months, but I doubt anything can be done. I'm close to suicide. I've talked to therapists and trialed meds and everything else, nothing works. It's because I lost a body part and my body hasn't adjusted or will ever adjust to it.

reddit.com
u/goingaway1111 — 18 days ago
▲ 8 r/Lyme

Is one sided muscle/nerve pain a herx symptom or just a symptom for you?

Wondering if I'm not alone. Muscular tmjd and left side on fire right now...

reddit.com
u/goingaway1111 — 20 days ago

Did I get hacked????

All my pets on my Russian hacked account are naked, but also don't have the tattoos. It seems like a glitch but it's scary. It does say I was online 8 days ago, and my house is intact. Is this just a glitch???

reddit.com
u/goingaway1111 — 20 days ago

Is it dangerous to take bacopa monniera with an ssri?

Title. I take Wellbutrin and I want to try bacopa but worried it could trigger serotonin syndrome. Hard to find info

reddit.com
u/goingaway1111 — 21 days ago

Botox 4 months ago in traps, still experiencing weakness and affects

I still feel pain and general weakness ever since getting injected into my traps. My cci instability has gotten worse and I get tingles in all my limbs. It could be anything, could not. I still just feel mentally not okay. However, I got a lot going on. Does it ever go away???

reddit.com
u/goingaway1111 — 21 days ago

Has anyone had anything stolen or fully hacked from the Russian hack?

I'm still not fixed yet and it's been almost a week. I did contact ajhq. I'm worried my things are stolen.

reddit.com
u/goingaway1111 — 22 days ago

Question for those who have ncah and take steroids

So I'm pursuing treatment and diagnosing for nonclassic congenital adrenal hyperplasia and regarding the cah-x genes. The treatment of that would be corticosteroids for possibly life? If that's correct? I've read great things of people finding remission in their eds type pain and fatigue treating this condition, and I desperately need it. However, I've tried steroids in the past, and high dose prednisone for an inflammation I had for 2 weeks has destroyed my connective tissue even now almost a year later, my neck and all my joints still click after that dosing. I heard steroids aren't good for connective tissue and it fucks it up potentially permanently. I don't know what I should do here, am I just fucked? I know this is really hyper specific, idk if I'll even get an answer. I'm a bit freaked out. Would love if anyone had any experience. Thanks.

reddit.com
u/goingaway1111 — 22 days ago
▲ 6 r/NCAH

Question to those who take steroids or have hypermobility

So I'm pursuing treatment and diagnosing for nonclassic congenital adrenal hyperplasia and regarding the cah-x genes. The treatment of that would be corticosteroids for possibly life? If that's correct? I've read great things of people finding remission in their eds type pain and fatigue treating this condition, and I desperately need it. However, I've tried steroids in the past, and high dose prednisone for an inflammation I had for 2 weeks has destroyed my connective tissue even now almost a year later, my neck and all my joints still click after that dosing. I heard steroids aren't good for connective tissue and it fucks it up potentially permanently. I don't know what I should do here, am I just fucked? I know this is really hyper specific, idk if I'll even get an answer. I'm a bit freaked out. Would love if anyone had any experience. Thanks.

reddit.com
u/goingaway1111 — 22 days ago